1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

lioness | @lioness | Apr 29, 2018
In reply to @wsh66 "You might try going gluten free for a month. It helps with many skin conditions. I..." + (show)
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

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Yes be very careful it does feel good but I have hard time getting up

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lioness | @lioness | Apr 29, 2018
In reply to @raina "Hello, my name is raina, a new member to the chronic pain group. I have fibromyalgia,..." + (show)
@raina

Hello, my name is raina, a new member to the chronic pain group. I have fibromyalgia, chronic pain and fatigue. I hope to get and give tips on how to live with these diseases.

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I'm lioness have fibro for 30+ years dealing with it tried alot of things found gental stretching and walking good for fibro Welcome to the group there,s lots of ideas what works for one May not for others

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Texas Freedom | @oregongirl | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

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Don't worry you won't get addicted to pain meds. You cannot get them. The gabapentin is a great pain me but I can fall asleep while talking, just from that drug

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Texas Freedom | @oregongirl | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

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My back surgeon asked me ...do you want to walk,? Back brace was ordered..then another doctor insisted the concrete will let me walk no back brace. It worked. But I will have pain forever.even in bed I hurt. All I can get is tramadol. 50 mg. Doctor told to take two. But now I hear I may have trouble coming off them.

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Texas Freedom | @oregongirl | Apr 29, 2018
In reply to @lioness "One thing that helped me was to de stress once I got rid of my car..." + (show)
@lioness

One thing that helped me was to de stress once I got rid of my car payments and all it was a hugh lift as I'm 75 on fixed income see if you can with whatever is stressing you out ,it worked for me Altho I still am in pain but a little less mentally.

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Houdy Lioness. 76 here just this month. Hey we are still here. Some young kids ran into the back of my "Rocker" car, I loved that car. They totaled it. I did not buy another. Now I use Uber. Some time more than other times, but it is less than Car Insurance, gas, and upkeep. I love Uber

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liz223 | @liz223 | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

What strength gabapentin do you take? I take three capsules every morning for my neuropathy, but I cannot even tell I'm taking them as far as side effects are concerned.

REPLY
liz223 | @liz223 | Apr 29, 2018
In reply to @wsh66 "You might try going gluten free for a month. It helps with many skin conditions. I..." + (show)
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

Jump to this post

Lying on the floor and doing stretching exercises that were given to me during the time I was in physical therapy helps a lot. They have helped me get through many painful hours.

REPLY
peach414144 | @peach414144 | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

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@ May I please also respond? I have 2 bulging disks and a pinched nerve in the lumbar spine and also 2 pinched nerves in my neck (cervical). I started gabapentin about 6 weeks age with 300 mgs 2 times a day at dinner time and then bedtime. Now, for the last 10 days I am taking 600 mgs 2 times a day same times. I WONDER IF THIS IS TO HIGH A DOSE. Wow? (This is doctor prescribed.Peach414144

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lioness | @lioness | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I don't know but it depends on how it makes you feel I would say

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grandmaR | @grandmar | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

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Hi
I take 300 mg. of Gabapentin- 1 in the am and 2 in the pm.
ronnie

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