Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don't know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

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Dear ggm43, I feel for you! I had prolapse surgery (Birch procedure), pelvic floor redone, and a full hysterectomy and did fine! The pain was not bad, and the hardest part of recovery was being bored while waiting to heal! 25 years later my bladder has fallen again, but only because I lifted things way to heavy for years! The limit for lifting was supposed to be 20 pounds. I also would suggest learning some relaxing techniques to help you deal with the anxiety and you will feel so much better! I’ll be praying for you as you go through this! Hope this helps!

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dear corabells,
thank, thank you, thank you! i'm so scared as I fear the worst.it is the aftermath that really concerns me . since u did so well, I will keep that in my thoughts. ggm

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@ggm43

dear corabells,
thank, thank you, thank you! i'm so scared as I fear the worst.it is the aftermath that really concerns me . since u did so well, I will keep that in my thoughts. ggm

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Hi ggm43....I wish you the best of luck and health thru this time...I had prolapse repair surgery done 2 yrs. ago I am glad I had it I no longer feel as if my insides are going to fall out with each step I take however please ask your dr. about nerve damage or interruption with this surgery (mine was bladder and uteral lift done with stiches no mesh) and was left with pundeal nerve interruption...the hardest part was finding a dr. who understood this was a nerve issue I did go to a uro gyn for the surgery and 8 visits after the surgery he still didn't know what was wrong with me....he kept saying it was interstichal cycstis (sorry about the spelling) and it was not I went to another uro gyn out of my state and was correctly diogonest I would recommend the surgery just ask the right question good luck and I will be praying for you

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@pizon

Hi ggm43....I wish you the best of luck and health thru this time...I had prolapse repair surgery done 2 yrs. ago I am glad I had it I no longer feel as if my insides are going to fall out with each step I take however please ask your dr. about nerve damage or interruption with this surgery (mine was bladder and uteral lift done with stiches no mesh) and was left with pundeal nerve interruption...the hardest part was finding a dr. who understood this was a nerve issue I did go to a uro gyn for the surgery and 8 visits after the surgery he still didn't know what was wrong with me....he kept saying it was interstichal cycstis (sorry about the spelling) and it was not I went to another uro gyn out of my state and was correctly diogonest I would recommend the surgery just ask the right question good luck and I will be praying for you

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thank u pizon but now there is something else to be concerned about. what is pundeal nerve interruption and how do you treat it?should it deter me. thanks for your prayers. ggm

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@ggm43

thank u pizon but now there is something else to be concerned about. what is pundeal nerve interruption and how do you treat it?should it deter me. thanks for your prayers. ggm

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Good morning....I would just talk with your Dr. about the risk of nerve damage.....as with all surgeries it can be a side effect however in my case I had multiple ovary surgeries , 2 very large children and now the bladder and utrural repair...I would have the surgery again I no longer feel like my insides are going to fall out when I walk....if your prolapse is keeping you from enjoying your life then have the surgery god bless and keep me posted praying for a quick recovery

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@pizon

Good morning....I would just talk with your Dr. about the risk of nerve damage.....as with all surgeries it can be a side effect however in my case I had multiple ovary surgeries , 2 very large children and now the bladder and utrural repair...I would have the surgery again I no longer feel like my insides are going to fall out when I walk....if your prolapse is keeping you from enjoying your life then have the surgery god bless and keep me posted praying for a quick recovery

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dear @pizon
thank u again for responding. I will talk to dr. this Monday and the following week off to the race! I have been suffering with this for 5 years so I need to do something. just a very anxious,fearful person. I will keep u posted. ggm

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@pizon

Good morning....I would just talk with your Dr. about the risk of nerve damage.....as with all surgeries it can be a side effect however in my case I had multiple ovary surgeries , 2 very large children and now the bladder and utrural repair...I would have the surgery again I no longer feel like my insides are going to fall out when I walk....if your prolapse is keeping you from enjoying your life then have the surgery god bless and keep me posted praying for a quick recovery

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@pizon I too gave birth to two large children and with the first delivery, my anal sphincter got very torn. I have been told by the urogynecologist whom I now go to, that contributed to my problems. There is a non-surgical treatment that she does not do but she told me about a different doctor who does it. I have not yet looked into that, but plan to.
JK

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@contentandwell

@pizon I too gave birth to two large children and with the first delivery, my anal sphincter got very torn. I have been told by the urogynecologist whom I now go to, that contributed to my problems. There is a non-surgical treatment that she does not do but she told me about a different doctor who does it. I have not yet looked into that, but plan to.
JK

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DO YOU KNOW THE NAME OF THE PROCEDURE AND THE DR? GGM43

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@ggm43

DO YOU KNOW THE NAME OF THE PROCEDURE AND THE DR? GGM43

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@ggm43 This is what I got from the Nurse at my urogynecologist's office. I have not yet researched it myself, I'm sort of on the fence about doing anything. Right now I am working with just eliminating foods that were causing loose stools. I have apparently developed IBS with a dairy trigger and some other trigger which I have not yet figured out.

"Treatment options for fecal incontinence include many modalities including increasing stool bulk to thicken consistency of stool, avoid dietary triggers, pelvic floor Pt with biofeedback, InterStim (which is currently not an option for you because of your need for MRIs). The Eclipse can be an option. I also reached out to Dr. Rosenblatt at Mount Auburn hospital who does a sling for fecal incontinence (TOPAS). I will let you know if he is still doing them and you could see him for consultation on this option."

Here is a link to a long document about TOPAS that I just now found by googling "TOPAS procedure for fecal incontinence". Interstim also sounded interesting and was mentioned by my doctor, but I emailed the company and the closest doctor to me that does it is about a couple of hundred of miles away.
If you go down to page 9 of the document it is interesting in telling the success rate of various treatments. That is all I have read, thus far.
JK

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@ggm43

dear @pizon
thank u again for responding. I will talk to dr. this Monday and the following week off to the race! I have been suffering with this for 5 years so I need to do something. just a very anxious,fearful person. I will keep u posted. ggm

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Good luck you will be fine prayers are going your way keep me posted as to how you make out....think happy thoughts you will do great!!!!

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