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The math of invasive breast cancer risk for LCIS

Breast Cancer | Last Active: Jun 20, 2025 | Replies (55)

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Hi! I am 41 was diagnosed with LCIS just a few days ago after a stereotactic biopsy of some calcifications, and am frantically (!) trying to understand and research. Grateful for community opportunities like this, especially since so much of the info I’ve learned has been so confusing. I have an appointment with a breast surgeon tomorrow to discuss next steps. My maternal aunt had LCIS, followed with close monitoring, and developed lobular invasive 5 years after her LCIS diagnosis. I’m lucky that she is still around to share her experience with me. My maternal grandmother and great grandmother also had lobular breast cancer. I’m wondering if anyone has elected to have a double mastectomy with a LCIS diagnosis and strong family history. Is this something that doctors/surgeons would push back on? I can’t stand to think I’ll be living my life just waiting until the cancer arrives, and so I’m inclined to do anything in my power to prevent it from happening and also doing anything I can to minimize my stress along the way. Thank you for reading and thank you for being so brave and sharing your experiences and resources!

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Replies to "Hi! I am 41 was diagnosed with LCIS just a few days ago after a stereotactic..."

So sorry to hear this. Could I ask, was your aunt's recurrence local or did the cancer pop up in another area? That is my concern, since I opted for a lumpectomy. And how did your grandmother and great grandmother fare? My PCP had lobular when she was in her 40s (with no family history) and at first had a lumpectomy. But she grew tired of the monitoring and then had a double mastectomy. That was 20 years ago and she is fine. The monitoring, I'm finding, can weigh on me.

I am not sure about lobular breast cancer but I had a single mastectomy. Following a recurrence on the chest wall 2 weeks later I took control of my own health through researching. Apparently in Canada it is the Standard of Care to keep the other breast. My radiologist told me that she has women with single mastectomies begging their doctors to take the other side off because they are scared of cancer on the remaining breast. They tell women with breast cancer that they have a little bit higher chance of 1 in 7 chance of developing breast cancer (same as the general population) if they don’t take off the other side. I lobbied hard for the prophylactic mastectomy and got it. Without the mastectomy my chances. My chances of BC were around 17% with no mastectomy and 5% with the mastectomy. I wonder which one is bigger? Duh? If women had the facts I wonder what they would choose. They told me there was a 20% chance it was in my lymph nodes and I lost that gamble. The medical establishment in Canada should let womem choose and not deciding for them. I was lucky to have flexible people that stretched the “Standard of Care”.