1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

marcyk | @marcyk | May 15, 2018

Hi everyone. I'm Marcy and my spinal pain became chronic in 1977. Now I have severe knee pain
One wonderful dr said that my knee was bone on bone on one side but not the other so it would be too early to operate. He also said because of my history, etc. he would never operate anyway
Going to my physiatrist soon for help. I am widowed and renovated my kitchen and dining area and a few weel job turned into months - had no kitchen for 4 months and put on weight. I was looking to lose weight
Also coldn'-t go to pt tp exercise - had to be home and do nothing. Left me in a bad way. Any ideas would be greatfully accepted.
Previously , I taught math in college- full time for 25vyears plus other part time, had a child - now 48 next Monday.

Hope some of you feel better than me !!!
Marcy

REPLY
1 reply
GailBL, Alumni Mentor | @gailb | May 15, 2018
In reply to @grandmar "Hi All! The last couple of weeks have been unbelievable! Last week I was walking with..." + (show)
@grandmar

Hi All!
The last couple of weeks have been unbelievable!
Last week I was walking with my hubby and i almost fell. He was able to catch me before I went down, but it was difficult to get my footing back. For sure, if he wasn't there, down I would have gone.
Then two days ago, we were walking out of the store. I felt myself going down and I grabbed my hubby the same time he grabbed me. Not only did I go down, but I took him down with me.
The next day he was sore, especially in his hip. Thank goodness his hip is not broken.
As for me, not only was I sore, but my headaches have returned and my neck is sore all over.
I go to the neurosurgeon in a week for my 12 week post-op check-up. Before I go, I'll have an x-ray to be sure everything is healed from my disc replacement surgery. I am worried I might have done some damage.
My PT therapist feels, by the way I walk, that the fall is due to my lower back issues. I tend to agree. She said it is time to use a walking device, a cane. So I -got one. I haven't felt any different walking, but I haven't fallen either. She also said no flip- flops type of sandals. She wants me to wear a closed shoe like I sneaker. I live in Florida and haven't worn closed anything in almost 4 years. But I have 1 pair of sneakers and just ordered 2 more.
This Tuesday I go to my pain doc for a shot in my lumbar spine. The last 2 have not helped my right side, which is where I get the most pain. I am trying one more time. If it does not work, I will be discussing alternatives with the neurosurgeon in 2 weeks.
I am certainly happy that neither of us have broken any bones, but I feel horrible about my hubby!!!!
Ronnie (GRANDMAr)

Jump to this post

@lioness and @grandmar

Yes, chiropractors do ART. You will need to search online to make sure you find one who is certified in ART. My chiropractor is Dr. Todd Andrews in Placentia, CA. If you look at his credentials you can see what to look for. He's excellent. He keeps up with the latest training also. Good luck.

Gail
Volunteer Mentor

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 15, 2018

@marcyk Hello Marcy

As I see this is just your second post on Connect, I'd like to welcome you out online community! I'm sorry to hear of your chronic pain. Pain can be very tiring can't it? You mentioned knee pain and that your doctor would not operate because of your "history, etc." If you are comfortable sharing more, could you provide some information about your history?

I hope that your physiatrist is able to offer you some help. When will you have that appointment?

It sounds like you had a wonderful career and I look forward to getting to know you better!

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 15, 2018
In reply to @sun2shine "Hi! I am Diane. I have chronic pain in many areas of my body. I was..." + (show)
@sun2shine

Hi! I am Diane. I have chronic pain in many areas of my body. I was in a severe car accident many years ago, which I was ejected out of the car. I crushed my shoulder and collar bone. Years later, I got rear-ended in another car accident. That led to a ruptured disc in neck, then a fusion in 1991. Chronic Pain started! Now degenerated disc diseases, pinched nerve, sick migraines and chronic pain always. Many procedures have been done with little relief! No income and am married with a 13 year old. Never talked to others like this. Been trying to deal with everything, but getting very stressed!

Jump to this post

Hello @sun2shine

I see that this is your first post on Mayo Connect. I'd like to welcome you to our online support group. Your comment, "Never talked to others like this" is why Connect is here. We all need a place where we can talk openly about our pain. Trying to deal with everything on your own is, just like you said, stressful!

It sounds like a lot of accidents have led to your chronic pain. For those of us who have chronic pain we understand how tiring and relentless it can be. It really is tiring, isn't it?

As this is your first post, please share with us as you are comfortable doing so, what other ways you have approached your pain problem. Outside of surgeries, what exercise, physical therapy or meds have you tried? Also what relaxation techniques have been helpful to you?

I look forward to getting to know you better as you continue to post.

Teresa

REPLY
lioness | @lioness | May 15, 2018
In reply to @sun2shine "Hi! I am Diane. I have chronic pain in many areas of my body. I was..." + (show)
@sun2shine

Hi! I am Diane. I have chronic pain in many areas of my body. I was in a severe car accident many years ago, which I was ejected out of the car. I crushed my shoulder and collar bone. Years later, I got rear-ended in another car accident. That led to a ruptured disc in neck, then a fusion in 1991. Chronic Pain started! Now degenerated disc diseases, pinched nerve, sick migraines and chronic pain always. Many procedures have been done with little relief! No income and am married with a 13 year old. Never talked to others like this. Been trying to deal with everything, but getting very stressed!

