Is a cure on the horizon

Posted by prayingtolucy @prayingtolucy, Jan 1 5:08pm

Does anyone with AMD feel a cure may come in our lifetime. I'm 56 and probably 20 -25 years younger than most with this life robbing disease. I'm fearful I got it too young to ever profit from a cure years down the road.
I'm just trying to eat for my eyes as if they were my heart. Apparently, there's a link between heart health and eye health. Has anyone else been told that by your specialists?

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Profile picture for prayingtolucy2 @prayingtolucy2

Hi Mostlyjackie,
You mentioned being age 50 at diagnosis. Was that that early or intermediate? I'm curious how old you are now?
It seems everyday I learn something new about myself lol. I requested my records from my Opthalmologist because I was not getting the information I felt I deserved so I decided to start digging in on my own. At first, I believed I was 52 maybe when this started but according to my records they knew in at least 2018 that I had small drusen but failed to tell me, well in person, because according to my records we've had in depth conversations about it which is a total lie. Would I be this upset or as upset as I was if I've known this for seven plus years? Of course not, It was a total shock that messed me up bad. Then to find out I've been misled and lied to. Now, my calculations actually put me at 49/50 years old or younger 😡. I'm still seeing great thank the Lord.
I'm curious how you are doing, how long you've known, and at what stage were you diagnosed?
Any information is greatly appreciated.
I have a friend in the UK who was diagnosed maybe 17-20 years ago and she's still doing great. She's 70 and says she was diagnosed in her 50s but cannot remember exactly the year/age. She still drives and everything. I pray this will also be my story.
Talk soon, PTL

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https://www.ispot.tv/ad/53AH/
That is the PreserVision commercial link!

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Profile picture for mostlyjackie @mostlyjackie

Hello!

I'm not exactly sure what age I was diagnosed, probably about 55 when I moved to Florida, but I know now that I had symptoms before that while living in NY. I noticed that my eyes were more sensitive to light and I realized for the first time that I was brown/green colorblind.
When I was first told I had dry AMD, I was also told that most people do not progress to wet AMD. I was never told it was early, etc. Unfortunately, I was not most people. I was told my parents probably both carried the recessive gene.
I'm 66 now, and I really don't think about it much. I know that when I get the injection, it causes that eye to look very bloodshot (doesn't happen to everyone) and I can't do acting auditions for at least a couple weeks. Now that my injection is every 5 months, it's not a big deal.
I don't expect to ever go blind or suffer limited sight, although I was already very nearsighted.
I realize the more I stay active, living my best life, the more I see AMD as more of a slight annoyance than a disability. Hope you can do the same!
Jackie

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I thought I read that you were 50 when diagnosed. You're already getting injections, how long has that been going on for you? Were you taking AREDS from the beginning of your diagnosis?
I'm guessing you're still driving too? That's my fear. I don't want to lose my independence.
I really have no symptoms unless I start looking for them. This whole situation is just crazy to me.
I really hope that everything I'm doing will pay off in the end. Good diet, exercising, no underlying health issues, good weight, I take Walmart brand pills same ingredients as preservison. I also take vit c, cologne, turmeric and berries powders.
My ex eye doctor remarked how stunned she was that I have the drusen at my age and with good health.
I hope they come up with a cure one day.
You are an inspiration to me. Last year I was a basket case but this year I'm little more chill with it. I think I will get nervous as my retina appoints start approaching in early fall. As of right now I'm seeing fine. 🤞 It remains this way.
BTW, which one are you in the preservison commercial? Are you being honest or just acting?

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I'm a semi-retired O.D. and am working on halting the progression of dry AMD.
When I graduated decades ago AMD was rare. Now it's a leading cause of blindness.
I can tell you this much. It's easier to prevent than to reverse.
Red blood cells are double the diameter of the opening of the capillary they must squeeze through. No, God didn't make a mistake. Your eyes and brain comprise only 2 to 3 % of your body weight yet consume ~35% of your body's oxygen supply. In order to deliver their 02
to the macula they must fold in half like a taco, putting the wall of the RBC in contact with the endothelium of the capillary for maximum diffusion of 02 out and C02 in to the RBC. The RBC's must be singular, not stuck together
for this process to work.
Read the chapter "Blindness and Oils" in the book Young Again by John Thomas for dietary advice.
Best health wishes.
Dr. B

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Profile picture for drgbico @drgbico

I'm a semi-retired O.D. and am working on halting the progression of dry AMD.
When I graduated decades ago AMD was rare. Now it's a leading cause of blindness.
I can tell you this much. It's easier to prevent than to reverse.
Red blood cells are double the diameter of the opening of the capillary they must squeeze through. No, God didn't make a mistake. Your eyes and brain comprise only 2 to 3 % of your body weight yet consume ~35% of your body's oxygen supply. In order to deliver their 02
to the macula they must fold in half like a taco, putting the wall of the RBC in contact with the endothelium of the capillary for maximum diffusion of 02 out and C02 in to the RBC. The RBC's must be singular, not stuck together
for this process to work.
Read the chapter "Blindness and Oils" in the book Young Again by John Thomas for dietary advice.
Best health wishes.
Dr. B

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@drgbico
Thanks for the book suggestion. I'll see if I can find it.
Betty

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Profile picture for drgbico @drgbico

I'm a semi-retired O.D. and am working on halting the progression of dry AMD.
When I graduated decades ago AMD was rare. Now it's a leading cause of blindness.
I can tell you this much. It's easier to prevent than to reverse.
Red blood cells are double the diameter of the opening of the capillary they must squeeze through. No, God didn't make a mistake. Your eyes and brain comprise only 2 to 3 % of your body weight yet consume ~35% of your body's oxygen supply. In order to deliver their 02
to the macula they must fold in half like a taco, putting the wall of the RBC in contact with the endothelium of the capillary for maximum diffusion of 02 out and C02 in to the RBC. The RBC's must be singular, not stuck together
for this process to work.
Read the chapter "Blindness and Oils" in the book Young Again by John Thomas for dietary advice.
Best health wishes.
Dr. B

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@drgbico curious what you think of Red light therapy for Dry M? Medicare does not pay for it as it as a preventative.

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Profile picture for martivee @martivee

@drgbico curious what you think of Red light therapy for Dry M? Medicare does not pay for it as it as a preventative.

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@martivee
Red light stimulation may help in increasing the activity of retinal cells, but to replace cells that have died requires stem cells.
I helped a naturopathic physician reverse her AMD with the use of aphanizomenon flos-aquae.
Coupled with her pristine diet her acuity went from 20/150 to 20/40 and was able to regain her driver's license.
If you want to understand the true cause of AMD read the chapter on blindness in "Young Again: How to reverse the aging process"
by John Thomas. IMO, red blood cell agglutination is the problem not being addressed.
,

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Profile picture for drgbico @drgbico

@martivee
Red light stimulation may help in increasing the activity of retinal cells, but to replace cells that have died requires stem cells.
I helped a naturopathic physician reverse her AMD with the use of aphanizomenon flos-aquae.
Coupled with her pristine diet her acuity went from 20/150 to 20/40 and was able to regain her driver's license.
If you want to understand the true cause of AMD read the chapter on blindness in "Young Again: How to reverse the aging process"
by John Thomas. IMO, red blood cell agglutination is the problem not being addressed.
,

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@drgbico thank you

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Profile picture for martivee @martivee

@martivee
Does anyone else have experience with this cure? Or interested in it? What year was the book "Young Again" written?

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