Chronic Pain members - Welcome, please introduce yourself

Hello @lioness

I hope your appointment with the neurosurgeon goes well for you tomorrow. Will you post an update?

@karen00
Hi Karen!
It's a pleasure to 'meet' you!
I am glad you find my posts humorous and my attitude great.
Believe me, I have my moments just as we all do.
In many ways, we who suffer from chronic and acute pain are isolated since most of us do not have anyone who can relate.
And as you know, if you can't see the pain, there is none. LOL!
I am very lucky to have a caring and wonderful hubby who takes good care of me. He doesn't let me do anything or go anywhere by myself.
I have fallen 3 times and he worries about me.
Truth is, I could use some time to myself, even if it means staying home in my chair, which I do a lot lately!!!
My pain and agility became worse soon after I moved here 4, almost 5 years ago.
I was lucky that I found a pain doc to help me and I would have freedom for 5-12 weeks at a time.
It was wonderful and I was able to go and do what I want.
But sadly, I have not made any friends.
The community is mostly young families and those who are older still work.....I don't.
For the last year, since the shots stopped working, I've stayed home a lot.
So I do understand the loneliness and isolation.

Hey, tell you what........we can't ring each other's door bell or go for lunch, but we certainly can write each other.
I don't sleep very much these days, so whenever the mood strikes, just write!!!!
I will be having my surgery on Monday and I don't know if I'll be home on Tuesday or Wednesday, but I will take my tablet.
Don't know how the connections will be, but we can try.

Have a pleasant evening and again, write whenever you want......
Ronnie (aka.....GRANDMAr)

@hopeful 33250. Yes Theresa I will let you know

@lioness
I'm really not worried about the PT.
After my surgery in February, I found a FASTASTIC therapist who will work with me after this surgery.
I do have a pool and will get into it.
Will just have to put on the heat.

Good luck with your appointment with the neurosurgeon.
Make sure you make a list of questions and things you want him to know.
We often forget everything.
This way, you can write the answers right near the questions and talking points
And remember, tell the doctor EVERYTHING!
This is your time to let it all out!!!
BTW......do you have someone going with you? Two sets of brains is better than one. LOL

YOU ARE YOUR BEST ADVOCATE!!!!!!
Let us know how things go.

Ronnie

@karen00
Glad to hear that the worst of the hurricane will miss you!
They say that the rain will be bad because of how slowly the storm is moving.
I hope you have all you need.
I live in Florida and last year when we had the hurricane we evacuated and went to Maryland to stay with my son and his family.
I left my daughter and her family.
They didn't want to leave and I didn't want to stay.
It was a very hard decision to make.
Was a bad mother if I left?
I cried and cried and my daughter said that they were adults and they made their own decision.
So, we left.

Prayers for you and your neighbors that everyone is safe.
Ronnie

Grandmar no I,ll be going by myself but will write out a list thanks for reminding me .My son lives near me but they both work so if I need surgery they will be there for me .I have my MRI disc to take for him to see how messed up my back is so I,ll let you know .Linda

@lioness
You might want to record the discussion using your phone. This way, you don't have to worry that you did not get everything you discussed. Or, you can do both. Write the answers and record the conversation just in case.
Good luck!
Ronnie

@grandmar thats a good idea I will record it thanks have a good day

@bluetwinkle28 One of my FMS members with Chronic Migraines and Chemical Sensitivity recently went on Aimovig successfully. She and her boyfriend prepared for the worst and she has been very happy with the results. I can't help you get into the Mayo Clinic with Medicare only. Sorry. It really is sad that people with disability find it more difficult to find the specialized help they need.

Hi,
Forgot my name on here.lol. Brain fog I guess. Should show up when you read this.
Been away from here awhile.
Have spinal problems since age 14. Got worse during a bad pregnancy 48 yrs ago and chronic in 1977.
But I managed to stand and teach math in college for 25 years full time but after 2 auto accidents, fibromyalgia, and a balance problem in 2005 my PT convinced me to not go back. I still did part time teaching on and off until I had a stroke in 2009 - from which I supposedly recovered but I have so many problems they don't know which one is affecting my balance. I also have diabetic neuopathy in the nerves in my feet that tell us where we are.
I have a married son who helps do things in my house but he has 4 kiddos- the oldest is autistic and his wife now works out of necessity.
I lost my hubby who did everything for me 5 years ago. He was my best friend on earth and I just cannot get over losing him. So I deal with anxiety and depression.
My knee got worse than my back and I only have a lady who cleans 3 hours a week.
I have been turned down for subsidized car service 3 times. I am too embarrassed to say how many meds I am on. They tell me to take 3 buses to see my son. I haven't been on a bus in over 5 years.
I feel like a complainer writing all this but unfortunately it is my life.
Most of my few friends have moved away or passed away and my neighbors are almost all from a different ethnic group and know none of this. They probably think that I am rich cause I take car service and cabs.
I wish I could go to lunch with some of you or visit or have you visit. You would understand that I cannot entertain you and we would have a great time and forget about reality for awhile.
I wish you all the best from the bottom of my heart.
Toni aka Marcy K