Jump to this post

@sunshine2 hi I'm lioness(Linda) I'm so sorry to hear of your struggles I researched and found a couple of things you might try. Medical in Calif if you live here ,Obama care or a website called Healthcare.gov and have you looked into the CHIPS program for children? There are alot of different areas to go to in Mayo connect one is Just talk maybe one of the moderators can help you out on this one .I wish you well and hope you get help for you and your boy/girl? Hope you contact us again we are here to help each other Praying for you.

REPLY
lioness | @lioness | May 15, 2018
In reply to @marcyk "Hi everyone. I'm Marcy and my spinal pain became chronic in 1977. Now I have severe..." + (show)
@marcyk

Hi everyone. I'm Marcy and my spinal pain became chronic in 1977. Now I have severe knee pain
One wonderful dr said that my knee was bone on bone on one side but not the other so it would be too early to operate. He also said because of my history, etc. he would never operate anyway
Going to my physiatrist soon for help. I am widowed and renovated my kitchen and dining area and a few weel job turned into months - had no kitchen for 4 months and put on weight. I was looking to lose weight
Also coldn'-t go to pt tp exercise - had to be home and do nothing. Left me in a bad way. Any ideas would be greatfully accepted.
Previously , I taught math in college- full time for 25vyears plus other part time, had a child - now 48 next Monday.

Hope some of you feel better than me !!!
Marcy

Jump to this post

@marcyk Hi I'm lioness I have bone on bone in both thumbs the only thing the Dr does is inject my thumbs when I need help. I will wear splints at night to relieve pressure you can find a good brace for your knee .Hope you feel better

REPLY
lioness | @lioness | May 15, 2018
In reply to @grandmar "Hi All! The last couple of weeks have been unbelievable! Last week I was walking with..." + (show)
@grandmar

Hi All!
The last couple of weeks have been unbelievable!
Last week I was walking with my hubby and i almost fell. He was able to catch me before I went down, but it was difficult to get my footing back. For sure, if he wasn't there, down I would have gone.
Then two days ago, we were walking out of the store. I felt myself going down and I grabbed my hubby the same time he grabbed me. Not only did I go down, but I took him down with me.
The next day he was sore, especially in his hip. Thank goodness his hip is not broken.
As for me, not only was I sore, but my headaches have returned and my neck is sore all over.
I go to the neurosurgeon in a week for my 12 week post-op check-up. Before I go, I'll have an x-ray to be sure everything is healed from my disc replacement surgery. I am worried I might have done some damage.
My PT therapist feels, by the way I walk, that the fall is due to my lower back issues. I tend to agree. She said it is time to use a walking device, a cane. So I -got one. I haven't felt any different walking, but I haven't fallen either. She also said no flip- flops type of sandals. She wants me to wear a closed shoe like I sneaker. I live in Florida and haven't worn closed anything in almost 4 years. But I have 1 pair of sneakers and just ordered 2 more.
This Tuesday I go to my pain doc for a shot in my lumbar spine. The last 2 have not helped my right side, which is where I get the most pain. I am trying one more time. If it does not work, I will be discussing alternatives with the neurosurgeon in 2 weeks.
I am certainly happy that neither of us have broken any bones, but I feel horrible about my hubby!!!!
Ronnie (GRANDMAr)

Jump to this post

@gailb Thanks I will check him out if he,s not to far away but look at website

REPLY
carolinapearl | @carolinapearl53 | May 21, 2018

Hello, my name I’d diane. I have had problems with pain for over 30 years. I finally had my leg pain narrowed down to my back. My fibro was diagnosed about 5 years ago. Now I am being treated with fentanyl and Norco. In 2014 I found out I have arachnoiiditis. A very bad thing for me, there is no cure. I realize that there are a lot of fuss about opioids, but without them I don’t believe I would be able to function. Thanks for this site that I may find another soul with my problems!

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | May 21, 2018

Hello Diane @carolinapearl53, you might also be interested in another discussion here on Connect in the Brain & Nervous System Group for more information about arachnoiditis. It might be a good place to ask any questions you might have.

I am desperate to find a dr who treats arachnoiditis
-- https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/

John

REPLY
Tony Hart | @TonyHart87 | May 21, 2018

A "young" chronic pain sufferer here. I'm 30 but have had pain (most likely) due to a ganglion cyst in my right hand/wrist for the last 2 years. I've had the cyst "popped" once using a needle through ultrasound guidance and it provided relief for a few months but has worsened with time. I have tweaked exercises to reduce pain on it and have cut way down on riding my bicycle though am frustrated that days in which I spend with my 17 month old daughter that I pick her up a lot leave me with throbbing pain for the next few days that gradually gets better. Ibuprofen and Aleve help with the pain but it's something that will only be healed if I surgically get the cyst removed. Has anyone else had surgery to help deal with a pain issue? What finally made you take the surgery plunge?

REPLY
8 replies
View MoreView Less
Please sign in or register to post a reply.