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Profile picture for hippele @hippele

No, it was my decision to ween off the Keppra. Doctors aren't going to tell you to stop taking any pills necessarily. They have liability issues to contend with. Now, if you were on a pill and seizure free for say 1 yr, sure they could comfortably suggest you ween off if you decide to. But they cant just suggest you stop your medication because if some issue happened, the doctor could be sued and therein lies their liability issue. In my case, I feel its my body and I am very well read in seizure information and therefore I am in the best position to made decisions ALONG with my doctor.
On another point in this discussion was nutrition and exercise. Well, my view is anybody, whether epileptic, sick, healthy or otherwise should ALWAYS be eating nutritious food AND exercising all the time. Just because you are sick, you decide to exercise or eat healthy?? Ha, a little late for that isn't it?
Hope my words stir some discussion. Interesting stuff.. God Bless...
Ray Hippele

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Replies to "No, it was my decision to ween off the Keppra. Doctors aren't going to tell you..."

@hippele This is what makes Mayo so different. The Mayo team routinely strives to reduce any medication that I don't need. Since last year, the Mayo team has removed half of my seizure medications, and surprisingly, my seizures have dropped by at least 30 percent, and I have improved cognitively beyond my wildest dreams. I do have a new neurological condition (RLS) that is not directly tied to epilepsy, but this is not related to me stopping my meds. This philosophy is not shared by my local PCP, who routinely pushes medication for treating everything from my RLS to conditions that Mayo has proven to be wrong. Sadly, in this part of Florida, we have a terrible shortage of doctors, so I'm having to wait to find a new PCP. I applaud your insightful suggestions for improving our lifestyle as a top priority.