@hippele, you're right that there is still a lot that is unknown about seizures and research continues to make advances in care. That said, there is a lot that we do know. There are different treatment options that are effective for many patients. Here's some useful information about treatment options from Mayo Clinic here: https://www.mayoclinic.org/diseases-conditions/epilepsy/diagnosis-treatment/drc-20350098
It is also known that for some people, the right fitness and nutrition plan can be big part of managing epilepsy. For example, the right diet and exercise can improve your seizure control, to which some Connect members have attested. Of course, it’s important to understand how to safely approach nutrition and exercise, and it's advisable to check with your care team.
Some people find it helpful to keep a journal to help discover if their seizures occur in a pattern or are more likely to occur in certain situations. Sometimes is just by chance, but other times it’s not. Keeping track can help identify seizure triggers.
Please also note that all information shared by members on the Mayo Clinic Connect is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
Hippele, I'm glad to hear that you remain seizure-free since discontinuing treatment. This seems to be right for you. Did you discontinue treatment under the guidance of your doctor? Have you had any non-seizure symptoms?
No, it was my decision to ween off the Keppra. Doctors aren't going to tell you to stop taking any pills necessarily. They have liability issues to contend with. Now, if you were on a pill and seizure free for say 1 yr, sure they could comfortably suggest you ween off if you decide to. But they cant just suggest you stop your medication because if some issue happened, the doctor could be sued and therein lies their liability issue. In my case, I feel its my body and I am very well read in seizure information and therefore I am in the best position to made decisions ALONG with my doctor.
On another point in this discussion was nutrition and exercise. Well, my view is anybody, whether epileptic, sick, healthy or otherwise should ALWAYS be eating nutritious food AND exercising all the time. Just because you are sick, you decide to exercise or eat healthy?? Ha, a little late for that isn't it?
Hope my words stir some discussion. Interesting stuff.. God Bless...
Ray Hippele