Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@mattie1247

Hey Kelsey , I'm looking for anyone that suffers with GN pain . Thank you for welcoming me to this group .

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Hello @mattie1247, and welcome to Connect. Would you mind sharing a bit more about yourself if you are comfortable? I am trying to learn as many medical acronyms as possible, but would you mind clarifying what GN pain is and tellings us a bit more about it?

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@mattie1247

Hey Kelsey , I'm looking for anyone that suffers with GN pain . Thank you for welcoming me to this group .

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I am not sure what you are referring to but one abbreviation GN stands for is a post-infection of the kidneys-glomerulonephritis, from a post-strep infection. Hope it helps when you ask you in your chat group.

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@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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Hi Frank my name is Joan. I too have dry eye syndrome. It can be very painful and bothersome. Every four hrs eye moisture drops and I refuse to get eye plugs. Medications also can dry the eyes out. My doctor has me do an eye "wash". A warm cloth, place at the eyelid for 30 seconds, and it allows the moisture from between the eyelashes also to moisten the eyes.That surprised me and it helps. I do it 2x/day. He said to keep using the drops. I had uveitis years ago in 1993 and was told it was from arthritis (which I hardly had and was young). Hope you find answers. They do have longer acting eye drops to keep the eyes moist.

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I'm sorry I should have explain more . GN is Glossopharyngeal neuralgia , it's a damaged nerve that stim out from the base of your skull and causes horrible pain in the head , ear , jaw and neck . It first started on my left side of my face but now has gone to my right side . Thank you for your response

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi @barbvh!!
You just gave me chills and flashbacks from my own experience with costochondral contrite us and intercostal pain!!! Took years for me to finally be pain free. I would like to give you some hope!!!

As in a car accident in 1999 I broke my sternum through my sternomanubrial joint they removed half my sternum and my third fourth and fifth ribs are floating and I have irreversible damage to the nerves along with many other injuries. I saw 27 surgeons who all told me "sternal fracture is always heal I needed to give them time and be patient!!!"

I am not a patient person so I went to Mayo Clinic in Rochester Minnesota on standby and waited until I could get seen. This was the best decision I have ever made!!!

Here is a link on treatments.
http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/treatment/con-20024454
Can you share some of the treatments you have had in the past?? Physical therapy? Aqua therapy? Biofeedback?

Medications I 100% wholeheartedly encourage every person to have genetic testing done before prescribing or taking any new pain medications. Every person's DNA make up is different and not all meds are made for every patient this is why some people have better response to meds versus others. By having PGX (pharmacogenetic) testing done ahead of time doctors are able to prescribe the right pain medication, at the right dose, at the right time a day, to treat your symptoms without all the nasty side effects and wasted money.

http://mayoresearch.mayo.edu/center-for-individualized-medicine/pharmacogenomics.asp

Looking forward to learning more about you!!
Dawn

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@barbvh Hi Barb. I hope it give you some relief also, no one should have to live with constant pain like that.
I presume hemp oil has the same effect as smoking marijuana? I never knew it came in oil form. My PCP is so straight that if I ever asked him for marijuana he would probably keel over, even though it is legal here.
Good luck with this and let us know if it has helped.
JK

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@sharonmay7

Hi every one, i havnt been on line for 4_5 months. But i am the migrane person 25 days a month for the last 3 years.
Well thank god i finnly got some relief!!!
BOTOX. Yep i tried every pill every test and i mean everything!!!! It was slow to work. Started first botox in October of 2016. Still got the migranes but not as violent as before. Then the second dose on dec 17th. The headacks were not lasting as long and not as violent. Then on march 20th. My third go around!! I hav only had one a month in the last two months the 13th and 14th of april only lasted 2 days. And the 5th and 6th of this month only lasted 2 days. Also when i take something for the migrane it really helps. Before it didnt mater what i took. Nothing much helped. So if you havnt tried botox then check it out it is pretty expensive if your ins. Dosnt cover it. Good luck
Sharon

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@sharonmay7, I cannot imagine having migraines that many days in a month. I can really empathize with you. I used to have at least one 3 or 4 day migraine a month, often two. Back then Imitrix was just coming on the market but I was afraid of it because they said if you had heart problems you shouldn't take. I do not have heart problems but everyone in my family has so that scared me.
My daughter unfortunately inherited my migraines so I will pass this on to her. Mine stopped with menopause. I think I was one of very few women anxious to go through menopause, so of course mine was late!
JK

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@sharonmay7

Hi every one, i havnt been on line for 4_5 months. But i am the migrane person 25 days a month for the last 3 years.
Well thank god i finnly got some relief!!!
BOTOX. Yep i tried every pill every test and i mean everything!!!! It was slow to work. Started first botox in October of 2016. Still got the migranes but not as violent as before. Then the second dose on dec 17th. The headacks were not lasting as long and not as violent. Then on march 20th. My third go around!! I hav only had one a month in the last two months the 13th and 14th of april only lasted 2 days. And the 5th and 6th of this month only lasted 2 days. Also when i take something for the migrane it really helps. Before it didnt mater what i took. Nothing much helped. So if you havnt tried botox then check it out it is pretty expensive if your ins. Dosnt cover it. Good luck
Sharon

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@sharonmay7 I was just forwarding your message to my daughter and wondered also, where do they inject the botox when it is for migraine?
Thanks.
JK

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Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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@rolandhp

Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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Hello @rolandhp Welcome to Connect. Thank you for giving us some information about yourself. With so many acronyms, I am always learning new ones. I'd like to introduce you to other members of Mayo Connect who can share their experiences with you. Could you share with us what PMR stands for?

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