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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

sunnyflower | @sunnyflower | Oct 12, 2020
In reply to @jimhd "@sunnyflower It's criminal that your terrible pain went ignored for so long in the ER. I..." + (show)
@jimhd

@sunnyflower

It's criminal that your terrible pain went ignored for so long in the ER. I remember the pain I was having in 1996 after breaking ribs and puncturing a lung. I was home after being in the hospital for 4 days, and the pain wouldn't stop. This was long before neuropathy. I called a friend who was a doctor and told him what was happening (he might have called me) and his words were "There's no reason anyone should suffer with pain." A little while later he knocked on my door with medication that stopped the pain, and a really nice CD of instrumental hymns. Anytime I'm in the ER, I ask for dilaudid. I can't take IV morphine, but dilaudid does the job - at least it has in the past. It's on the list of things to discuss with the neurologist tomorrow.

Jim

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Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid is stronger I know but why can't you take IV morphine? Just wondering if you have some sort of reaction to it? Or, if it just doesn't do the trick. Usually, when a patient asks for a medication by name, that is a red flag to the staff doctor patient is drug seeking.

Just an FYI, it was when I was in post-op recovery from surgery that I suffered so. So far I 've been treated well in the ERs.

Are you familiar with cross-tolerance? When one opiate won't let another have the effect that it should? They block each other's receptor sites. That happens a lot in medicine and unfortunately, there are a great deal of providers to do not understand that. When a patient has been taking an opiate for a long time and they have tolerance to it, the doctor will add a different opiate for the pain such as in post-op recovery, but one opiate blocks the other's receptor sites so the different opiate is essentially ineffective or not optimally effective.

Good luck at your appointment and be sure to let us know how it goes. I am worthy of being vascular surgery today for my greater than 50% stenosis brachial artery which is considered rare as less than 5% of people have it. My concern is the cause of it and I'm praying it is not peripheral artery disease which is the most common cause.

Take Good Care, Sunnyflower

REPLY
3 replies
Mentor
Jim, Volunteer Mentor | @jimhd | Oct 12, 2020
In reply to @sunnyflower "Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid..." + (show)
@sunnyflower

Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid is stronger I know but why can't you take IV morphine? Just wondering if you have some sort of reaction to it? Or, if it just doesn't do the trick. Usually, when a patient asks for a medication by name, that is a red flag to the staff doctor patient is drug seeking.

Just an FYI, it was when I was in post-op recovery from surgery that I suffered so. So far I 've been treated well in the ERs.

Are you familiar with cross-tolerance? When one opiate won't let another have the effect that it should? They block each other's receptor sites. That happens a lot in medicine and unfortunately, there are a great deal of providers to do not understand that. When a patient has been taking an opiate for a long time and they have tolerance to it, the doctor will add a different opiate for the pain such as in post-op recovery, but one opiate blocks the other's receptor sites so the different opiate is essentially ineffective or not optimally effective.

Good luck at your appointment and be sure to let us know how it goes. I am worthy of being vascular surgery today for my greater than 50% stenosis brachial artery which is considered rare as less than 5% of people have it. My concern is the cause of it and I'm praying it is not peripheral artery disease which is the most common cause.

Take Good Care, Sunnyflower

Jump to this post

@sunnyflower

I have hallucinations when I'm given Morphine IV. I read both online and the paper information that comes with a medication, especially to look for possible interactions and side effects. Sometimes I experience things listed as interactions and side effects, but that's pretty rare, I'm happy to say.

Jim

REPLY
Faithwalker007 (Renee) | @faithwalker007 | Oct 12, 2020
In reply to @sunnyflower "Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid..." + (show)
@sunnyflower

Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid is stronger I know but why can't you take IV morphine? Just wondering if you have some sort of reaction to it? Or, if it just doesn't do the trick. Usually, when a patient asks for a medication by name, that is a red flag to the staff doctor patient is drug seeking.

Just an FYI, it was when I was in post-op recovery from surgery that I suffered so. So far I 've been treated well in the ERs.

Are you familiar with cross-tolerance? When one opiate won't let another have the effect that it should? They block each other's receptor sites. That happens a lot in medicine and unfortunately, there are a great deal of providers to do not understand that. When a patient has been taking an opiate for a long time and they have tolerance to it, the doctor will add a different opiate for the pain such as in post-op recovery, but one opiate blocks the other's receptor sites so the different opiate is essentially ineffective or not optimally effective.

Good luck at your appointment and be sure to let us know how it goes. I am worthy of being vascular surgery today for my greater than 50% stenosis brachial artery which is considered rare as less than 5% of people have it. My concern is the cause of it and I'm praying it is not peripheral artery disease which is the most common cause.

Take Good Care, Sunnyflower

Jump to this post

You can tell the potency of the opioids by looking at MME chart. It’s what we (pharmacists) use to calculate equivalencies between the drugs when figuring out equal doses when advising doctors about changing from one drug to another.

REPLY
2 replies
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 12, 2020
In reply to @bustrbrwn22 "Thanks for your kind support always, Last night was the first time I couldn’t sleep off..." + (show)
@bustrbrwn22

Thanks for your kind support always, Last night was the first time I couldn’t sleep off and on all night because of the sciatica pain in my feet. No amount of anything stopped it. I cannot imagine how you all deal with that. It’s awful.

Jump to this post

Very quickly.......... @bustrbrwn22, ice and P and B Releaf balm, and more ice. I also still believe that MFR can help unrestrict those nerves. What is funny......at least to me........is that sometimes, it feels like my frozen feet begin to melt and the icy water just runs up my legs to my knees. Hmmmmmm.....wonder what else I was using? Seriously......they do melt.

