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Grover's Disease: What works to help find relief?
Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)Comment receiving replies
Sounds familiar except I’ve been told for years that my itchy bumps were just a contact dermatitis. Wasn’t until I spent a spring in hot humid Hawaii then went to the hot dry SW for 3 weeks of hiking and finally landed in Colorado where my red bumps were profusely spread over my trunk and spreading to arms and legs. I was miserable! Once home I saw my dermatologist and she found a “newer” lesion that clearly showed Grover’s and not just inflamed cells. It’s been 9 months since the start of this extreme flare; after 3 months of phototherapy 2-3x/week and Triamcinolone dabbed on hot spots, along with Luke warm soda water soaks 2x/wk, no vigorous exercise and cold packs to the itching burning areas in the evening, I’m seeing light at the end of the tunnel. For me, I had to stop use of all commercial lotions and use straight up coconut oil to moisturize 2x/day. Messy but it’s the only product that does not burn. I also undertook a 30 day elimination type eating plan (Whole 30) to reduce systemic inflammation. I truly felt better doing this; and have noticed increase in “flares” as I’ve reintroduced the foods I’d eliminated. Seems as I get to higher dosing in my UVB phototherapy I’m having more “flares.” Has anyone else experienced this?
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Just because we have GD doesn't mean we don't have other forms of eczema; I have 3 types.Most of us with eczema, an autoimmune disease either have or will develop another autoimmune disease and will also add to our list of types of eczema. You mentioned giving up commercial lotions (which are a toxic soup of chemicals, preservatives, alcohols, fragrance and even natural ingredients we can be allergic to). I strongly recommend getting the 5 Day Extended Patch Test. Do you know coconut, a natural ingredient is a major offender and included in the patch kits for testing for a reason. I would have never guessed on my own what allergens I had. Like you for years derms assumed my torso rashes were part of my Allergic Contact Dermatitis issues not bothering to dig deeper. Google this exact test.