Connect
HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon 
on the group landing page.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Like
Helpful
HugInterested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Connect
Thank you for your response.
Hi, my mother was told in 2013 that her heart condition is hereditary. Hypertrophic cardiomyopathy, I had mentioned it in the past to primary physician but I had no symptoms. But I now am going for echo next Monday. I am healthy but over weight, actively working at nursing home as Restorative Aide and CNA. Until reading today I really didn't understand the diagnosis as I care for my mother's health issues. Never looked up the diagnosis in detail of was explained. She is 79 years old. Her symptoms have been treated as they came but no one said it was hereditary until 2013. Took her to hospital for bronchitis, where when they were treating her for the bronchitis she had trouble and then is when she started with Afib, animation and dual chamber pacemaker. I am just wanting to prevent issues while I can by getting checked for HCM. I have to admit after reading it makes me nervous but the only things that seems to effect me to much caffeine and cough/ allergy medicines.
The first thing is to talk with your primary doctor and get a referral to an interventional cardiologist. They may do an ultrasound of your heart called an echocardiogram. In the meantime, if caffeine bothers you then stay away from it. Reducing, sugar and caffeine will make a world of difference in how you feel.
I went to my doctor that I seen in the past for a new patient visit last week showed him my mother's health history. He ordered the echo based on heart murmur and leaky valve he possibly heard. I did my annual visit may 28 with old clinic and nurse practitioner never mentioned hearing the 2 years i seen them. They also see my mom for her health issue and knew the cardiologist recommended her children get checked. It seems ridiculous insurance wants you to have a symptom before you can be checked.
Somehow, lost my post in mid-sentence. The point was this: a stress test requires abstaining from beta blocker for 24 hours. Since my morning and evening Toprol literally saves me every time taken, will it be safe to go onto a treadmill without it?
Yes it is safe. There is a cardiologist at the scene when you have the test 😊
---Sincere thanks for the response. Will go tomorrow for the stress test.
---Another question, something brought up some months back: Does anyone take metoprolol? How much? My dosage is 50mg twice a day, and my symptoms have recently worsened. Wondering if it is at all common to have the dosage adjusted/increased?
Sylvia
Why was metformin mtf by Sandoz off the market
Hi, I have been taking metoprolol for several years..each year increased by 25mg...I'm now on 100 mg twice a day, plus 5mg of lisinoprol once a day. It has helped me and other docs I've been to say it is a good medicine. I have recently been diagnosed with Afib which I think has probably been a good share of my heart problems..anyway, he put me on a blood thinner Eloquist at $174.00 a month I pay after insurance!!!...So far I have chosen not to be on the coumadin which is far less expensive. Hope this helps...