Connect
← Return to Kappa free light chain
Discussion
Blood Cancers & Disorders | Last Active: Jul 14, 2025 | Replies (10)
Comment receiving replies
@monrg
Normal is good, eh? Although there are many members who can give some great anecdotal information, you’re going to get you definitive information from your hematologist/oncologist. It is frustrating to wait and now that “My Chart” is available online, we are prompted to speculate on our own.
Have you gotten this referral and appointment scheduled yet? Many of us live quite well with MGUS if that’s what is eventually diagnosed. I remember those anxious days and how literally sick with worry I was. I hope this period is short for you. We’ve all been there. Will you let me know how this is going for you?
Replies to "@monrg Normal is good, eh? Although there are many members who can give some great anecdotal..."
Connect
Thank you Patty. I have not yet received the referral for Hematology/Oncology since the blood test results came in over the weekend, and it is now just Monday. Yes, it is hard to wait. In my health plan I receive a notification each time a new test result comes in, and then I can immediately access the data. I likely see this well before my primary physician does.
Furthermore, I actually teach advanced courses in Immunology & Hematology, and have taught courses in Cancer, so it is really bizarre to feel like I am now my own "case study".
I will indeed keep you all posted as more is uncovered and as my case progresses. I am trying to stay hopeful. I am grateful to have found this community!