1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

migizii | @migizii | May 30, 2019
In reply to @nurseheadakes "My suggestions is NO pills - they will only cause more problems in the end. [Advil..." + (show)
@nurseheadakes

My suggestions is NO pills - they will only cause more problems in the end. [Advil for women will escalate osteoporosis; and elevate hearing loss] Instead ask for a referral to see a physical therapist/occupational therapist for exercises that can be done on land/water (pool) Don't forget to have them show you the elastic bands. These you take home and use daily. They need to be done on a regular basis because they are you pain pills. They help strengthen you muscles and keep you strong and agile.
Chiropractors are good for only a while and then you need to stop because you bones become brittle and break (osteoporosis). Then the threat of strokes plays in and this no longer is a feasible choice. I had too many and nearly died from an adjustment....my neurologist put an end to them...permanently. I use the bands instead. And my severe osteoporosis from using NSAIDS for too long brought me back to the bands also. I am healing my brittle bones with injections Prolia at the doctors office and hope to reverse the back things I did with all those pills. The one thing I can't reverse is my tinnitus and hearing loss.

Jump to this post

@migizii my name is Sue and have lived with a variety of chronic pain conditions for most of my life. Unfortunately, as I get older (64j, the conditions have increased and complications occur from time to time. I find people’s input interesting and helpful to me. I hope all of you can find ways to live life on the “good” days with joy and remember them when challenged by the other ones.

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3 replies
lioness | @lioness | May 30, 2019
In reply to @migizii "@migizii my name is Sue and have lived with a variety of chronic pain conditions for..." + (show)
@migizii

@migizii my name is Sue and have lived with a variety of chronic pain conditions for most of my life. Unfortunately, as I get older (64j, the conditions have increased and complications occur from time to time. I find people’s input interesting and helpful to me. I hope all of you can find ways to live life on the “good” days with joy and remember them when challenged by the other ones.

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@migizil welcome to connect it is nice to hear that all the input has helped you or given you food for thought.Is there anything in particular you would like us to know that someone could address? Glad your here hope you will post again

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1 reply
migizii | @migizii | May 30, 2019
In reply to @lioness "@migizil welcome to connect it is nice to hear that all the input has helped you..." + (show)
@lioness

@migizil welcome to connect it is nice to hear that all the input has helped you or given you food for thought.Is there anything in particular you would like us to know that someone could address? Glad your here hope you will post again

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Right now I’m trying to keep my spirits up as I cope with an ongoing fracture in my foot that’s been going on since January. Crutches for 8 weeks now and starting on a bone stimulator as it’s been determined that it’s a non-union. In spite of my health, I strive to remain active, and for a long time now I’ve had to REST! One day at a time and now to have to overtake the summer....ugh!

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peach414144 | @peach414144 | May 30, 2019
In reply to @lioness "@monakay Hi Mona welcome to our caring community we all have different problems but try to..." + (show)
@lioness

@monakay Hi Mona welcome to our caring community we all have different problems but try to help with our experience. I have fibromyalgia since the 90,s fractured back in 05 which gives me a lot of pain which I'm in today. I am a retired nurse but believe in holistic meds herbal,homeopathic and there is hot showers for pain,ice bag for inflammation which we all have Ginger-tumeric tea ,anti inflammatory you by it at Trader Joes I use a Tens unit to relax muscles P.T. when needed ,chair exercises here at my sr. Building. These are a few tools I use for myself Others hopefully will chime in with what helps them Glad you found us ,post again.

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Dear Lioness, Once more, I adore you, your suffering, and how you adjust to it is admired I am sure by many of us. Some of your ways of trying to handle the everlasting pain can help us to try these different ways of yours. .You touch me and I am sure many others of us. Thank You Peach

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1 reply
lioness | @lioness | May 30, 2019
In reply to @peach414144 "Dear Lioness, Once more, I adore you, your suffering, and how you adjust to it is..." + (show)
@peach414144

Dear Lioness, Once more, I adore you, your suffering, and how you adjust to it is admired I am sure by many of us. Some of your ways of trying to handle the everlasting pain can help us to try these different ways of yours. .You touch me and I am sure many others of us. Thank You Peach

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@peach414144 Thank you so much peach just saying what helps me so you maybe helped by some Your a dear how are you doing ?

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grandmaR | @grandmar | May 31, 2019
In reply to @monakay "My name in Mona. I have lived with chronic pain for many years. I feel like..." + (show)
@monakay

My name in Mona. I have lived with chronic pain for many years. I feel like nobody believes me, understands, or cares. I’m only 56 years old and I hate being told it’s all in my head or I’m just looking for more medications. I worked in different areas of the health care field for over 30 years and I promise I could do more with my money than buy meds or suffer through embarrassing appointments. Blinking my eyes or snapping fingers hasn't worked. I feel hopeless.

