I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter's hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.
I was on topamax for a decade, 400 mg twice per day. I started at a much lower dose. I did not lose time or have daytime drowsiness with topamax. But many people cannot tolerate Topamax. It is worth a shot. I take 120 mg Cymbalta and 2 mg klonapin every day. Neither helps the pain. I get marginal relief of depression from Cymbalta; I have tried many, many anti-depressants over the years, with no luck. Klonapin has been a godsend for my anxiety and agoraphobia. Way better than ativan. But again, it did not offer pain relief. Tizanidine, taken while I am in bed (It kicks in fast) has given me my sleep back. But if I awake at night to pee, I often fall because it is so strong.
I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter's hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.
THE "NEW KIDS ON THE BLOCK" ARE: BOTOX AND KETAMINE; TIME MAGAZINE HAD A SPECIAL COVERAGE OF
BOTOX IN JANUARY KETAMINE FOR CHRONIC PAIN IS GETTING MORE ATTENTION AFTER MANY YEARS OF USE BY THE RETURNING MILITARY, FOR SURGERY. SOMETIMES KETAMINE IS COMBINED WITH AN OPIOD,BUT THE LATTER MAY BRING PROBLEMS!.
I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter's hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.
I take Tizanidine at bedtime too, and it is helpful, especially for my RLS (Restless Legs Syndrome). It seems to give me some relief with the Myofascial pain too. This is one drug I'd never take unless I'm going straight to bed though, and I'd never get behind the wheel of a car while under its influence. If I do a little reading in bed, I fall asleep with a book in hand.
Dear "SISTER" : I did a correction to my initial reply. I also mentioned that both Lyrica and Klonopin have been used with some success.
For CHRONIC PAIN, SOME SUCCESS IS BEING FOUND IN VERY RECENT YEARS WITH KETAMINE INJECTIONS. I'M NOT SURE IF A PILL IS AVAILABLE. KETAMINE AS USED WITH VETS PRIOR TO THIS.
Allow me to quote you, @ujeeniack:
"i see nothing to indicate that you have seen even one neurologist or had tests done. If you read the Mayo Clinic or Webmd you will find that gabapentin is NOT for RL syndrome."
I saw your 'correction'. You didn't even mention you were referring to RLS.
It was the "I see nothing to indicate that you have seen even one neurologist or had tests done" for which you owe @flor an apology.
It's very difficult for some people to share personal stuff like this, and it's so easy to scare people off with statements like that. You could have been nicer about your response to @flor and more specific about your correction. You knew how to dish it out, but got your feathers ruffled easily enough when you got called on it. It doesn't cost anything to be nice, especially to someone who is sharing this kind of content.
That's all I have to say on this subject. Someone had to stand up for @flor. Beyond that, It's distracting the rest of the group from what this site is about,
I hope everyone sleeps peacefully and pain-free. Goodnight all.
Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I'm on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.
Thanks, @flor for sharing. I like the idea of not having to swallow another pill or if you do, maybe it could be a lower dose. I'll have to check this out. Did you need a prescription? In addition to being helpful for RLS, maybe it could help Myofascial Pain. Thanks again. Susan
Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I'm on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.
I hope that doesn't prevent you from continuing to post and share your experiences. Normally, everyone on the site is supportive, and it not, maybe they're having a bad day. Please keep sharing. Susan
I am developing hearing loss, and my eyes are mote than ever sensitive to light. Unfortunately my ability to smell has not decreased; it is my superpower. Go me! I have been treating the hearing loss to taking narcotics 2x/week. I never associared it with Cymbalta, Topamax, gabapentin, etc.
Dear "SISTER" : I did a correction to my initial reply. I also mentioned that both Lyrica and Klonopin have been used with some success.
For CHRONIC PAIN, SOME SUCCESS IS BEING FOUND IN VERY RECENT YEARS WITH KETAMINE INJECTIONS. I'M NOT SURE IF A PILL IS AVAILABLE. KETAMINE AS USED WITH VETS PRIOR TO THIS.
