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Arikayce

MAC & Bronchiectasis | Last Active: Oct 8 10:28am | Replies (57)

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Profile picture for sallieb @sallieb

I used arikace when I was treated 5 years ago. One of the antibiotics was problematic for me, so they stopped it and put me on arikace. It made me feel terrible. I was exhausted and coughing all of the time. The lung scan showed a that my lungs were inflamed. So the doc stopped all treatment, said I should feel bearer not worse. My current pulmonologist (stanford) is considering having me go back on treatment. She said that the current protocol is not every day, but every other day.

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Replies to "I used arikace when I was treated 5 years ago. One of the antibiotics was problematic..."

Yes, that every day 4 years ago was terrible. I only lasted 4 1/2 months

Arikayce was difficult on my lungs causing inflammation as well. But it certainly helped me cough up the junk in my lungs! My ID doctor gave me a vacation from it and put me on Nuzyra until things calmed down. When I went back on Arikayce it was for every other day.
And I was able to tolerate that. It’s been