Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don't know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Interested in more discussions like this? Go to the Women's Health Support Group.

@gardeningjunkie

I'll research the Verapamil. I don't have an irregular heart beat, but have severe spikes even on high does of other blood pressure meds. I do believe I have figured out that stress or excitement causes my spikes as high as 215/115, just last week 204/104. I was watching Stranger Things a Nexflix horror series just before bed. I didn't notice my symptoms when watching it but when I lay down to sleep I know my blood pressure is up as I can hear it in both each and on my left side the vein or artery pulses hard in my neck, enough to visually see the beat. Sadly will resign myself to less exciting television or reading which is better than having a stroke. I also get a happy stress when entertaining house-guests which we have frequently. I like everything to be perfect and I know I expect too much from myself.

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baxtersmom hi, a good sense of humor is a must in life. I love horror shows. Husband and I, 4 pets lay in bed watching Nexflix. Gets my mind off of my spine pain. Clonidine is injected into my Pain Pump. My home means a lot to me. It become hard to keep it the same as I used to. I understand what you mean. Have a good rest of the day.

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@baxtersmom

@kimspr3,
Are you by yourself? If you feel that you are having serious enough side effects to be dangerous, please get to an ER or call 911. You probably know yourself best but if you feel it is necessary, I would definitely not hesitate. We are keeping you in our thoughts.

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Thank You so much. I stopped the extra dosage. It's like a remote called a BolusI put on pump to add an extra dose. Allowed 8 times a day. My case is so complexed going to the E.R. is stressful. My husband should be home soon. Waiting for my P.M. Dr. to call. Every one is soooo nice here it's a good feeling. Hope I can do the same.

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@kimspr3

baxtersmom hi, a good sense of humor is a must in life. I love horror shows. Husband and I, 4 pets lay in bed watching Nexflix. Gets my mind off of my spine pain. Clonidine is injected into my Pain Pump. My home means a lot to me. It become hard to keep it the same as I used to. I understand what you mean. Have a good rest of the day.

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As Gail mentioned it sounds like you shouldn't be alone right now. You may not be thinking clearly because of your pain and meds and allergic reaction!!!!! The swelling of tongue and breathing issues worries me. I have a grandson with a p-nut allergy and his symptoms sound similar to what you are experiencing. Going to the ER is stressful and often the wait time is hours (I know I just was dealing with BP spite last Thursday and went to the ER at midnight). Often we have to tell the ER doc, who is not a specialist in our health issues what to do! Point is something is very wrong with way you are feeling and your tongue swelling and breathing issues is nothing to wait around all alone! Could you just call 911 and tell them of your concerns and have them check back in with you every 5 minutes until your husband is home if you don't want to call an ambulance. Have you ever been prescribed an epipen?

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I agree! You are having an allergic reaction that is very serious. If the swelling goes from the tongue to the throat you won’t be able to breathe! Call 911!

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@kimspr3

Thank You so much. I stopped the extra dosage. It's like a remote called a BolusI put on pump to add an extra dose. Allowed 8 times a day. My case is so complexed going to the E.R. is stressful. My husband should be home soon. Waiting for my P.M. Dr. to call. Every one is soooo nice here it's a good feeling. Hope I can do the same.

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He is going to lower the does dose back to where is was. BUT his is practice is multiplying seeing him from other states so, not sure when he can see me!!! When you start to loose that something that he once had including being in a rush now. Staff over worked. He called, but I did STUPID thing, I told his nurse I have it PTSD so he keeps saying it's stress. I told my dr. I want an MRI maybe something happened to the fusion? He told me to ask my primary care, WHAT? Does he know something I don't know? He's changed. I will not have the prolapse surgery too scared. My husband is Passive Aggressive. for those who never heard of please read about it. Some cheat he does not but I wouldn't care. Has the damaged from the large increased does already begun? Patients with AA please be careful if scar tissue removal mentioned, it made me much worse. Dr. Tennant told me NOT to do it, With the pump majority of the time did not oral Hydro. Now I take the pills with the pump hardly works. told him pills don't wk. anymore may I have a different pills. Ignored. It maybe he rather not see me anymore. Hey, your profession did it to me!. I thought that. I have never abused my hydromorphone there have been days I didn't use at all because of the pain pump. I took my husband off of Medical Power Attorney. I texted him how afraid I am of the AA. He only respond to, We need treats for the cats. I have ruined my life marrying him. I hate that I need him. Patient Portal, asking P.C. do I need a neurologist, does she know the side effects of 100 MCG, Clonidine, how does the 2 other medications work with them? Hydromorphone 15.0mg/ml Bupivacaine 15.0 mg/ml My hair is falling out so fast. I have no idea where to turn. I forgot, told him about tongue, ignored. Mentioning PTSD is usually used against us in some cases. Now have to stay mostly in bed. Clonidine makes it to walk properly. My husbands eyes se me but his brain doesn't compute it. He does say, I don't because I see you every day. Is anyone familiar with the drug combination I'm taking but in a pain pump, it takes a different route. Thank You all. Not 1 dr. is willing to see as soon as they ask why, "Doctor is not familiar with A.A." Tongue is same, gums also , Pharmacist suggested I take Benadryl. I will.

