Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
I almost always do the driving, and I use cruise as much as possible, so I can move my feet around. The pain became intense in 2015. In October of that year, we took a road trip from Oregon to New Hampshire, to visit our daughter, and visited my sisters and our son along the way. I had a fleece blanket rolled in front of my seat, to rest my feet on it. That was a most painful 5 week trip, but we enjoyed seeing our family, and being tourists in as many National Parks as we could. We just couldn't do a lot of walking.
I can't put my feet flat on the floor, either. I'm always changing position, feet on their sides, on the heels with toes pointed up, or feet on a chair.
Another thing that hurts is crossing my legs or ankles. Within a few seconds, the burning pain and electricity kick in. The doctors know not to touch my feet. Being in the hospital is a challenge, too. Every nurse wants to cover my feet. I discovered that I can't tolerate those wraps they put on your legs, and pump up every little bit. The first pump was the last. That really hurt!
I've always raised my knees to read in bed, but that ended because it means putting my feet flat on the bed.
Neuropathy certainly requires a lot of adapting, doesn't it.
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @geek_girl do you buy her products from charlottes web, and are they any good. What kind of meds were you on before if you do not mind me asking. And is charlottes Webb the only thing you take now? I have severe neuropathy and foot drop. I am in constant pain all the time. I was on opioids for years and that did help, but they took me off of them and now I am on something called suboxone. It keeps the pain around a 6 to 7. Not good. It would be wonderful if her products worked. Please let me know. Thanks.
Does anyone else have random itchiness due to the peripheral neuropathy!?? If not, I will investigate if it's caused by the rare FGFR3 ANTIBODY that I have.
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
RE: Your question about Charlotte's Web on the internet: I have been getting similar medications from another internet source and it has been a miracle. I have been on CBD capsules and edibles for two months now and the results have been amazing. Instead of living in level 5 - 6 pain around the clock (the dull ache inside the bones as well as the occasional sharp stabbing pains in the muscles and muscle cramps and spasms), I now down to a fairly stable level 2. The pain is so much milder now that I can push it out of my mind and keep going with the good things in life. My good results come from using a high CBD level medication with little or no hallucinogenic side effects. It makes me so sad to see one posting after another talking about the problems with taking the prescription pain killers. I, too, was hesitant to try something other than a doctor's prescription to a big pharma produced pill - and at the age of 79 it was quite a daring adventure for me. But I was in such agony most of the time, it was find a solution or just lose the will to keep trying to stay alive. It was my two sons (both middle-aged men, highly successful, and well-regarded in the communities where they live) who convinced me to try based on their own positive experiences coping for years with school sports injuries using holistic medications.
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
It would be nice if we could have something other than narcotics for our pain. But, for some of us, it's the only thing that helps. So, I guess it's a mixed blessing. Bad because of the abuse of them, good because they work. I don't apologize for taking what I do - I take a relatively low dose of MScontin - as long as it gives a level of relief and doesn't interfere with my ability to function. My doctors exhausted all the other possible meds, and the morphine is the only thing that touched the neuropathy pain.
Yes. I have had to quit driving because I cannot really tell where my feet are, and I have PN all over my body and limbs. From Amyloidosis. I always just thought I got it from eating nettle salad. Or maybe using the wrong side of the knife to spread the peanut butter, or maybe put the peanut butter on the bread after the blackberry jam. But I know I have a good case of it.
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@georgiegirl
I almost always do the driving, and I use cruise as much as possible, so I can move my feet around. The pain became intense in 2015. In October of that year, we took a road trip from Oregon to New Hampshire, to visit our daughter, and visited my sisters and our son along the way. I had a fleece blanket rolled in front of my seat, to rest my feet on it. That was a most painful 5 week trip, but we enjoyed seeing our family, and being tourists in as many National Parks as we could. We just couldn't do a lot of walking.
I can't put my feet flat on the floor, either. I'm always changing position, feet on their sides, on the heels with toes pointed up, or feet on a chair.
Another thing that hurts is crossing my legs or ankles. Within a few seconds, the burning pain and electricity kick in. The doctors know not to touch my feet. Being in the hospital is a challenge, too. Every nurse wants to cover my feet. I discovered that I can't tolerate those wraps they put on your legs, and pump up every little bit. The first pump was the last. That really hurt!
I've always raised my knees to read in bed, but that ended because it means putting my feet flat on the bed.
Neuropathy certainly requires a lot of adapting, doesn't it.
Jim
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2 Reactions@lynsorensen
Where would I get CBD oil capsules?
Jim
HI @lynsorensen, where do u live?
You can order them online. For example Charlotte's Web makes them and can shop to all 50 states. Google "Charlotte's Web".
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1 ReactionHi @geek_girl do you buy her products from charlottes web, and are they any good. What kind of meds were you on before if you do not mind me asking. And is charlottes Webb the only thing you take now? I have severe neuropathy and foot drop. I am in constant pain all the time. I was on opioids for years and that did help, but they took me off of them and now I am on something called suboxone. It keeps the pain around a 6 to 7. Not good. It would be wonderful if her products worked. Please let me know. Thanks.
Does anyone else have random itchiness due to the peripheral neuropathy!?? If not, I will investigate if it's caused by the rare FGFR3 ANTIBODY that I have.
-
Like -
Helpful -
Hug
2 ReactionsRE: Your question about Charlotte's Web on the internet: I have been getting similar medications from another internet source and it has been a miracle. I have been on CBD capsules and edibles for two months now and the results have been amazing. Instead of living in level 5 - 6 pain around the clock (the dull ache inside the bones as well as the occasional sharp stabbing pains in the muscles and muscle cramps and spasms), I now down to a fairly stable level 2. The pain is so much milder now that I can push it out of my mind and keep going with the good things in life. My good results come from using a high CBD level medication with little or no hallucinogenic side effects. It makes me so sad to see one posting after another talking about the problems with taking the prescription pain killers. I, too, was hesitant to try something other than a doctor's prescription to a big pharma produced pill - and at the age of 79 it was quite a daring adventure for me. But I was in such agony most of the time, it was find a solution or just lose the will to keep trying to stay alive. It was my two sons (both middle-aged men, highly successful, and well-regarded in the communities where they live) who convinced me to try based on their own positive experiences coping for years with school sports injuries using holistic medications.
Very much so. 2 years with my BP injury and still no resolution. I'm, unfortunately, on narcotics. No medical relief..... YET.
@saragroves
It would be nice if we could have something other than narcotics for our pain. But, for some of us, it's the only thing that helps. So, I guess it's a mixed blessing. Bad because of the abuse of them, good because they work. I don't apologize for taking what I do - I take a relatively low dose of MScontin - as long as it gives a level of relief and doesn't interfere with my ability to function. My doctors exhausted all the other possible meds, and the morphine is the only thing that touched the neuropathy pain.
Jim
Yes. I have had to quit driving because I cannot really tell where my feet are, and I have PN all over my body and limbs. From Amyloidosis. I always just thought I got it from eating nettle salad. Or maybe using the wrong side of the knife to spread the peanut butter, or maybe put the peanut butter on the bread after the blackberry jam. But I know I have a good case of it.