Do you have MAC or Abscesses? The only 2 that came up that weren't resistant were: Amakacin and Linezolid. But this was misleading, since they didn't test for everything at a local level. NKH found a few others that I could use. Same thing true to in US, as in Canada. There are few cutting edge experts out there. Depending on future CT scans, I may be going back on Linezolid? But 2700 mg per week (it may be that low depending on blood test results) is a lot less toxic than 8400 mg/week.
Also, the Arikayce was disgusting and they had me try inhaled IV Amakacin which is a lot easier to inhale. I hope you can find someone in Toronto. FYI: I knew NJH was my best bet, so I made arrangements to be seen without a referral. I have a PPO, so I didn't need a referral. My ID doctor was very supportive, and she also sent over a referral. It wouldn't hurt that you do some research as to where to go and pass it on to your doctor. If your dr isn't supportive. I highly recommend you find another doctor. Good luck! Kathy