Triple negative breast cancer with metastasis: Want to talk to others

Grannyk,I would be very happy to talk to you about Triple Negative BC. Best wishes Madeleine Cosette

Welcome back to Connect @cosette. You'll note that I removed your personal contact information from your message. The discussion forum on Connect is public and I want to spare you from getting unwanted spam. To contact another member privately, I recommend using the private message function. Simply click the member's @username and then the envelope icon. Happy and safe sharing 🙂

@kimlofdahl and @cosette thank you both for your messages. I'm sure @terrianne will appreciate hearing from women who have "been there". Cosette, did you ever get on a clinical trial? Are you still hooking rugs?

Thanks for your help:)<br />
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November2014 I had a lumpectomy for triple neg ,grade 3 stage 2 Breast cancer....then chemo and radiation. It has been one year April /16 since last radiation. Had Taxotere chemo. Does anyone have ongoing GI ( bowel)issues and brain fog and fatigue a year after treatment ?

Hi @fundytide, welcome to Connect.
I moved your message to this thread so that you can connect with other women who have triple negative breast cancer. @kimlofdahl @cosette @terrianne, what ongoing side effects or late-stage side effects have you experienced post treatment?

 Late side effects I have experienced include lymphedema after 16 nodes were removed (only 1was positive).  It was initially something that I didn't have, but about 3 yrs. posttreatment it gradually developed. I continue to need on and off p.t., wear a sleeve/gauntlet,and now have a pump.  All of these things help. I also had a specialist test me for anew surgical technique to repair lymph flow.  I was not a candidate for that, at least notin the least invasive manner.  I do hope someday there is a "cure" for this condition.Good luck to all the Triple Negatives out there.  Keep fighting the good fight.Cosette

Hi Cossette....U seem to be coping well with lymph edema...I had 2 sentinel nodes checked after/ at surgery ,both negative ,so no lymph edema...so far..most of the women I met at the Cancer centre in Ottawa Canada ,were in their 30's and 40's with small children,but I am 73 am
And was told it was unusual at my age to get this particular type...what affected my quality of life totally were late side effects from the drug docetaxel ( Taxotere).... Symptoms like diarrhea with no warning,keeps me close to home and socially isolated...much worse than the disease...but I'm still here..and grateful for that.

I was having horrible stiffness in my legs etc. Swelling of knees and upper legs. I started taking Glutamimmune made by Ajinomoto( 2 scoops daily) and Turmeric Curcumin 500 mg. It has given me my life back. I also use Magnesium Oil. Hope this helps you. I also check my ph and keep it at 7.0. If your acid levels are out of wack it will affect your whole body.

<br>How do we adjust our ph levels? I also heard that cancer cells don't like high ph...so??? Is this a myth????<br><br>Thanks, glad all is going well. Neeci<br>

I'd like more info about this, too. How are levels checked?<br>