Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@rabbit10, I've had peripheral neuropathy for at least 20 years. It's in my legs and my feet. My doctor has me on Gabapentin and Cymbalta, with the occasional ES Tylenol. My neurologist at the time said it was because I drank too much Scotch and Bourbon. I've been sober now for 8 years, but still have the neuropathy. Good luck. @cognac

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I have it 20yrs too. Mine is idiopathic, but I think its from drugs I was on that were never approved and have been taken off the market. Possible ceglor and ceftin also an antibiotic thats when mine started. Mine is also in my arms and its really hinting me hard the past 3yrs. Gabapentin made me worse!!!! BIG time!!!

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@sdemaria

I have it 20yrs too. Mine is idiopathic, but I think its from drugs I was on that were never approved and have been taken off the market. Possible ceglor and ceftin also an antibiotic thats when mine started. Mine is also in my arms and its really hinting me hard the past 3yrs. Gabapentin made me worse!!!! BIG time!!!

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Did you try Lyrica>

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@sdemaria

I have it 20yrs too. Mine is idiopathic, but I think its from drugs I was on that were never approved and have been taken off the market. Possible ceglor and ceftin also an antibiotic thats when mine started. Mine is also in my arms and its really hinting me hard the past 3yrs. Gabapentin made me worse!!!! BIG time!!!

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@bobbywood427, sure did. Had no effect whatsoever. @cognac

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@sdemaria

I have it 20yrs too. Mine is idiopathic, but I think its from drugs I was on that were never approved and have been taken off the market. Possible ceglor and ceftin also an antibiotic thats when mine started. Mine is also in my arms and its really hinting me hard the past 3yrs. Gabapentin made me worse!!!! BIG time!!!

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GM, yes I tried Lyrica. I can't take it, I had too many side effects from it.

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I have just completed a bout of shingles and have had PHN tor a few days now, starting at the scalp, migrating slowly to the temple (mostly right side) , then earlobes, starting eith upper, middle, lower. It is a shatp, electrifying pain, lasting from 5-55 seconds, repeating every few minutes. I have been prescribed Neurontin but it made me feel sick, after reading the prescription i realized it must be very powerful, it is an anti-epileptic, anti-seizure medication, i have decided to outwait the symptoms. In addition to the shingles-related pain, i have for many years had stinging/burning toes when hiking more than one hour, as well as numbness of the right toe, i was told it could be Morton’s neuroma. Does anyone know of any natural remedies? Frankly, i am afraid of Gabapentin! I worry it will play with my brain as it is an antiseizure med! Thank you! Elisabeth

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@elisabetha

I have just completed a bout of shingles and have had PHN tor a few days now, starting at the scalp, migrating slowly to the temple (mostly right side) , then earlobes, starting eith upper, middle, lower. It is a shatp, electrifying pain, lasting from 5-55 seconds, repeating every few minutes. I have been prescribed Neurontin but it made me feel sick, after reading the prescription i realized it must be very powerful, it is an anti-epileptic, anti-seizure medication, i have decided to outwait the symptoms. In addition to the shingles-related pain, i have for many years had stinging/burning toes when hiking more than one hour, as well as numbness of the right toe, i was told it could be Morton’s neuroma. Does anyone know of any natural remedies? Frankly, i am afraid of Gabapentin! I worry it will play with my brain as it is an antiseizure med! Thank you! Elisabeth

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Hi @elisabetha — Mayo Clinic has some home treatments listed on their website here:

https://www.mayoclinic.org/diseases-conditions/mortons-neuroma/diagnosis-treatment/drc-20351939
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@elisabetha

I have just completed a bout of shingles and have had PHN tor a few days now, starting at the scalp, migrating slowly to the temple (mostly right side) , then earlobes, starting eith upper, middle, lower. It is a shatp, electrifying pain, lasting from 5-55 seconds, repeating every few minutes. I have been prescribed Neurontin but it made me feel sick, after reading the prescription i realized it must be very powerful, it is an anti-epileptic, anti-seizure medication, i have decided to outwait the symptoms. In addition to the shingles-related pain, i have for many years had stinging/burning toes when hiking more than one hour, as well as numbness of the right toe, i was told it could be Morton’s neuroma. Does anyone know of any natural remedies? Frankly, i am afraid of Gabapentin! I worry it will play with my brain as it is an antiseizure med! Thank you! Elisabeth

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I am on gabapentin and that I can tell do not have any serious side effects but everyone reacts differently to a drug. That being said I still get bouts of the tremors especially in my left hand (I am right handed ) that is annoying but the sudden jerks are more worrisome. Makes anything taking finer motor skills impossible, like texting etc.

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Elisabetha, have you actually been seen and diagnosed with Morton’s Nueroma? I was also told my foot symptoms, (burning, pain, numbness) could be Morton’s Nueroma. After consulting with surgeons at Mayo they said no. They said I had metatarsalgia. They advised me on shoes and metatarsal pads for all my shoes and sandals. As long as I am wearing these I have no problems with my feet. I absolutely can’t go barefoot at all without problems popping up.

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@bonnieh218

Elisabetha, have you actually been seen and diagnosed with Morton’s Nueroma? I was also told my foot symptoms, (burning, pain, numbness) could be Morton’s Nueroma. After consulting with surgeons at Mayo they said no. They said I had metatarsalgia. They advised me on shoes and metatarsal pads for all my shoes and sandals. As long as I am wearing these I have no problems with my feet. I absolutely can’t go barefoot at all without problems popping up.

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Wow. Sounds like you may have found what some of us have been searching for for years. At the risk of bring too intrusive would you mind sharing with me as much detail as you can about the shoes and metatarsal pads? Just maybe, I can use this data to rteplicate your experience.
Arny

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