I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter's hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.
Dear "SISTER" : I did a correction to my initial reply. I also mentioned that both Lyrica and Klonopin have been used with some success.
For CHRONIC PAIN, SOME SUCCESS IS BEING FOUND IN VERY RECENT YEARS WITH KETAMINE INJECTIONS. I'M NOT SURE IF A PILL IS AVAILABLE. KETAMINE AS USED WITH VETS PRIOR TO THIS.
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I was on topamax for a decade, 400 mg twice per day. I started at a much lower dose. I did not lose time or have daytime drowsiness with topamax. But many people cannot tolerate Topamax. It is worth a shot. I take 120 mg Cymbalta and 2 mg klonapin every day. Neither helps the pain. I get marginal relief of depression from Cymbalta; I have tried many, many anti-depressants over the years, with no luck. Klonapin has been a godsend for my anxiety and agoraphobia. Way better than ativan. But again, it did not offer pain relief. Tizanidine, taken while I am in bed (It kicks in fast) has given me my sleep back. But if I awake at night to pee, I often fall because it is so strong.
THE "NEW KIDS ON THE BLOCK" ARE: BOTOX AND KETAMINE; TIME MAGAZINE HAD A SPECIAL COVERAGE OF
BOTOX IN JANUARY KETAMINE FOR CHRONIC PAIN IS GETTING MORE ATTENTION AFTER MANY YEARS OF USE BY THE RETURNING MILITARY, FOR SURGERY. SOMETIMES KETAMINE IS COMBINED WITH AN OPIOD,BUT THE LATTER MAY BRING PROBLEMS!.
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1 ReactionI take Tizanidine at bedtime too, and it is helpful, especially for my RLS (Restless Legs Syndrome). It seems to give me some relief with the Myofascial pain too. This is one drug I'd never take unless I'm going straight to bed though, and I'd never get behind the wheel of a car while under its influence. If I do a little reading in bed, I fall asleep with a book in hand.
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1 ReactionAllow me to quote you, @ujeeniack:
"i see nothing to indicate that you have seen even one neurologist or had tests done. If you read the Mayo Clinic or Webmd you will find that gabapentin is NOT for RL syndrome."
I saw your 'correction'. You didn't even mention you were referring to RLS.
It was the "I see nothing to indicate that you have seen even one neurologist or had tests done" for which you owe @flor an apology.
It's very difficult for some people to share personal stuff like this, and it's so easy to scare people off with statements like that. You could have been nicer about your response to @flor and more specific about your correction. You knew how to dish it out, but got your feathers ruffled easily enough when you got called on it. It doesn't cost anything to be nice, especially to someone who is sharing this kind of content.
That's all I have to say on this subject. Someone had to stand up for @flor. Beyond that, It's distracting the rest of the group from what this site is about,
I hope everyone sleeps peacefully and pain-free. Goodnight all.
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1 ReactionThanks, @flor for sharing. I like the idea of not having to swallow another pill or if you do, maybe it could be a lower dose. I'll have to check this out. Did you need a prescription? In addition to being helpful for RLS, maybe it could help Myofascial Pain. Thanks again. Susan
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1 ReactionI hope that doesn't prevent you from continuing to post and share your experiences. Normally, everyone on the site is supportive, and it not, maybe they're having a bad day. Please keep sharing. Susan
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4 ReactionsOK, I understand now. Thanks.
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1 ReactionNITE!
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1 ReactionAs with most of these postings, I think I am ignorant of the original postings and problems and so I have trouble in replyng.
In this case,I quickly see a problem in polypharmacy: too many cooks spoil the soup. You need to be wary of overkill on the CNS.
Did you discuss the usage of these drugs at the same time with your neurologist or psychiatrist?
I take bupropion (Wellbutrin) for mild chronic depression, 150 mg/day, but see no effect For many years I used Zoloft but probably incorrectly.
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1 ReactionAmen! @sistergoldenhair. Perfect response to a hurtful, curt remark. Thank you!
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