Chronic Pain members - Welcome, please introduce yourself

I'm trying to get an appointment with my pcp, and I want to move my prescription back to 30mg tid of morphine sulfate contin, though I won't necessarily take the full dose, at least not at first. I just want to have the option of having enough, whether it's 15mg qid or 30/15/30, or whatever combination keeps me somewhat sane.

I did turn the scs down a notch after 2 days, and again after another day. I turned it down one more notch tonight, and I'll see if it makes a difference. If it doesn't work, I'll call the rep, and have him try to recalibrate.

Another thing that's going on is that I continue to lose weight, even though I eat plenty, and have snacks. I dipped below 150 last night. Getting close to the underweight line in my BMI.

Jim

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I guess y’all can keep sharing about the petition and collecting signatures. I’ve been down for the last two days with a severe flare and haven’t been able to do much. Expecting tomorrow to be worse. A wet fall snowstorm hit Northeastern Wyoming and I’ve been unable to function since except to make my way to the bathroom, bathtub to loosen my muscles from intense cramping from the windup and eat a little bit to keep my meds down.
Welcome ole man Winter!

The more signatures I can get, the more serious the legislature will have to take me.

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@faithwalker007

Hi, Renee. I'm in a semi-dark place right now because of pain and pain treatment. The neurologist tried to set up a consult appointment to discuss a pain pump implant, but after I sent him a note asking him to expedite the process, he called the doctor he had referred me to, and discovered that no one in central Oregon manages pain pumps. Getting the implant is no problem locally, but the doctors who manage the medication in the pump are 150 miles away. And my wife has voiced her objection to the pain pump implant.

Back to what you said about having a doctor trying to taper you off opioid. I used to take 30mg tid, but after tapering off completely, I only went up to 15mg tid. I've pretty consistently been taking it only bid, to build up a backup supply. This summer my prescription was cancelled 4 months, because the supplement insurance wanted prior authorization. So much for the backup. I know that when I take 30mg, it reduces the pain noticeably. A while back my pcp told me that he wouldn't increase my dose because of tolerance. If I can't get the pump implant, I know that I'm going to need more mscontin.

Did you get the pain specialist to back off and give you the prescription you needed? Can you tell me how much you were taking that prompted the doctor to tell you that?

I guess I need to get an appointment with my pcp and ask him to increase my dose. I'm going to use some of the things you've posted in the conversation.

Thank you for all you're doing.

Jim

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@faithwalker007 I am so sorry to hear this. You are such a wealth of information and a leader through these crazy government restrictions

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Sorry I am so behind on reading what's going on. Please direct me to where I can sign a petition. Thank you so much, Sunnyflower

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I'm trying to get an appointment with my pcp, and I want to move my prescription back to 30mg tid of morphine sulfate contin, though I won't necessarily take the full dose, at least not at first. I just want to have the option of having enough, whether it's 15mg qid or 30/15/30, or whatever combination keeps me somewhat sane.

I did turn the scs down a notch after 2 days, and again after another day. I turned it down one more notch tonight, and I'll see if it makes a difference. If it doesn't work, I'll call the rep, and have him try to recalibrate.

Another thing that's going on is that I continue to lose weight, even though I eat plenty, and have snacks. I dipped below 150 last night. Getting close to the underweight line in my BMI.

Jim

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I’m hoping things get better today. At least the white scenery is an offset to the pain and exhaustion.

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@faithwalker007
Hmmmm, something tells me that sweet pup of yours is a BIG offset to the pain and exhaustion. He's (she's?) adorable.

You're welcome to keep the snow btw.

No offense if it's your cup of tea.

Hank

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Lol Bo is my Service Dog and loves the snow. He gets his mobility harness after the first of the year since that’s when he turns two—Great Pyrenees and all giant breeds’s growth plates don’t seal up until they are two and I don’t want to hurt him.
He’s a character and we enjoy him. My husband has a golden lab named Cooper as in DB Cooper and yes, the name fits. Lol
Vote is my husband’s hearing alert dog. He helps James by barking when his phone rings or anytime there is a need and James didn’t hear it.

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sorry for the delay. If you haven’t already, https://change.org/NewOpioidLeg2020

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