scheduling sacrocolpopexy and cystocele repair...more than a little scared

Posted by wandili @wandili, May 26, 2012

scheduling sacrocolpopexy and cystocele repair...more than a little scared

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Well Good Luck to you!!! I will keep you in my prayers....if you are in the state of Delaware and anyone else who may be reading this DO NOT USE Dr. Howard Goldstein with Christiana UroGYN .... he was a good sergeant however if you have a problem after your surgery he was not a very good follow up Dr. I saw him at least 8 times after my surgery and he wanted to keep putting me in the operating room for things I didn't have wrong with me (I would follow up with a specialist for what he said I had i.e. hernia and IC) when I finally went to an out of state UroGYN he told me at the first visit what was wrong with me and sent me to a pelvic pain specialist.... so in my option if I go to a dr. only one time for the same issue and he tells me with just one visit what is wrong the dr. that was treating me and saw me many times after the surgery can't tell me what is wrong he is just looking for a mortgage payment and not treating his patients as people!!!!

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@pizon

Good Morning, I am sorry to hear of your experience with the first dr....I had my repair surgery done in March and it was successful it was done without mesh and I did not have to have a hysterectomy. My uro. told me that my muscle spasms may return like a fire storm but would settle down...well they did and I am back in p/t...I am glad I had the surgery I was stage 2 and was very uncomfortable when I went into surgery I was pain free thanks to the p/t....now I have swelling du2 to the spasms it is better but I am still not myself the p/t dose help another thing that has happened since the surgery is I had what I thought was a uti and it turns out the dr. thinks I have ic (no testing has been done) acidy foods cause painful bladder issues so in a nut shell yes I am glad that my insides don't feel like they are falling out and that I am not going thru the hell of one pessery fitting after another that only left me sore and sometimes infected...I did not get the sling I hear a lot of women had problems with that so I am lucky there but I am still in pain and have a dr. that will not prescribe valium (which helped with the spasms) he did order eruogics blu for the bladder pain but it upset my stomach so I am dealing only with the p/t .... I wish I could find another dr. but the practice I go to is the only one in my state and doesn't allow you to see other dr.s... I wish you luck

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Dear Pizon, please share who was the doctor who did your pelvic repair without mesh, I am looking for a good surgeon who don’t use mesh for repair of pelvic prolapse. Thank you.

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@veronicat

Dear Pizon, please share who was the doctor who did your pelvic repair without mesh, I am looking for a good surgeon who don’t use mesh for repair of pelvic prolapse. Thank you.

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Good Morning I would highly recommend Dr. Marc Toglia he is at Riddle Memorial Hospital in Riddle Pa...he is who I now see for annual check ups...he removed 2 stiches that had eroded from the first surgery and wasn't happy the original Dr. (whom I would not recommend again if you are in the state of DE there is only one practice of uro/gyn's in the state I can't speak for the other Dr.'s in the practice but I would not recommend Dr. Howard Goldstein but the other dr.'s in the practice may be good but once you start to see one of the dr.'s within the practice you can't see another and they do not tell you that so if you start with one dr. and you don't like them you have to go out of state) choice in material used for the stiches he has removed many of that type of suture material that was used Good luck to you

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Whether you feel you would like to avoid mesh or not, please make sure to discuss with your surgeon the likelihood that your prolapse will reoccur after your surgery. In my case, I had the mesh because the 3 top urogynecologists in Austin, TX all recommended sacrocolpopexy using the Da Vinci robot and this procedure uses mesh. I was terrified of it at first and delayed my surgery for many months for this reason. I discussed with all of them why they wanted to use the mesh and they all talked with me about the condition of my ligaments (very weak) and the extent of my prolapse (stage 4). Both of these situations made it almost certain that a simple ligament repair would likely not be lasting and that in a few years there was a high probability that I would have to undergo another surgery to repair the prolapse all over again. So just please make sure that you discuss how extensive your prolapse is (what stage it is) and the condition of your ligaments (whether they can be repaired in such a way that there is a good chance they will hold). I am sure we all hope that if we have to have this, that we only have to do it once. In my experience most of the more experienced doctors do use mesh but if you are predisposed against mesh as I was initially, please just ask these 2 important questions. Once I realized that the mesh used today was not the mesh we hear about in the lawsuits and that doing the surgery without it would likely result in me having the prolapse reoccur, I opted for the mesh and the surgery I have previously described in this forum. I have not had any issues and am so glad I had the surgery. Not trying to convince anyone that mesh is the way to go, just suggesting some questions to ask your surgeon before proceeding with or without mesh.
Best to all.

