My Long Covid experience started on May 7th, 2022 with 4 continuous weeks of testing positive - I had all the typical symptoms except for a fever - trench mouth, headaches, dizziness, TMJ, tennis, double vision, gastric hell, unbearable pain in my hips, numbness in my legs, arms, hands and feet, continuous brain farts, weakness, short of breath ,,,,, I felt like I was dying and still do 2-1/2 years later. The LC clinic was my most disappointing experience of the whole period. They had no inclination to understand or treat my pain - their whole effort was to determine what I didn't have. I can safely say now I don't have an inner ear problem, a bone disease, not having a stroke, or heart attack and all thanks to the covid clinic chasing down what I don't have while slowly observing my body deuterate. If you're looking for help, a little compassion or heaven help a treatment - stay clear of the LC Clinics.
That's all they can do. Find out what you don't have and keep drilling down. We are sisters from another mister. I got COVID in December 2022 and I still have the exact same problems, except I had so much pain I had to have my hip replaced and now I am nailed the bed.
I was in the ER two nights ago with symptoms of a stroke on The left side of my face and the inability to put weight on my left leg. I've had the leg pain for 2 weeks and the advice from the fill in internist was elevation and Tylenol. (My regular doc was dealing with the deaths of two immediate family members.)
I didn't have a stroke. We now know a lot more about what's not wrong with me.
I am being treated with a crap ton of antivirals and prednisone, and as of yesterday afternoon and I feel 90% better.
I also had some independent lab work done this past spring and found that my DHEA was low and my cortisol was low. I repeatedly need IV fluids no matter what I do for high duration. Very long story short, I have to see the endocrinologist for suspected secondary adrenal insufficiency.
And I am going to get in as soon as possible to an immunologist as of this morning.
I'll have to taper on the prednisone, but I will be on the antiviral for at least 6 months, more likely a year.
What's broken things loose is I went on ChatGPT and entered all of my symptoms and my labs and I received a direction to go in. I don't know where I found the energy to do that because I am a shell of my former self. Highly recommend you try it, too.