Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@jesfactsmon

Lori, yes, severe pain, I understand. I have seen it up close firsthand. I wish I could take some of it off my wife's hands once in a while to give her a break. I ordered some kratom from ETHA on 3/21 and am hoping it gets here pretty soon. Although Linda is just starting the Protocol of that facebook group which John Bishop talked about, so she'll be holding off on taking the kratom for a while anyway I guess. I hope she gets some good results from the Protocol. It would be nice to see her have a pain free week someday, instead of just a good day here, a so-so day there, and 3 awful days in a row, which is how it seems to go now. If she does not get good results then the only next step I can see is to visit your guy in Riverside, Ill. and start the scrambler therapy. Hoping to have the $$$ available for it someday. Thanks for your good wishes!

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@jesfactsmon Hi Hank, For what my two cents are worth, there is no reason why your wife cannot do the protocol, and take the Kratom when the pain is severe enough to make her cry, or scream. They really will be ok together. That protocol will not work instantly. It may take some months to feel. Who really knows? I just hate to hear how much pain she is in. Just remember to start low with the pills, perhaps 3 pills, and work up, as needed. Best with lots of water, on an empty stomach, for best results. If she does not get relief, slowly up the pills to find her sweet spot. If you do go to Norm Black, he is a real decent guy. Maybe he would charge you less. Just don't mention I told you so! Ha! Anyway, my best again. I usually have my worst pain at night. Read that neuropathy pain is usually worst at nite, something to do with circadian rhythms. Without medical marijuana or Kratom, I could not get thru the night. Be safe, my friend, Lori

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@lorirenee1

@terrydclaar Hi Terry, In theory, 9 pills are about two and a half grams of Kratom. However, next time I take it, I am going to put them down on a gram scale that I have, and actually weigh them. When I think about it, it seems like they should weigh more than this, but I do not know. However, the company advertises them at about this weight. What is odd, is when I took Kratom powder, I needed at least 4 grams worth to take away the pain. Each company has Kratom that acts a bit differently, so I have to take the least amount I can, to take away my pain. As of now, 8 or 9 pills seem to do that....Lori

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Thanks Lori. I am thinking about starting to try Kratom for my severe foot PN issues that keep me from sleeping.. How long does it take for Kratom to take effect for you? What time do you take them at night? Thanks, Terry

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@jesfactsmon

John, I like it. Thanks!

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Thanks Hank. Guess I just did not take the time to check out this option. I will reverse the order on my display. Thanks again, Terry

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@johnbishop

@terrydclaar, Thank you for the private message. It's a good suggestion/questions and I thought members should know that this function is already available to them. You suggested that Mayo reverse the order of postings to have the newest posting appear first with first initial posting appearing last. That way users do not need to constantly scroll to the end to find the current and most recent posting.

You can change the option to show the posts in newest to oldest yourself by going to the top of any discussion and selecting the drop down menu that currently says Oldest to Newest and then change it to say Newest to Oldest. I use this option all of the time and you are right, it is helpful.

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Thanks for the information John. You are very helpful on these pages. Terry

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terrydklaar, are you related to an Officer Klaar who patrols Delaware State Park at the Indian River in Delaware? Peggy

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@terrydclaar

Thanks Lori. I am thinking about starting to try Kratom for my severe foot PN issues that keep me from sleeping.. How long does it take for Kratom to take effect for you? What time do you take them at night? Thanks, Terry

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@terrydclaar I do not take Kratom at a regular time. I take it when I hurt, whenever that time happens to be. The pills take effect in about 10 minutes or so, and last about 3 hours, maybe 4. Because I take 8 to 9 pills, it makes me sleepy, but what can I do. It beats pain by a long stretch. I take it from 1 to 3 times a day, and never take it two days in a row. Hope this helps! Lori

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Hi members,
Because Kratom is an unregulated substance, I like to post this message occasionally to help you with your research and making an informed decision about its use. Some of you have seen it before, so I post it for newcomers who may not have seen the message.

