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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Stephen | @wsh66 | Jan 10, 2019
In reply to @wsh66 "If you need long term pain care, until to die, get a pain pump. Nobody's nervous..." + (show)
@wsh66

If you need long term pain care, until to die, get a pain pump. Nobody's nervous about the narcotics you get that way. You can't miss use them, sell them or overdose. Check it out.

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For more info, search posts by me, wsh66. I go into great detail about the pump.

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lioness | @lioness | Jan 10, 2019
In reply to @vwindsor62 "I am new to this, but want to know if anyone knows of any place in..." + (show)
@vwindsor62

I am new to this, but want to know if anyone knows of any place in Southern California who will treat pain caused by nerve clumping or I guess arachnoiditis? Every pain management I call want to reduce my meds without even asking what my chronic pain has been diagnosed as. I am reading that all these spinal nerve blocks have been linked to nerve clumping, which is what I have. I never got any relief from these injections but was told I would be denied pain medications if I didn't agree to these injections. Now I'm so screwed because even the same place who insisted on the injections will not even review my pain unless I agree to stop taking oxymorphone. I feel as if I'm being stigmatized for pain which injections, and or multiple spinal surgeries have caused me.
Thanks vwindsor62

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@vwindsor62 I am in the same area of pain and burny nerves in n thighs The injections didn't help that much @hopeful33250 sent me information about Tai Chi and it has helped tremendously Go to You tube and Don Fiore is instructor Im on day 4 doing ng 3x a day and my lower back and legs fell great. My rheumatologist gave me Tramadol and Meloxicam for pain hope this helps

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1 reply
karen00 | @karen00 | Jan 10, 2019
In reply to @lioness "@vwindsor62 I am in the same area of pain and burny nerves in n thighs The..." + (show)
@lioness

@vwindsor62 I am in the same area of pain and burny nerves in n thighs The injections didn't help that much @hopeful33250 sent me information about Tai Chi and it has helped tremendously Go to You tube and Don Fiore is instructor Im on day 4 doing ng 3x a day and my lower back and legs fell great. My rheumatologist gave me Tramadol and Meloxicam for pain hope this helps

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@lioness I am interested in Tai Chi. How has it helped you? Do you have to be in good shape to do it? Your comments give me hope! ....Karen

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1 reply
lioness | @lioness | Jan 10, 2019
In reply to @karen00 "@lioness I am interested in Tai Chi. How has it helped you? Do you have to..." + (show)
@karen00

@lioness I am interested in Tai Chi. How has it helped you? Do you have to be in good shape to do it? Your comments give me hope! ....Karen

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@karenOO No you don't need to be in good shape there,s no exercise to it @hopeful33250 sent it to me after 4days I really feel good relaxed which helps my mood,and did help my back and legs It's on You Tube Tai Chi with Don Fiore The moves are very slow mainly moving your arms in specific ways I no longer have the burny pain in my legs Try it ,it,ll make you feel different .

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jjwest | @jjwest | Jan 11, 2019

tHANK YOU SO VERY MUCH! I had forgotten how much it helped when I did it. You brought it back to my memory....PEACE & LOVE

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katie215 | @katie215 | Jan 13, 2019
In reply to @davidstory "I am the Associate Pastor at Second Baptist, Pasadena, TX. I am also a student at..." + (show)
@davidstory

I am the Associate Pastor at Second Baptist, Pasadena, TX. I am also a student at the College of Biblical Studies in Houston, TX. I am 58 years old, a recovering alcoholic (25 years!), and I love to write!

I am married to my wife Lynette (29 years) and we have a daughter who lives and teaches in the Dallas area (graduated from Baylor!).

My struggle has been going on for ten plus years. The most recent diagnosis is eight herniated discs, two pinched nerves, and severe arthritis. The pain has been increasing almost daily. But it's really my legs that are giving me the biggest problem. Being a Pastor, as well as a student, I am always on the move. Not so much of late. There's so much more that I want to share, it's hard to put into words. The pain gets so bad is simply overwhelms me. Stops me in my tracks.

My mantra: "I can do ALL THINGS through Christ who strengthens me." (Phil. 4:13)

I want (must) keep a positive attitude. An attitude of gratitude.

A lot has changed over the years, the main one being I'm not able to do what I feel God has called me to do. Which really brings in a lot of questions at times, as I let the enemy whisper in my ear. My eyes are fixed, however, on the Lord.

When things get really bad I like to listen to praise music. The Bible on Audio. Play with my doggy ... Faith!

That's pretty much it in a nut-shell. A lot more I'd like to share. Things about meds and treatments and all (I've tried just about everything, or at least is seems so). It hurts to type so I'm going to stop now.

One final word ... so thankful to find this community!

Blessings to all.

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Hello, I can't believe I'm Reading your story this night. I'm 70, severe lumbar stenosis, L4,5 nerve impingement, +++pain, numbness, tingling both calves to summarize. Mobility +++compromised.

Former chaplain, palliative care if that matters. Canadian, wintering in a Florida, checked out minimally invasive spine surgery (won't mention clinic). Lengthy assessment resulting in denial for surgery; major surgery required yada yada.

