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GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors

Sarcoma | Last Active: Aug 27 7:50pm | Replies (27)

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What treatment, if any has your daughter done? My daughter has recently been diagnosed with GNET tumor in her small bowel.

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Replies to "What treatment, if any has your daughter done? My daughter has recently been diagnosed with GNET..."

Hello,
My daughter has only treated hers through cytoreduction surgeries (bulk tumor removal) with one of them having to do a small resection in her small intestine. Four surgeries total in the last 5 years. Since she has two young sons, she chooses not to do chemo at this point. Hers initially was found in her small bowel and reoccurs in the same area, with this last surgery a tumor grew near her large intestine. Thankfully nothing has metastasized to other organs so far.