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@monakay
Hi Mona,
Welcome to our group! We are here to support you in any way we can. Each of us has a story, but many of the experiences are the same. We all have or have had chronic pain that has led us on a medical journey for help. For some of us, we are still searching for the doc who can give us an answer and help us. For others, we have found the doc who is working with us.

I know how difficult it can be to find someone who believes you. For me, my journey was over a decade. Today, with the help of a fantastic surgeon, I am pain free for the first time in over 10 years!! I was to many docs who could not understand WHY I felt so much pain considering the tests did not show too much.

I went through years of PT, chiropractors, acupuncture, cupping, massage, pain docs, you name it! Be patient, I know it is hard, and do your research. As a person in the medical field, I am sure you know there are good, forward thinking docs and those stuck in the stone age. For me, it took lots of research to find a great pain doc and then a great neurosurgeon when the pain doc could no longer help.

Until you find such docs, try home remedies like turmeric, TENS machines, warm Epsom salt baths, walking (even though it might be painful), weight loss, yoga (you can find tons of soft yoga on YouTube), meditation, etc.

Good luck to you!
Ronnie (GRANDMAr)

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grandmaR | @grandmar | May 31, 2019
In reply to @migizii "@migizii my name is Sue and have lived with a variety of chronic pain conditions for..." + (show)
@migizii

@migizii my name is Sue and have lived with a variety of chronic pain conditions for most of my life. Unfortunately, as I get older (64j, the conditions have increased and complications occur from time to time. I find people’s input interesting and helpful to me. I hope all of you can find ways to live life on the “good” days with joy and remember them when challenged by the other ones.

Jump to this post

@migizii
Hi Sue!
Welcome to our group. We are here to support you any way we can.
I am also 64 and have been living with chronic pain for over a decade.
Thankfully, over the last 18 mos. I have found a GREAT neurosurgeon to help me in a way no one else could.
I am currently pain free!
For me, there were NO 'good' days and it not only impacted my physical health, but it also impacted my mental health.
It is difficult to live with pain 24/7 for years and years.
It came to a point where I had to retire from my job 2 years early (from the minimum retirement age) and go on disability.
Tell us a little more about what you are experiencing, what you are doing to deal with the pain and what you hope to accomplish.

Have a pain free day!
Ronnie (GRANDMAr)

REPLY
1 reply
bevo | @bevo | May 31, 2019
In reply to @migizii "@migizii my name is Sue and have lived with a variety of chronic pain conditions for..." + (show)
@migizii

@migizii my name is Sue and have lived with a variety of chronic pain conditions for most of my life. Unfortunately, as I get older (64j, the conditions have increased and complications occur from time to time. I find people’s input interesting and helpful to me. I hope all of you can find ways to live life on the “good” days with joy and remember them when challenged by the other ones.

Jump to this post

Thanks for reminder about Advil and progression PT/Chiro/osteoporosis etc. I will keep it in mind.

REPLY
bevo | @bevo | May 31, 2019
In reply to @nurseheadakes "My suggestions is NO pills - they will only cause more problems in the end. [Advil..." + (show)
@nurseheadakes

My suggestions is NO pills - they will only cause more problems in the end. [Advil for women will escalate osteoporosis; and elevate hearing loss] Instead ask for a referral to see a physical therapist/occupational therapist for exercises that can be done on land/water (pool) Don't forget to have them show you the elastic bands. These you take home and use daily. They need to be done on a regular basis because they are you pain pills. They help strengthen you muscles and keep you strong and agile.
Chiropractors are good for only a while and then you need to stop because you bones become brittle and break (osteoporosis). Then the threat of strokes plays in and this no longer is a feasible choice. I had too many and nearly died from an adjustment....my neurologist put an end to them...permanently. I use the bands instead. And my severe osteoporosis from using NSAIDS for too long brought me back to the bands also. I am healing my brittle bones with injections Prolia at the doctors office and hope to reverse the back things I did with all those pills. The one thing I can't reverse is my tinnitus and hearing loss.

Jump to this post

What do you say is the reason for tinnitus, which has just begun for me seriously, and I'm questioning hearing loss too.

REPLY
1 reply
bevo | @bevo | May 31, 2019
In reply to @grandmar "@bevo Hi! Welcome to our group, you have come to the right place. We are here..." + (show)
@grandmar

@bevo
Hi!
Welcome to our group, you have come to the right place.
We are here to help and support you any way we can.
I am sorry you are have issues.

Times have changed regarding the use of opioids and the new legal parameters the government has set.
Therefore, I think that doctors need to be more 'creative' with treatments since they can no longer just write the script.
You might want to think about trying a pain doc again, since opioids are off the table.
You might also want to try to find a good massage therapist who is trained to work on patients with 'real' back problems.

Good luck!
Ronnie (GRANDMAr)

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Thanks. Good reminders about all those things, and I will look into them.

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