Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Older people need to leave go of there pride if you need help it's best to be near your children maybe not live with them but near them

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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@grandmar

My husband and I live with my stepdaughter (his daughter) and have for 2 years now. We didn't plan to do this but her husband got ALS and died 3 years ago. She asked us to come and help her with the last two of her teenagers still living with her. She has 2 businesses and travels a lot.

She has been very good and generous with us, but it's not the same as being independent. We love it here and won't move away. She just bought a new house with plenty of room for us to stay with her. We are grateful for the help as we only have Social Security now because our business went bankrupt and we lost everything then. Two years ago she took us to Costa Rica with her and the family. It was wonderful. She also has a housekeeper who comes three times a week and cooks dinner when she's there. Our adult grandchildren visit regularly and that is a very good thing.

I think it's great to know that you can rely on your children to help out when you are older. They are still earning money and actually enjoy helping (usually). This is my experience.

Gail B
Volunteer Mentor

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Sounds like a good relationship all around that's great ,happy for you Gail

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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I AM SORRY FOR YOUR STEP DAUGHTER'S LOSS. IT IS WONDERFUL THAT ALL OF YOU HAVE BEEN ABLE TO WORK OUT THE LIVING ARRANGEMENTS. IT MIGHT NOT BE THE VERY BEST SITUATION, BUT IT SURELY SEEMS PRETTY GOOD.
ronnie

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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for sure!!

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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I did find one here in San Antonio. It was 1400.00 a month which is about what apartments go for. You have to do your own cooking and there are no buses to take you to shopping. After I had my accident with my car I thought about all the Insurance I pay and money out for the car to buy it..And I made up my mind NO. I will need that money. The buses in our area of San Antonio are very very clean and no criminal element. I don't about downtown. The one I found is in an area where large companies have their main offices. To get to the grocer store or shopping I would have to depend on bus ride or my daughter in law when she has a moment in tie. Believe me, they were nice apartments.

But, I found a real apartment for the same price near my kids I only rented i for 14 months. If at the end of 14 months I have to move to a facility, I will be able to go. Right now, I use Uber for all my travel i town. I guess I could use uber on apt way out. That is my only bill each month UBER. Well, rent, food, Health Insurance (supplimental). I am on a tight budger as this money has to last me until I die.

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Lucky you! Not all of us has this available. To us nor could I cope with your new 'job'.. I am happy for you.

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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All three of my kids have different outlooks on what they see is good for me. One thing for sure, only one will manage the money. I have already LOANED way to much to one of them. I will probably never see that money. Please everyone, be careful with that. We are going to an attorney to write it up. I am done trusting anyone anymore. I was so tired today. I took two naps. This rainey weather is the reason. Come on sun. But, then the summers here get so hot, you cannot walk to far. SO Spring will be my mosg wonderful time.

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Gramar, Have you ever lived with your kids. If you do, after about three or four months you all get sick of each other. They want to control and I am too independent. I dont even want to add on to their house. I love my kids and they love me. The three have three different ideas for me. I almost look forward to not knowing to much at all. But, not me....My mind is solid. I worked as a Realtor for 40 years, then after retirement, (and loosing three homes), I volunteered with CASA (Court Appointed Advocate for Children in the Courtroom) I guess you would say I was the child facing the judge. But, tons of research and investigation had to be doe. Only once was my life threatned by a step mother. I knew she was bad the first day I met her. The father had three children. Their mother was a Meth User (not Stepmother but eventually she did do drugs). The mother got pregnant again and the baby was born addicted. The little girl I represented ask me why her brother was shaking. Of course, the baby was taken away immediately upon birth. The mother kept moving around so that she could be in a hospital we would not know about. SORRY mom we have paperwork for that. GOTCHA. So now, I do nothing accept take care of myself and complain about pain. GREAT life Huh? Sure wish my husband was still here. I will see him soon one of these days. Praise God

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@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real...esp. Fibromyalgia. Doomed and damned by ignorance.

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Please unsubscribe me please thanks

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