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How do you, as a parent, deal with the anger? Son has sarcoma
Caregivers | Last Active: Jun 14 10:31pm | Replies (29)Comment receiving replies
Hi @bkayk, I added your message to the Caregivers as well as the Cancer support groups so you can easily connect with other parents whose young adult children were diagnoses with sarcoma like @interruptedivc @amd123 @erasahai @jennifer0726 @madstrong @janezum @phuds01 and others.
I get the anger. It's just not right that life in adolescence and young adulthood gets brutally interrupted by cancer. Just. Not. Right. But you have a right to your emotions. Feel free to vent.
Has your son had to delay his semester in order to go back on treatment? Did he return home to be with you? Is the proton therapy facility close to home?
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My daughter, now 24, had a complete synovectomy in her left knee in Dec 2023. In March 2024, they had to do a knee replacement as the chondrosarcoma infiltrated her knee. She had 3 seedings around the knee in Sept and Nov 2024. She also had a Staph infection, which took months to beat. In January 2025, a CT scan showed it had metastasized to her lung. It was removed, and she also received a new prosthesis. She is having her next CT scan in early June. Her cancer is very aggressive; we do not get time to adjust! Chondrosarcoma doesn't respond to chemotherapy or radiation, it is "detect and destroy."
She manages her diagnosis as well as you can imagine. She took a sabbatical leave this year and will return to the University next year. As a family, we stand together, but it is VERY difficult. We haven't got an idea what is lying ahead. There is not much literature on the destruction path of Chondrosarcomas especially now that it has metastasized.