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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

rose4622 | @rose4622 | Nov 16, 2018
In reply to @hopeful33250 "The "Small Step Approach" is always good, isn't it @rose4622? That way you can recognize benchmarks..." + (show)
@hopeful33250

The "Small Step Approach" is always good, isn't it @rose4622? That way you can recognize benchmarks and celebrate with each success.

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True

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rose4622 | @rose4622 | Nov 20, 2018
In reply to @rose4622 "True" + (show)
@rose4622

True

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I really haven't had a choice. Im 68 years old and tend to move slower than the younger survivors.

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rose4622 | @rose4622 | Nov 20, 2018

I was asked to return to work a few hours a week and i accepted. Hope i can do it. I start nect Monday.

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Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2018
In reply to @rose4622 "I was asked to return to work a few hours a week and i accepted. Hope..." + (show)
@rose4622

I was asked to return to work a few hours a week and i accepted. Hope i can do it. I start nect Monday.

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How nice, @rose4622. I hope that works out well for you. Take it easy and get plenty of rest during your non-working time!

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rose4622 | @rose4622 | Nov 20, 2018
In reply to @hopeful33250 "How nice, @rose4622. I hope that works out well for you. Take it easy and get..." + (show)
@hopeful33250

How nice, @rose4622. I hope that works out well for you. Take it easy and get plenty of rest during your non-working time!

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I will see only 3 clients next week on 3 different days to start. That will give me lots of recovery time. My challenge will be driving myself and and the walking in the building.

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1 reply
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Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2018
In reply to @rose4622 "I will see only 3 clients next week on 3 different days to start. That will..." + (show)
@rose4622

I will see only 3 clients next week on 3 different days to start. That will give me lots of recovery time. My challenge will be driving myself and and the walking in the building.

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Yes, I can understand those challenges, @rose4622. Will you have handicapped parking available to help with the walking to the building? If not, that might be a good thing to get in place before Monday.

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1 reply
rose4622 | @rose4622 | Nov 20, 2018
In reply to @hopeful33250 "Yes, I can understand those challenges, @rose4622. Will you have handicapped parking available to help with..." + (show)
@hopeful33250

Yes, I can understand those challenges, @rose4622. Will you have handicapped parking available to help with the walking to the building? If not, that might be a good thing to get in place before Monday.

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We do have handicapped parking. I still have some balance problems after driving or riding in a car. Wondering if I should play it safe and take my walker or try to get by with my cane. Don't want to look sick to my clients. The session needs to be about the client.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2018
In reply to @rose4622 "We do have handicapped parking. I still have some balance problems after driving or riding in..." + (show)
@rose4622

We do have handicapped parking. I still have some balance problems after driving or riding in a car. Wondering if I should play it safe and take my walker or try to get by with my cane. Don't want to look sick to my clients. The session needs to be about the client.

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If it were me, I'd use the walker, @rose4622. In my humble opinion, staying upright is more important than appearances in your situation. I'm sure your clients have seen people use walkers after surgery and if they comment about it, you can have a short statement prepared that you are being extra cautious since your surgery and then move the conversation along to a topic about them. I feel sure that the clients will be happy to have you there and recognize your kind, helpful manner.

If you care to share more, are you a counselor, @rose4622?

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1 reply
rose4622 | @rose4622 | Nov 20, 2018
In reply to @hopeful33250 "If it were me, I'd use the walker, @rose4622. In my humble opinion, staying upright is..." + (show)
@hopeful33250

If it were me, I'd use the walker, @rose4622. In my humble opinion, staying upright is more important than appearances in your situation. I'm sure your clients have seen people use walkers after surgery and if they comment about it, you can have a short statement prepared that you are being extra cautious since your surgery and then move the conversation along to a topic about them. I feel sure that the clients will be happy to have you there and recognize your kind, helpful manner.

If you care to share more, are you a counselor, @rose4622?

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Yes

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2018

I have no doubt that are very good at what you do, @rose4622. Wishing you well!

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