← Return to HCM-ers: Introduce yourself or just say hi

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@sheim

Even tho I've joined and asked a question or two, I've not introduced myself. I'm Sherry, live in Idaho and scheduled for a Mayo trip and surgery the end of June. I have HOCM and was only diagnosed in Feb. However I think it's because I happened to have been seen by a dr who knew what he was doing and seeing. For several years I've had symptoms ...shortness of breath, palpitations, odd EKG's and known heart murmors. Even told I have a thickening heart muscle. but nothing was mentioned about HOCM. As the time gets closer my concerns get bigger and I wonder if I'm alone in that thinking. Other than walking makes me wore out it doesn't stop me; I just need to rest a minute or so... so I wonder do I REALLY need this. I also think, what if I get there, go through the expense (flight, hotel, car rental) and the doctors there say ..."naw you don't really need this" My doctor here says after reviewing what he sends them they aren't going to waste their time or mine in having me come if they don't agree with him. I guess I could say if no surgery is needed I got a forced vacation. Positive thinking right? haha. I do tend to get myself worked up in worry so I'm thankful I can voice my concerns on here.

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Replies to "Even tho I've joined and asked a question or two, I've not introduced myself. I'm Sherry,..."

You sound like me! I was diagnosed with HOCM in 2012, and had a septal myectomy at Mayo Rochester, MN in November 2014. Mayo saved my life. I had been tried on many meds, and I have a pacemaker/defibrillator. I’m sure the Mayo will evaluate you extremely carefully, as they did me. This surgery alleviated many of my symptoms. They are very careful and thorough. I think it’s very Natural to be nervous and apprehensive. I had been evaluated at several major medical centers, The only thing they could offer me were medication adjustments.
I am very thankful I had the surgery. My symptoms had become very severe. I am a registered nurse, so I was very familiar with where my condition was taking me.
Do you have a pacemaker defibrillator? You may want to discuss that with your cardiologist.
I wish you the best of luck, and I’m sure you’ll be in a very fine care at the Mayo.