May you find some joy today.
Chris

REPLY
2 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 12, 2020
In reply to @sunnyflower "Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid..." + (show)
@sunnyflower

Hi Jim, what would you say the differences are between Dilaudid AKA Hydromorphone and morphine? Dilaudid is stronger I know but why can't you take IV morphine? Just wondering if you have some sort of reaction to it? Or, if it just doesn't do the trick. Usually, when a patient asks for a medication by name, that is a red flag to the staff doctor patient is drug seeking.

Just an FYI, it was when I was in post-op recovery from surgery that I suffered so. So far I 've been treated well in the ERs.

Are you familiar with cross-tolerance? When one opiate won't let another have the effect that it should? They block each other's receptor sites. That happens a lot in medicine and unfortunately, there are a great deal of providers to do not understand that. When a patient has been taking an opiate for a long time and they have tolerance to it, the doctor will add a different opiate for the pain such as in post-op recovery, but one opiate blocks the other's receptor sites so the different opiate is essentially ineffective or not optimally effective.

Good luck at your appointment and be sure to let us know how it goes. I am worthy of being vascular surgery today for my greater than 50% stenosis brachial artery which is considered rare as less than 5% of people have it. My concern is the cause of it and I'm praying it is not peripheral artery disease which is the most common cause.

Take Good Care, Sunnyflower

Jump to this post

MME = morphine MilliEquivalents
It’s the standard units of measurement of Opioid pain relief.

Mg = milligram and mcg=microgram
It’s the standard unit of strength of medication, most medications including opioids

REPLY
Faithwalker007 (Renee) | @faithwalker007 | Oct 12, 2020
In reply to @faithwalker007 "You can tell the potency of the opioids by looking at MME chart. It’s what we..." + (show)
@faithwalker007

You can tell the potency of the opioids by looking at MME chart. It’s what we (pharmacists) use to calculate equivalencies between the drugs when figuring out equal doses when advising doctors about changing from one drug to another.

Jump to this post

Dilaudid is a 1:5 Ratio of morphine. I can’t take morphine either. My pain receptors don’t even blink at it. I may as well be tossing water on them. Never have but then I’ve had severe migraines since I was 14.
I only respond to Demerol or Dilaudid IV if I’m on the hospital for pain.

Oral Dilaudid takes 1/5 of the dose of Morphine and 1/10 of it by IV of that helps understand the potency difference.
Liquid morphine on the other hand is extremely more concentrated and requires a very small dose. It is the cause of many overdoses and fatalities in the elderly, end of life patients, and weak.

The highest in potency is the pain patches, Fentanyl, etc. These have a 1:500-750 potency ratio and can be lethal if not dosed or titrated correctly.
OR DISPOSED OF IN THE RIGHT MANNER.

REPLY
3 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 12, 2020

Tolerance is tolerance when it comes to opioids. They all work in the same receptors. The issue is Strength of effect and how much mme’s you are using in a day. The more you use up, the more pain receptors you are flooding.
Eventually they will be “numb” to the opioids and you will need what’s called a “vacation” to “reset” them.
This is done with NALOXONE. There are pain meds you can take during this period.
Methadone is one. It’s got a narrow dosage range. There’s also Talwin NX, and a combo Buprenorphine with NX. This is how you clean the receptors and can still get the relief you need.
It’s not easy, they aren’t as efficient as opioids but they do help.
Whoever said it was easy being a chronic pain patient has never been one.

REPLY
1 reply
sunnyflower | @sunnyflower | Oct 12, 2020
In reply to @artscaping "Hello, you two night owls. Hope you are comfy this late. Maybe this will help. I..." + (show)
@artscaping

Hello, you two night owls. Hope you are comfy this late. Maybe this will help. I have been on Cymbalta, (duloxetine) for a couple of years now. It is one of those newer combo medications. Helps you fight off anxiety and depression which cause pain and other unwanted symptoms like cognitive decline. Hope it works well for you.

May you be content and at peace.
Chris

Jump to this post

Hi Chrus, @artscaping and @jimhd, Jim, I tried Cymbalta but didn't like it. Very long time ago. Sry, I didn't think of it last post. Many do very well on it. All the best, Sunnyflower

REPLY
1 reply
lioness | @lioness | Oct 12, 2020
In reply to @artscaping "Very quickly.......... @bustrbrwn22, ice and P and B Releaf balm, and more ice. I also still..." + (show)
@artscaping

Very quickly.......... @bustrbrwn22, ice and P and B Releaf balm, and more ice. I also still believe that MFR can help unrestrict those nerves. What is funny......at least to me........is that sometimes, it feels like my frozen feet begin to melt and the icy water just runs up my legs to my knees. Hmmmmmm.....wonder what else I was using? Seriously......they do melt.

May you find some joy today.
Chris

Jump to this post

@artscaping Is that the name of the balm P@B this is what is goes by and where can you get it ?

REPLY
1 reply
lioness | @lioness | Oct 12, 2020
In reply to @sunnyflower "Hi Chrus, @artscaping and @jimhd, Jim, I tried Cymbalta but didn't like it. Very long time..." + (show)
@sunnyflower

Hi Chrus, @artscaping and @jimhd, Jim, I tried Cymbalta but didn't like it. Very long time ago. Sry, I didn't think of it last post. Many do very well on it. All the best, Sunnyflower

Jump to this post

@sunyflower I could.nt take Cymbalta one dose and I forgot groceries at store . lol

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