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← Return to Positive vibes ONLY thread
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Hello @nannygoat5,
This is a great discussion to get started. You make a great point about sometimes finding only negative results despite there being positive results out in the world as well.
I'd like to invite @monkhhi to this conversation. @monkhhi started a discussion based on their positive Evenity experience after prolonging treatment because of being scared off by reading the experiences of others:
"Evenity worked for me: Why I chose medication for osteoporosis"
- https://connect.mayoclinic.org/discussion/evenity-worked-for-me/
I'd also like to invite @neesie0159, @kristie2, @gravity3 and @pami who all shared their positive experiences as well.
@nannygoat5, if you are comfortable sharing - do you have a positive experience to share with your osteoporosis journey - A successful lifestyle change or medication experience?
Replies to "Hello @nannygoat5, This is a great discussion to get started. You make a great point about..."
I have been on this thread and just shared my experience with Prolia so far.
@nannygoat5 You can read my entire response on the “Evenity worked for me” discussion:
— https://connect.mayoclinic.org/discussion/evenity-worked-for-me/
In short, I did one year of Evenity injections with no side effects other than tenderness at the site of the injection. That tenderness was gone within 24 hours. After the one year on Evenity.
I then had an infusion of Reclast. Again, no side effects at all. Some people do experience flu-like symptoms following a Reclast infusion but I did not.
I think you and others are correct. Many people who have good experiences on meds including osteoporosis medication do not post. I think you are wise to consider the options and discuss these all thoroughly with your doctor. Do you see an endocrinologist for osteoporosis?
Thanks for tagging me, I just saw this, and I am all in favor of a positive vibes only thread! There are plenty of horror stories, let’s hear the good. I was diagnosed in my mid 40’s with osteoporosis thanks to an MRI for back pain showing an old compression fracture. The NP’s best guess was my eating disorder in my teens screwed up my bones. Several years on Actonel, then stopped due to GI side effects and no one thought to follow up for the next several years, despite me now being menopausal. Another fracture happened before someone took it seriously. I was recommended to try Prolia then, but was terrified of side effects and did Fosamax for the next few years. During that time (and 3 more mild fractures) Evenity was being recommended more, I decided to try it. Expensive co pay, but worth it in the end. My spine went from -4.5 to -3.0. My only side effects were painful arms where the injections were given, lasted about 12 hours each time and was manageable. I started Prolia last August and have had 2 injections. No side effects that I can definitely connect to it, since the last one I’ve had some off and on jaw and facial pain, but my jawbone is fine and it’s mostly mild pain. 2 more and then I am supposed to go to Reclast. I have had 5 mild compression fractures altogether (I don’t think I have had any more) and hopefully won’t have more. I was afraid of every med because of posts about horrible side effects, and yes, they can happen, but I am glad I went ahead with the meds.
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I’m in the beginning of my journey! I’m a carrot not a stick person lol - so I’d like to hear good outcomes. I feel one’s mental health is important to overall health and healing. Thanks for asking!