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Mast Cell Activation

Blood Cancers & Disorders | Last Active: Nov 25, 2023 | Replies (117)

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@kanaazpereira

Hello @lean1, and welcome to Connect. I'm so sorry that your daughter is going through this. I do hope @danmlee @dolan, @mjgarr, @denisefeddersen, @mepslissy, @jools, will join in this conversation too.
@judeeo, I noticed your mention of mast cell disease in another group; do you have any insight for @lean1?

Here's a link to The Mastocytosis Society, that has detailed information: https://tmsforacure.org/overview/
From what I read mast cells can result in severe allergic reactions; @lean1 how is your daughter managing with the allergies?

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Replies to "Hello @lean1, and welcome to Connect. I'm so sorry that your daughter is going through this...."

Yes the allergies are severe. She had to leave her job because she became allergic to the tools, soaps, gowns etc. she was a blistering mess. She has reactions to water because of nickel in the pipes as well as when she touches door knobs, shopping carts, eating utensils etc. she has had to discontinue all her supplements she was taking, important ones as she has the rare mthfr gene mutation and also has thrombophilia. Foods have been a challenge. She has a small child and she suffers from a lot of fatigue and joint pain so I try to help as much as I can. Thanks for all your responses

How terrilbe you are probably desperate by now could i suggest you contact theothersong.com it is a state of the art homeopathy centre in India they are incrediable at finding cures. They may be able to direct you to a high up homeopath in your area.

@lean1, I hope somehow, someway, your daughter will find someone who can help her get relief. I remember seeing one of those news type of shows on TV a while ago (years ago) that said the things they use in building houses can cause severe allergies. If I recall correctly once sensitized the allergies get worse and people who had them had to move into homes with no carpeting, and all natural material. I cannot imagine going through all of this. She is so fortunate to have you there for her.
JK