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@pizon

Good Morning I would highly recommend Dr. Marc Toglia he is at Riddle Memorial Hospital in Riddle Pa...he is who I now see for annual check ups...he removed 2 stiches that had eroded from the first surgery and wasn't happy the original Dr. (whom I would not recommend again if you are in the state of DE there is only one practice of uro/gyn's in the state I can't speak for the other Dr.'s in the practice but I would not recommend Dr. Howard Goldstein but the other dr.'s in the practice may be good but once you start to see one of the dr.'s within the practice you can't see another and they do not tell you that so if you start with one dr. and you don't like them you have to go out of state) choice in material used for the stiches he has removed many of that type of suture material that was used Good luck to you

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Hi, @pizon - how are the nerve issues you've talked about previously?

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@baxtersmom

Whether you feel you would like to avoid mesh or not, please make sure to discuss with your surgeon the likelihood that your prolapse will reoccur after your surgery. In my case, I had the mesh because the 3 top urogynecologists in Austin, TX all recommended sacrocolpopexy using the Da Vinci robot and this procedure uses mesh. I was terrified of it at first and delayed my surgery for many months for this reason. I discussed with all of them why they wanted to use the mesh and they all talked with me about the condition of my ligaments (very weak) and the extent of my prolapse (stage 4). Both of these situations made it almost certain that a simple ligament repair would likely not be lasting and that in a few years there was a high probability that I would have to undergo another surgery to repair the prolapse all over again. So just please make sure that you discuss how extensive your prolapse is (what stage it is) and the condition of your ligaments (whether they can be repaired in such a way that there is a good chance they will hold). I am sure we all hope that if we have to have this, that we only have to do it once. In my experience most of the more experienced doctors do use mesh but if you are predisposed against mesh as I was initially, please just ask these 2 important questions. Once I realized that the mesh used today was not the mesh we hear about in the lawsuits and that doing the surgery without it would likely result in me having the prolapse reoccur, I opted for the mesh and the surgery I have previously described in this forum. I have not had any issues and am so glad I had the surgery. Not trying to convince anyone that mesh is the way to go, just suggesting some questions to ask your surgeon before proceeding with or without mesh.
Best to all.

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Thank you so much! Very helpful!

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@baxtersmom

Whether you feel you would like to avoid mesh or not, please make sure to discuss with your surgeon the likelihood that your prolapse will reoccur after your surgery. In my case, I had the mesh because the 3 top urogynecologists in Austin, TX all recommended sacrocolpopexy using the Da Vinci robot and this procedure uses mesh. I was terrified of it at first and delayed my surgery for many months for this reason. I discussed with all of them why they wanted to use the mesh and they all talked with me about the condition of my ligaments (very weak) and the extent of my prolapse (stage 4). Both of these situations made it almost certain that a simple ligament repair would likely not be lasting and that in a few years there was a high probability that I would have to undergo another surgery to repair the prolapse all over again. So just please make sure that you discuss how extensive your prolapse is (what stage it is) and the condition of your ligaments (whether they can be repaired in such a way that there is a good chance they will hold). I am sure we all hope that if we have to have this, that we only have to do it once. In my experience most of the more experienced doctors do use mesh but if you are predisposed against mesh as I was initially, please just ask these 2 important questions. Once I realized that the mesh used today was not the mesh we hear about in the lawsuits and that doing the surgery without it would likely result in me having the prolapse reoccur, I opted for the mesh and the surgery I have previously described in this forum. I have not had any issues and am so glad I had the surgery. Not trying to convince anyone that mesh is the way to go, just suggesting some questions to ask your surgeon before proceeding with or without mesh.
Best to all.

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Are you in Facebook? Will be nice to stay in touch to share experiences. I will probably have the surgery with Dr. Antonini.

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@veronicat
I hope that your experience is as good as mine. I assume you have seen him already.

I am happy to stay in touch with you here on Connect.

When are you planning to have the surgery?

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@baxtersmom

@veronicat
I hope that your experience is as good as mine. I assume you have seen him already.

I am happy to stay in touch with you here on Connect.

When are you planning to have the surgery?

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I will have surgery probably end of August. I need to arrange the travel. Coming for far- Europe.

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@lisalucier

Hi, @pizon - how are the nerve issues you've talked about previously?

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Hello and Thank you for asking....I'm still not able to work I am better then I was but I still have the sensation of something in side that isn't there and I still get pain on the left side I find yoga is the best help for me but I am done with any drugs (they all made me sick) i'm trying to use herbs valerian root and hops and cbd oil have seemed to give me the most relief thank you again for asking

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