1. < Hypertrophic Cardiomyopathy (HCM)
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Camzyos mg increase

Posted by tvickery @tvickery, May 17 7:03am

Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel tired sometimes. I had my echo done and saw the cardiologist. He said my gradient was too high at 135 . He is changing me to the 10 mg. I haven't started it yet but I will be tomorrow. What I don't understand is I've had good results on most of my echoes but the last two wasn't. Has anybody had an increase of camzyos mg and did you have any side effects?

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brumasterj | @brumasterj | May 21 11:47am
In reply to @hjcram "I want to thank you all for your comments and observations. I started taking camzyos just..." + (show)
Profile picture for hjcram @hjcram

I want to thank you all for your comments and observations. I started taking camzyos just 3 weeks ago. I'm 79, have been avid about exercising for years, especially pilates, which I think helps tremendously with my feeling of well being but I've been very frustrated by my inability to walk distances and climbing long flights of stairs is an issue. I'm really hoping camzyos will help but, so far, it's a very subtle change I'm experiencing.
Everyone's comments are very helpful. Hearing of your differing experiences gives me an understanding the range of reactions to taking this drug are possible.

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my camzyos experience was pretty good!
Im avid outdoors and mountain bike rider
Suffered back to back exercise induced heart failure! Could not climb a step ladder after my heart failure or walk the stairs at a movie theater
Diagnosed with HCM with severe LVOTO
Put on camzyos to get feeling better while awaiting surgery
After 1 week i could climb my ladder at home and put up christmas lights
After 3 weeks dr gave me ok to get on my bike but to ride even terrain
First 2 rides 1/2 mile was hard
Increased mileage each week by the end of the month i was at 5 miles
Next month i was riding 10 miles per ride and so on:)
Of course camzyos has its limits 🙂

My point is take it slow and listen to your body and you will start seeing those results!
Journal how yku feel after each activity and look back at it each week:)

Hope this helps:)
Best of luck

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jmr091805 | @jmr091805 | May 30 12:55am

I'm a 57 year old guy. I was diagnosed only a few years ago with HCM. I was started on metoprolol and had few or no symptoms for a long time. Then just in January, I got the " it became obstructive" symptoms. They put me on 5mg Camzyos and it worked for the first 3 months. But yesterday, I had an echocardiogram. Results: basically, my gradient is at 35 or so, but on the last echo it was 13 or so. So the cardiologist said that I should double my dose of Camzos from 5mg to 10mg. I'm worried about the gradient and don't know what it means. I'm also worried i'm going to be on an ever-changing roller coaster of dose changes. I'm also concerned that the gradient being high might have been a reading from an unusually stressful day and that maybe the doubling of the dose is based on a one-off incident. I don't know how this stuff works.

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Chiaska | @bestseller2025 | May 30 10:34am
In reply to @jmr091805 "I'm a 57 year old guy. I was diagnosed only a few years ago with HCM...." + (show)
Profile picture for jmr091805 @jmr091805

I'm a 57 year old guy. I was diagnosed only a few years ago with HCM. I was started on metoprolol and had few or no symptoms for a long time. Then just in January, I got the " it became obstructive" symptoms. They put me on 5mg Camzyos and it worked for the first 3 months. But yesterday, I had an echocardiogram. Results: basically, my gradient is at 35 or so, but on the last echo it was 13 or so. So the cardiologist said that I should double my dose of Camzos from 5mg to 10mg. I'm worried about the gradient and don't know what it means. I'm also worried i'm going to be on an ever-changing roller coaster of dose changes. I'm also concerned that the gradient being high might have been a reading from an unusually stressful day and that maybe the doubling of the dose is based on a one-off incident. I don't know how this stuff works.

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Hello...I have been on 10mg. of Camzyos, after being on 5 mg., for only 2 months, over a year ago. My HCM has been normalized by this dosage amount. I am seeing a new cardiologist next month and I am going to inquire about the newest HCM drug coming out soon. I am just curious. I feel so much better since taking the higher dosage I have energy again.

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brumasterj | @brumasterj | May 30 11:08am
In reply to @jmr091805 "I'm a 57 year old guy. I was diagnosed only a few years ago with HCM...." + (show)
Profile picture for jmr091805 @jmr091805

I'm a 57 year old guy. I was diagnosed only a few years ago with HCM. I was started on metoprolol and had few or no symptoms for a long time. Then just in January, I got the " it became obstructive" symptoms. They put me on 5mg Camzyos and it worked for the first 3 months. But yesterday, I had an echocardiogram. Results: basically, my gradient is at 35 or so, but on the last echo it was 13 or so. So the cardiologist said that I should double my dose of Camzos from 5mg to 10mg. I'm worried about the gradient and don't know what it means. I'm also worried i'm going to be on an ever-changing roller coaster of dose changes. I'm also concerned that the gradient being high might have been a reading from an unusually stressful day and that maybe the doubling of the dose is based on a one-off incident. I don't know how this stuff works.

Jump to this post

Im a little confused you said it was 35 now 13 and they want to up your dose?
Or did it drop to 13 and move up to 35?
Im the same age very active and if you get a chance read thru some of my posts!
I stayed on 5 mg for 5 months and now off awaiting surgery
Good luck if you have questions reach out

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jenywilliams | @jenywilliams | May 30 7:25pm

I'm Jeny, an 83 yr old female whose been on canzyos going on 3 yrs. I started on 5 mg and soon moved to 10. NO SIDE EFFECTS AND improvements. My issue was gradients to high. For
same issue I was moved to 15. Again no side effects. I've been on that dosage about a year. My gradient numbers are not perfect but stable. That's my experience..

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