Yes I'm devastated. However I just cannot seem to figure Providence into this equation. Yes, the God who never changes, changes everything. Oh and the many times I've encouraged others to stay strong, believe...all sounding like "noise" now that's it's me, the needy one. And He is seeming so far away. These beautiful Florida sunsets on the gulf...feel empty. Pain rages.

May I just ask, have you figured this out?

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1 reply
jjwest | @jjwest | Jan 13, 2019

Katie, I am 75 and have severe spinal stenosis for many, too many years. I now have a spinal stimulator that has helped immenseily( not sure of spelling). I have had it for over two years, and I am sure that I could not function without it. I* have been told that I will know when the stimular is no longer an option. Seems spine surgery is the next step and I am praying that won't be for a long time. I also have heart problems, periphal neuropothy.
Each day, for me, starts with a new comittment, smile at the pain, keep my sense of humor and be a nice person. I take blood pressure med, fluid retention med., gabapentin 800mg +tramadol 50mg every 6 hrs for the Neuropothy. I also take herbs.
I believe I can understand unrelenting pain and I am so grateful for anything that helps reduce the pain or gives me a little relief.
As far as we tell ourselves that God will fix this or we are being punished for something, we are not listening to what Christ has said, "I am here to give you evertthing you need, now go live your life." It has been my experience that the things that happen to us is due to the world we live in. And all I can do is try to not let it take my life away. I am so very blessed to have those around me that love me, that is when I will let them in...sometimes pain robs us of who we have believed we are, so please don't give up!!! Keep faith and don't let the pain win.
I pray that you have the PEACE that passes all understanding.
PEACE & LOVE......jj (FEMALE:

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1 reply
lioness | @lioness | Jan 13, 2019
In reply to @jjwest "Katie, I am 75 and have severe spinal stenosis for many, too many years. I now..." + (show)
@jjwest

Katie, I am 75 and have severe spinal stenosis for many, too many years. I now have a spinal stimulator that has helped immenseily( not sure of spelling). I have had it for over two years, and I am sure that I could not function without it. I* have been told that I will know when the stimular is no longer an option. Seems spine surgery is the next step and I am praying that won't be for a long time. I also have heart problems, periphal neuropothy.
Each day, for me, starts with a new comittment, smile at the pain, keep my sense of humor and be a nice person. I take blood pressure med, fluid retention med., gabapentin 800mg +tramadol 50mg every 6 hrs for the Neuropothy. I also take herbs.
I believe I can understand unrelenting pain and I am so grateful for anything that helps reduce the pain or gives me a little relief.
As far as we tell ourselves that God will fix this or we are being punished for something, we are not listening to what Christ has said, "I am here to give you evertthing you need, now go live your life." It has been my experience that the things that happen to us is due to the world we live in. And all I can do is try to not let it take my life away. I am so very blessed to have those around me that love me, that is when I will let them in...sometimes pain robs us of who we have believed we are, so please don't give up!!! Keep faith and don't let the pain win.
I pray that you have the PEACE that passes all understanding.
PEACE & LOVE......jj (FEMALE:

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@jjwest yea for your words The world is a cruel place not God He loves us and isn't the one to give us our ill,s its the world Blessings to yo keep the faith

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1 reply
bluebird6156 | @bluebird6156 | Jan 13, 2019
In reply to @lioness "@jjwest yea for your words The world is a cruel place not God He loves us..." + (show)
@lioness

@jjwest yea for your words The world is a cruel place not God He loves us and isn't the one to give us our ill,s its the world Blessings to yo keep the faith

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Perhaps he does not give us our ills but he sure could make them disappear. Always annoyed me how he supposedly heals some and not others. How people beg and plead for an eight year old girls life with liver cancer...yet no response from God. People say God gives you free will not diseases. Then they turn around and give him credit for healing a loved one...yet a little girls lies suffering badly from cancer. He could heal her but chooses not to do that. Her family waits watching...their lives will be destroyed. They have prayed themselves sick. Please do not respond with that is God’s will that is a cop out.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 14, 2019
In reply to @vwindsor62 "I am new to this, but want to know if anyone knows of any place in..." + (show)
@vwindsor62

I am new to this, but want to know if anyone knows of any place in Southern California who will treat pain caused by nerve clumping or I guess arachnoiditis? Every pain management I call want to reduce my meds without even asking what my chronic pain has been diagnosed as. I am reading that all these spinal nerve blocks have been linked to nerve clumping, which is what I have. I never got any relief from these injections but was told I would be denied pain medications if I didn't agree to these injections. Now I'm so screwed because even the same place who insisted on the injections will not even review my pain unless I agree to stop taking oxymorphone. I feel as if I'm being stigmatized for pain which injections, and or multiple spinal surgeries have caused me.
Thanks vwindsor62

Jump to this post

Hello @vwindsor62, here are a few conversations you may find worth your time to read through and introduce yourself to the members specifically talking about arachnoiditis, https://connect.mayoclinic.org/discussion/arachnoiditis/ and https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/.

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