Changes after Transplant

Sorry my phone is not working right as I was saying my heart even survived being hit by a car last February and I was a pedestrian at the time
Glinda

No problem the 5th was my day

Hi contentandwell I can't say if it is normal for every heart transplant patient I do know that I had the same problem for years that danab has but now I am stable I never miss my iron either
glinda

@ danab my I ask one other question are you able to tell when you iron and blood count and hemoglobin is low? I myself know when it is as I get extremely tired and I'm always freezing. I hope the question is not to personal
Thanks glinda

@contentandwell @glinda I don't really know for sure JK. In my case it seems i catch viruses easy and right now i have 3 basically hounding me. They are CMV from my donor heart, Parvo B19 which i just caught and one in my lungs that is a type of pneumonia called Pneumocystis pneumonia. So now i get 2 monthly treatments IVIG to keep the viruses surpressed and a inhalation treatment for the pneumonia. The funny thing is i feel pretty good except i knotice when my hemoglobin gets really low like 6 i get out of breath easy but that one has been in the 8-10 range lately so i feel like i can do more that what the drs will let me. Thanks Glinda for your words of support i just keep taking each day as it comes Lord willing he is in my corner also and enjoy the good days trying not to let the bad days get me down.

On the hemoglobin i can tell when its lower than 7 i get out of breath easier climbing the stairs in my house. The others i can't tell for sure. With me tho when i get the chills its usually due to a fever and if it last too long its back to the hospital to find out why. I had cdiff in june and spent 5 weeks in the hosp. Thats when they found the lung virus. It took a scope exam into my lungs to find that one.

Good keep the attitude up I know all about getting viruses I usually get them once or twice a year as I have severe allergies and severe chronic ashtma but the year I was lucky if you want to say that no viruses but a month of a bacterial infection and am going on week 3 of antibiotics but this is my third antibiotic that I am on for the month as the first two didn't work and I haven't been able to go to the YMCA here except once since I got the infection have been to tired and worn out have done some walking but not for more then 15 minutes at a time then I have to stop I so can't wait to get back to the Y as I hate not exersing I can tell you as long as you keep working at exercising it will get better and you will get stronger and keep all the other stuff playing you under control and at Bay just keep listening to your doctors and yourself and if you can't exercise a whole lot right now even just walking to your car and back is exercise even a little bit helps trust me I know I wasn't able to walk lat year for 4 and a half months wasn't even allowed to move my legs do to my accident so as I say every little bit will help.
I will always be here any time you want or need to talk even if it's for a little encouragement I will be here just wanted to let you know
Glinda

Thanks Glinda

I have been lucky when I usually get the chills it's do to my blood count being low as for a fever for me I only get that when I get a bacterial infection and I dehydrate which is the case for me right now not the dehydration but the fever from the bacterial infection but when I get the chills it scares me a lot as I had the chills all the way but to being told I needed a heart transplant to having the transplant what scares me the most isn't getting a fever it the chance of getting a virus like a cold as that was what destroyed my original heart was a cold that's what I worry about

Your very welcome anytime