← Return to Squamous cell carcinoma (SCC) P16+

Discussion
midiwiz avatar

Squamous cell carcinoma (SCC) P16+

Head & Neck Cancer | Last Active: Aug 26 4:24pm | Replies (119)

Comment receiving replies
Profile picture for roblem @roblem

Hi @midiwiz,
I was diagnosed with Tongue cancer on my left side of my mouth on March 1, 2024, and had a left partial glossectomy with a radical forearm free flap surgery on April 3, 2024. It also included a modified radical neck dissection. This one was not caused by HPV and was most likely from too much radiation from the first cancer as it is literally adjacent to my left tonsil where I had chemo and radiation back in 2008. As others have said here is get a second opinion and make sure it is from a cancer clinic.

I went to the top two cancer clinics who specialize in the head & neck cancer in WI, and both had proposed the exact same treatment option, so I felt comfortable.

One thing I am finding out is this big de-escalation Head & Neck cancer treatments coming about especially for people who got it as a result of HPV. I attached some articles on it here. Also, I talked to my oncologist recently and he said I would have four different options if I had tonsil cancer today.

Hope this helps and God speed.

Jump to this post


Replies to "Hi @midiwiz, I was diagnosed with Tongue cancer on my left side of my mouth on..."

Thanks, I've already talked to Dr Lee. and these are all fine, except none approach where I'm at. Mine is definitely withing itself meaning after 2 years it hasn't gone anywhere and is just encapsulated inside it's dead stuff. is the best paraphrase I can say with what I was told late last year.

I'm working on a much different angle, we know Keytruda gets rid of it fairly quickly and is far better than what the 'standard' Rx is for it. I'm is discussion with a provider moving towards a few rounds of Keytruda we have yet to figure the start and how many probably 3-4 worse case 5 as I'm doing a fairly decent job at letting it kill itself.

Thanks again for the info as I know Lee won't travel down the path, but I always like to have names I can approach of providers that just may jump into the keytruda boat with me.