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@kimspr3

He is going to lower the does dose back to where is was. BUT his is practice is multiplying seeing him from other states so, not sure when he can see me!!! When you start to loose that something that he once had including being in a rush now. Staff over worked. He called, but I did STUPID thing, I told his nurse I have it PTSD so he keeps saying it's stress. I told my dr. I want an MRI maybe something happened to the fusion? He told me to ask my primary care, WHAT? Does he know something I don't know? He's changed. I will not have the prolapse surgery too scared. My husband is Passive Aggressive. for those who never heard of please read about it. Some cheat he does not but I wouldn't care. Has the damaged from the large increased does already begun? Patients with AA please be careful if scar tissue removal mentioned, it made me much worse. Dr. Tennant told me NOT to do it, With the pump majority of the time did not oral Hydro. Now I take the pills with the pump hardly works. told him pills don't wk. anymore may I have a different pills. Ignored. It maybe he rather not see me anymore. Hey, your profession did it to me!. I thought that. I have never abused my hydromorphone there have been days I didn't use at all because of the pain pump. I took my husband off of Medical Power Attorney. I texted him how afraid I am of the AA. He only respond to, We need treats for the cats. I have ruined my life marrying him. I hate that I need him. Patient Portal, asking P.C. do I need a neurologist, does she know the side effects of 100 MCG, Clonidine, how does the 2 other medications work with them? Hydromorphone 15.0mg/ml Bupivacaine 15.0 mg/ml My hair is falling out so fast. I have no idea where to turn. I forgot, told him about tongue, ignored. Mentioning PTSD is usually used against us in some cases. Now have to stay mostly in bed. Clonidine makes it to walk properly. My husbands eyes se me but his brain doesn't compute it. He does say, I don't because I see you every day. Is anyone familiar with the drug combination I'm taking but in a pain pump, it takes a different route. Thank You all. Not 1 dr. is willing to see as soon as they ask why, "Doctor is not familiar with A.A." Tongue is same, gums also , Pharmacist suggested I take Benadryl. I will.

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Glad for the update and hope you can find a doctor who can give you answers because as you know something is very wrong. I realize your primary care doctor is probably not able to help sort out your complicated issues, but he can guide you in finding specialists, especially if he is in a major group of doctors that work for the same hospital. It seems you need a team of specialists working together. in the same group, for example we have 2 major groups in my area, Mercy and Cox which also have major hospitals with ER's. These doctors can link the information on their computers if in the same group If you see a doctor outside the group it takes time to get records transferred and they don't cooperate with each other.

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@gardeningjunkie

I have been given Clonidine 0.1MG to take when my blood pressure spikes. I hate hate hate this med. My IQ drops to the moron level. No short term memory- makes it hard to cook a basic meal or make a decision. I didn't know it helped with pain, but I wasn't in pain when I needed it. Surely there must be better choices for pain meds. Now my cardiologist has prescribed nitroglycerin if I spike because I hate Clonidine so much.

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You are confirming how I feel. My dose is much higher. If I have to make a call I'm a bit apprehensive, afraid I will not make sense. My dr. started me on a lower dose and said, you didn't have these problems before????? Are you in pain now? I know my pain has been the worst ever since he increased the dose. Has your doctor mentioned that is one of these effects, brain fog, added pain?

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@tanglefoot

Hello Restless 67

Please do not underestimate the pain of prolapse SURGERY. I have spoke with hundreds of women who have had that surgery. Some were in extreme pain afterwards, some had a relapse prolapse within a short length of time ( A YEAR OR TWO) others were fine. One size does not fit all and I am not interested in going through an operation that is not necessary for me or women like me.

I do have a normal sex life and when one has a prolapse bladder , it goes back up where it belongs as soon as you lay down in bed. No problem there. When I get up, I do not have a piece of cloth on. I have a very supportive prolapse support garment called the Hideaway. If you google Hideaway prolapse garment you can read about it and what the testimonials say from other ladies like me who are not having surgery. This Hideaway is not just a pad, it is supportive material inside a sling with adjustment elastic for your comfort. It stops the prolapse from coming out all day long and you cannot even remember you have it on it is so comfy.

Now as far as bleeding and dryness goes. I have none of that because I use natural Vitimin E gel capsuls and stick a pin in them, squeeze out the gel and apply it every night to inside of the vagina area all around the prolapse etc. It is a great natural mostiurizer for menopausal women as well and it has healing properties in Vtiimin E natural gel capuls. You can also apply coconut oil if you are allergic to Vitimin E.
I know someone who has a rectal prolapse and she is wearing the Hideaway support garment as well and she is fine. She puts the Vtiimin E gel on her rectocele and like you said she gently pushes it back in, puts on her support garment and she is good to go for the day. Not everyone wants surgery or needs surgery.

Of course if you are in pain, cannot go to the bathroom, have sexual issues, then you would probably have to have some sort of surgery. In the meantime those who are managing their prolapse without surgery are doing just fine. There is no messy sex as you say, it is quite natural and fine, as again, the prolapse goes back up inside when one lays on their back. So for those out there suffering silently, don't be afraid. A prolapse is not life threatening, it is life altering and you have to learn what is best for you. Blessings to all the ladies who walk in my shoes.

TANGLEFOOT

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I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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@shirls1948

I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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Dear Shirls 1948,
Thank you for shearing your story. Can you tell us if you still have vaginal prolapse? And if it’s not a secret who was the doctor who did the successful surgery? Will be much appreciated.
Kind regards

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I am looking for any success stories from women who have had luck with any non surgical options for their prolapse issues

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