Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Thanks Teresa. I will. ☺

Well yes it’s been a journey after my Brain surgery. My balance is horrid some days. My eyes get more tired if I do too much. Motion drives my head crazy. It’s been 4 years since my surgery and my nerves on the left side of my brain are still very tender . I look at it this way. It’s been an unbelievable thing that happened too me. It’s taught me a lot , and each day is a challenge. My son says after my surgery , my thinking and thought pattern is off and I know it is. Just didn’t feel anyone really noticed.

Hello: I had brain surgery in 2014 for a begine brain tumor . It was huge, 12 hour surgery and I still have 2 percent on my brain stem that causes me issues, but it’s better than the alternative. Now I have an mri once a year to make sure it’s Not growing. If it does grow and cause me issues , I will need spot radiation I’m told. Not looking forward to that . I pray each and every day it doesn’t grow. My life now after Brain surgery is difficult enough.

I agree. Mine too!

Acoustic neuroma..also known as vestibular schwannoma....my tumor was a schwannoma tumor but was located on my optic nerve...it is also very rare. It was removed in 2008 but with some damage. No peripheral vision, can't use my left eye. No radiation required. Brain tumors are very scary and it is very important to have a good support group (family and friends). I wish u the best of luck

Hi, my name is Steve. I was Diagnosed with a 4.7cm (very large) Acoustic Nueroma Vestibular Schwanoma in March 2015 in Montana. I had it surgically removed in May 2015 at the Mayo Phoenix. Due to the skill of my Nuerosurgeons, I was able to go back to work carrying the mail 12 miles a day on foot in just 74 days. I live a wonderful life. There is hope!

Hi Steve
I had a 3.2 cm tumor resected by retro craniotomy at Mayo in Phoenix Sept 2018 by Dr. Bendok and Dr Wisecoft. I am 68 years old but my recovery has been steady. I am driving, working part time and back to doing a lot around the house. My experience at Mayo Clinic has been good. Everyone there has been so kind and supportive.

That is great! I had Dr Bendock, Dr Zimmerman, and Dr Barr’s. Outstanding one and all!

The Mayo Clinic team works together so well. Great to hear your testmonials to the team. It's obvious to see how much they like working together in the Video Q&As they've done on Connect. Have you seen these?
> #MayoClinicNeuroChat on Acoustic Neuromas with Dr. Weisskopf https://connect.mayoclinic.org/webinar/mayoclinicneurochat-on-acoustic-neuromas-with-drs-bendok-weisskopf/
> #MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting https://connect.mayoclinic.org/webinar/mayoclinicneurochat-live-from-american-association-of-neurological-surgeons-annual-meeting/

See all Video Q&A videos here: https://connect.mayoclinic.org/webinars/ and search for #MayoClinicNeuroChat in the search box.

@spurcey, do you wear a step tracker? I'd be interested in how many steps you do a day as a mail carrier. That surely keeps you healthy.

I am a little concerned about water dripping occasionally only from my AN side. Had surgery in September and had MRI at Mayo 2 weeks ago. They said it looked good. Should I wait to see if it stops or contact Dr. Bendoks nurse?