Stroke survivor - always hungry

Posted by fekind @fekind, Sep 1, 2016

My fiancé who is only 37 yrs old had a massive hemorrhage stroke on the right of of the brain in October 2015. She still has left side paralysis, but making some progress. One of her major issues is weight gain which is making her recovery more difficult. She is experiencing a feeling of always being hungry and has not had the feeling of being full since her stroke. She also does not remember what and when she eats. I continually remind her of what she ate, portions and the time she ate. I have tried recording everything she eats so she realizes how much she is consuming, but she doesn't have any interest and is only concerned about how hungry she is at the moment.

We have inquired with her neurological Doctor, family doctor and brain surgeon, but none of them have offered any solutions. Her family doctor suggested a wellness plan, but I know she will not follow it.

This hunger issue is also causing her frequent emotional breakdowns.

Any suggestions would be appreciated!

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@kariulrich Thanks for sharing the experience you had - certainly "food for thought." (No pun intended). Teresa

REPLY

Hello, I hope this find you well. I was wondering if you ever found a reason for the always being hungry?
My brother 44 had a tumor on his pituitary gland and due to complications had two major strokes the largest being on the left side. He has to take hormones long story. The hunger thing totally controls ever min of every day. He also has no short term memory. So no matter how many times we tell him this is what you had. His hunger trumps everything.
Did you find any info??

REPLY

Hello @fekind

Please feel free to update us, if are comfortable doing so, about your fiancé's progress.

We would be interested in knowing if you found an answer for the intense hunger problem that your fiancé experienced following her stroke.

Teresa

REPLY

No one mentioned anything about drinking water. There are times we think we are hungry when we really are thirsty. Before every meal we should start with a glass of water, just plain old water. I had two strokes the end of 2014, on the left side, and had to force myself to eat. I still have to remind myself to eat so I can take my meds, which have to be taken with food - excuse me I had to take a break to get a drink of water.

Have you seen a dietitian? I had lost weight after I had my strokes and wanted to gain good weight, not bad weight. I was told to eat a snack every 2-3 hours and 2 or 3 small meals a day. There are a lot of healthy snacks under 100 calories out there. For people who never liked, or drank water, drinking over 2 liters of water every day is very hard.
mlmcg

REPLY
@brglassworks

Hello, I hope this find you well. I was wondering if you ever found a reason for the always being hungry?
My brother 44 had a tumor on his pituitary gland and due to complications had two major strokes the largest being on the left side. He has to take hormones long story. The hunger thing totally controls ever min of every day. He also has no short term memory. So no matter how many times we tell him this is what you had. His hunger trumps everything.
Did you find any info??

Jump to this post

Hi @brglassworks
Welcome to Connect. I hope that others in this discussion will return to offer advice about hunger and stroke. In the meantime, I also want to let you know about a couple of discussions about pituitary tumors in the Brain Tumor group. Please see:
- Looking for others with Pituitary Adenoma https://connect.mayoclinic.org/discussion/i-like-to-now-if-their-is-anyone-who-has-been-diagnosed/
- Video Q&A about Pituitary Tumors https://connect.mayoclinic.org/webinar/pituitary-tumors-26deda/

REPLY

I had a stroke in my left thalamus about a month ago. I felt weak and constant hunger ever since. I’m 65 years old female, and take no meds except a baby aspirin day. I’m 100+ pounds overweight need to lower my cholesterol and blood pressure. I’m eating all healthy foods and have lost 18 pounds but every time I eat I never feel full And I always feel weak as if I haven’t eaten in days. Why is this happening to me and what can I do to remedy the problem?

REPLY
@annsandhorst

I had a stroke in my left thalamus about a month ago. I felt weak and constant hunger ever since. I’m 65 years old female, and take no meds except a baby aspirin day. I’m 100+ pounds overweight need to lower my cholesterol and blood pressure. I’m eating all healthy foods and have lost 18 pounds but every time I eat I never feel full And I always feel weak as if I haven’t eaten in days. Why is this happening to me and what can I do to remedy the problem?

Jump to this post

Hi @annsandhorst and welcome to Connect. I moved your messages to this existing discussion about stroke and constant hunger so that you can meet others experiencing similar after effects of stroke, like @fekind and @brglassworks. I'd also like to invite @lsatenst1 @soloact @lakelifelady @maryar @strokesurvivordynamo and @mlmcg into this discussion.

Ann, have you talked to a dietitian or nutritionist about the constant hunger and weakness?

REPLY

I have told my 3 doctors and the physical and occupational therpists, none gave me any reply to my question. I will ask a nutritionist as soon as possible. Thank you.

REPLY

When we think we are hungry we can really be thirsty. At that time we should drink a glass of water, just plain water. Try drinking at least 8 oz of water before every meal, another with the meal, then another at the end of the meal. Other liquids may not work, they can make you even more hungry. Coffee, teas, and soft drinks, diet can be the worst, to make you more hungry and may not fill you up. Yes, with all that water in you, you will have to make more trips to the bathroom, think of it as exercise.

Doctors know very little about diet and neither do OTs or PTs. Nutritionist can help with diet and what to do about hunger. I am to eat 3 meals and 3 snacks each day. These are not regular size meals and 100 calorie snacks.

Depression can come along with the stroke, you can take pills or visit the Psychiatry Department. I did not want to take another pill so I see a therapist once a month. When our brain has been damaged we have to make it well again. Good luck. mlmcg

REPLY
@mlmcg

When we think we are hungry we can really be thirsty. At that time we should drink a glass of water, just plain water. Try drinking at least 8 oz of water before every meal, another with the meal, then another at the end of the meal. Other liquids may not work, they can make you even more hungry. Coffee, teas, and soft drinks, diet can be the worst, to make you more hungry and may not fill you up. Yes, with all that water in you, you will have to make more trips to the bathroom, think of it as exercise.

Doctors know very little about diet and neither do OTs or PTs. Nutritionist can help with diet and what to do about hunger. I am to eat 3 meals and 3 snacks each day. These are not regular size meals and 100 calorie snacks.

Depression can come along with the stroke, you can take pills or visit the Psychiatry Department. I did not want to take another pill so I see a therapist once a month. When our brain has been damaged we have to make it well again. Good luck. mlmcg

Jump to this post

Thank you so much for responding. I will see a nutritionist this week. I don’t have depression, thankfully and will do whatever it takes to avoid medication.

REPLY
Please sign in or register to post a reply.