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43219876x (@43219876x)

Grover's Disease

Skin Health | Last Active: Apr 30 6:00pm | Replies (1130)

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@impatient

Question: Has anyone here tried Metal Magic, which has cilantro and chlorella? The "fresh" cilantro I can buy here is usually shot through with rotten leaves as well as dirt, and takes forever to clean – I tried consuming at least 1/2 to 1 whole bunch every day for a week, but it was taking up too much time.

Fwiw, I've been suffering from GD more or less steadily for 2 years. My case is biopsy-confirmed, and blood and patch skin tests revealed no significant allergies. My GD manifests differently on different types of skin (assuming it's all the same thing). It started with itchy eyes and eyebrows and has worked it's way down: first rosacia on my face, then itchy neck with redness in the horizontal creases of the neck, then itchy bumps that tend to scab up on my shoulders and back, then bumps on my chest, then the same itchy redness in my armpits, then bumps spreading down my arms, with more of the itchy redness on the insides of my elbows. The armpits and elbows quickly become much more itchy if my arms are in a position that closes those areas off from the air – honestly, I've wondered if it were something fungal; they're better if they stay dry. On drier but tender areas on my arms like my inside wrists, fine, short little scabbed lines will appear in the fine creases of the skin.

Sometimes the itchiness wakes me up in the night. The areas colonized earliest remain bumpy and itchy, but tend to be less so. As an outbreak starts to resolve, I seem to be left with a few new little tiny warts or skin tags that remain very itchy.

Heat and clean hot water don't seem to bother it, but sun and sweat do.

The only things that have really seemed to help are witch hazel, prescription strength cortisone; they usually tame the severity a bit and temporarily ease the itching, but they don't eliminate it. I do use a bunch of other stuff but am not sure they make much difference; and some things docs prescribed seemed to make it worse. I have not tried the light therapy, and my doc has never mentioned it (he is the 2nd derm doc I've seen; the first refused to even look at the rash).

It seems clear the docs have no idea what's really going on; and I'm not convinced this is really a singular disease, or rather some kind of deterioration in the skin's defenses or ecology that makes it vulnerable to more than one type of breakdown or attack.

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Replies to "Question: Has anyone here tried Metal Magic, which has cilantro and chlorella? The "fresh" cilantro I..."

I agree with you, you have more going on than GD. I have 3 forms of eczema including GD. Seems like you have had many tests. You mentioned patch testing. Was that the 5 Day Extended Patch Test and if so how many substances were checked? What type of blood test? What did it check for. My Medicare wouldn't cover my blood test (they did the Patch Test) so had to pay out of pocket $600 and that test showed allergies to 5 or 6 metals with the most severe aluminum and nickle. It didn't even test for mercury.

Has anyone suggested you have Atopic Dermatitis, so many of your symtoms sound like others with Atopic have. I have or had 3 forms of eczema and Atopic is not one. Maybe you could start a discussion asking for those with Atopic to share there symtoms with you. Dupixent seems to be the miracle drug for them.

I have been to many derms and an allegist over the years and I learn nothing from some, but have learned much from others. My suggestion is to keep searching for a good doctor. Perhaps you can mention your area in a discussion and ask others if they know of a dermatologist who is knowledgeable about eczema. So many today just want to sell face rejuvination where the big money is.

I'm glad your reaching out on this site, keep it up as I know first had blogging has provided me insight I never got from doctors.

I hope you are following the anti inflamation diets we are blogging about. I was in denial and resisted for 20 years- major mistake. For 50 years it didn't matter if I ate sugar or grain type carbs or as mentioned nightshades, but my body changed in middle age. Yours has clearly changed. Giving up processed sugar was the hardest thing I have ever done.