Kratom is a natural product but it does have significant risks and side effects. Because of these risks the FDA banned import of Kratom in August 2016 and issued a notice of intent to classify 2 chemicals in Kratom as Schedule 1 drugs (the same category as heroin). There are no FDA-approved uses for kratom, and the agency has received concerning reports about the safety of kratom. FDA is actively evaluating all available scientific information on this issue. (2019) https://www.fda.gov/news-events/public-health-focus/fda-and-kratom

Kratom can cause dependence and withdrawal symptoms including aggression, anxiety and other negative psychiatric effects, muscle aches, spasms, tremors, insomnia, fever and upset stomach. It can also cause dangerous slowed breathing and seizures. It can worsen psychiatric disease and may increase the risk of suicide. Kratom can impair liver function. Kratom interacts with other herbal medications including Jimson Weed. It interacts with sedating medications. It has the potential for many other drug interactions because of the way it is metabolized.

For more information see:
– National Institute of Health: Drug Facts, Kratom https://www.drugabuse.gov/publications/drugfacts/kratom
– Center for Disease Control https://www.webmd.com/mental-health/addiction/news/20190411/cdc-americans-are-dying-from-kratom-overdoses#1

Here are additional articles from Mayo Clinic on Kratom:
– Kratom: Unsafe and ineffective https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
– Kratom for opioid withdrawal: Does it work? https://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/in-depth/kratom-opioid-withdrawal/art-20402170

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Thanks for you information. With all these potential side effects, why would anyone want to use kratom?

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@colleenyoung

Hi members,
Because Kratom is an unregulated substance, I like to post this message occasionally to help you with your research and making an informed decision about its use. Some of you have seen it before, so I post it for newcomers who may not have seen the message.

Kratom is a natural product but it does have significant risks and side effects. Because of these risks the FDA banned import of Kratom in August 2016 and issued a notice of intent to classify 2 chemicals in Kratom as Schedule 1 drugs (the same category as heroin). There are no FDA-approved uses for kratom, and the agency has received concerning reports about the safety of kratom. FDA is actively evaluating all available scientific information on this issue. (2019) https://www.fda.gov/news-events/public-health-focus/fda-and-kratom

Kratom can cause dependence and withdrawal symptoms including aggression, anxiety and other negative psychiatric effects, muscle aches, spasms, tremors, insomnia, fever and upset stomach. It can also cause dangerous slowed breathing and seizures. It can worsen psychiatric disease and may increase the risk of suicide. Kratom can impair liver function. Kratom interacts with other herbal medications including Jimson Weed. It interacts with sedating medications. It has the potential for many other drug interactions because of the way it is metabolized.

For more information see:
– National Institute of Health: Drug Facts, Kratom https://www.drugabuse.gov/publications/drugfacts/kratom
– Center for Disease Control https://www.webmd.com/mental-health/addiction/news/20190411/cdc-americans-are-dying-from-kratom-overdoses#1

Here are additional articles from Mayo Clinic on Kratom:
– Kratom: Unsafe and ineffective https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
– Kratom for opioid withdrawal: Does it work? https://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/in-depth/kratom-opioid-withdrawal/art-20402170

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Do you have any experience with CBD oil.? Any info appreciated

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@sjhedcon, In response to your question about any experience with CBD oil, yes I use medical cannabis for pain management. How would you see CBD oil helping you? For pain? for relief from numbness or what I call tingles and needles? The products in legal states are tested and comply with regulations for being able to do what they say they will do.

My strong recommendation would be to not start with the corner CBD trailer or anything that is on the street or online unless it is legal and has both dosage and frequency recommendations. Secondly, you will have to be willing to experiment and select products that work. If you are with a pain management provider or other dispensary pharmaceutical assistance, then they will help you get started.

There is absolutely no need to get high in order to have relief from pain and discomfort. Here is the link to a pretty heady article that has some helpful hints. Please do note the section on hemp.

https://www.practicalpainmanagement.com/patient/treatments/marijuana-cannabis/navigating-cannabis-options-chronic-pain

And here is another publication with valuable data, "Leafy". I subscribe to "Leafy" online and find that it keeps me up to date.

https://www.leafly.com/news/cbd/cbd-vs-thc

May I suggest that after reading the information in the suggested links, you let me know how you want to start. I will share what my regimen is at this point and help you develop a daily protocol. I also feel that for the best pain relief you need only two distribution types, tinctures and topicals. Gummies and other edibles are quite inconsistent in my experience.

May you be free of suffering and the causes of suffering.

Chris

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