@suzieq1980
It seems that you and I have had a very similar experience with being ill with much the same symptoms for 15 years and being dismissed by rheumatology. I love "Hang in there, you're not alone." (!!) Because while we all go through this individually, there are so many women who are not finding good healthcare for autoimmune illness.
I have commented on my experience here (jwj9) but wanted you to know that I take plaquenil without side effects. It seems to especially help with Sjogrens Syndrome; dry eyes, dry mouth. I keep up with eye exams too.
You are the only person who I've heard mention "random fevers"; an ongoing part of my life for many years.
I hope you can find a true human of a rheunatologist! I know there's a shortage of them, but I have found two doctors that are not burned out, have empathy, spend time with me. My current doctor told me , Let me know if there's anything I can help you with. And I trust him. What I have found is the younger the doctor, the more they are aware of what's new with treatments and also, they seem to be more understanding of a patient's needs.
Thank you for your comments!