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Chronic inguinal pain
I am 38 years old & have suffered an injury to my ilioinguinal/hypogastric nerves after a gynological surgery. My nerve pain is in my right groin & right pubic area, occasional travels down my inner thigh. I am on Gabitril (antineuroleptic), methadone, tramadol & Zoloft for pain control. I had a peripheral nerve stimulator implanted in my abdomen, but it needed to be removed a yr later due to a chronic infection @ my incision site. It relieved about 30% of my pain but could have helped more if it didn't get the infection. My life has completley changed. The pain has limited me on doing things I used to do.
I have an appt. next month in Rochester, Mayo w/ Dr Mathew Pingree, @ the pain clinic.
Has anyone suffered this type of pain? Has anyone had pulse RF or RF ablation done? I'm scared to have an ablation or a chemical ablation due to the risk of developing an neuritis that could make my pain worse.
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Did your dr tell u that is why your blocks didn't work was because of spinal wind up? Why wouldn't they have told u that was a possibility before they did the blocks? I have never heard of that before . If the longer u go with pain lessens the possibility of a block giving positive effects shouldn't we have them sooner rather than later. I'm leaning towards having them but now and more fearful than ever. The whole point is to get that steroid in there to try to get the nerve healed right?
Too much to think about and too many variables.
Hope you had a good day
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1 ReactionI really have to think about what to do here. I feel like if I don't try the block to at least confirm pn how can I know what road to take?
I wish you the best in your journey. This is the scariest thing I have ever bee thru. I have never heard of such a handicapping nerve problem.
I hope things get better for you and that you get answers .
Please keep in touch.
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1 ReactionTE
Even tho my test show that I have PN, Dt Antolak tells me that the reason I failed the PN inj is because PN is not my primary nerves involved, but he had no way of knowing that was going to be my situation until he performed the series of steroid inj. Because my pain cont & it not getting better he is sending me to one of his colleges to eval me & look @ my obturator nerve along w/ my PN diagnosis.
I have been told that the longer you go with chronic pain that you have a greater chance of developing CNS windup, or hyperexcitabile nerves. But if a doc can block the neurons pathways it is suppose to limit the magnitude of one's pain. In my case over these past 4 yrs no doc has been able to find my PRIMARY injured nerve:/
I have not personally talked with other pts who have had the PN inj ,only Dr Antolak. He told me the percentage of his pt & the national average PN pt who have these inj get better or worse. ( I can't remember the #'s tho, but the internet would)
Take the time to read my post from the very begging & you will be able to see what I have all tried. Which may help answer some of the questions you have asked me;)
It is very scary to have this debilitating condition, Especially being young, like myself, we have so much we want to do! It sucks!!!! You need a great support system to keep moving forward. Only us who suffer from this painful neuritis know what we go through every day. I find some mental relief just going on the internet, or a site called Pudendal Hope, or just on YOU TUBE. For some reason I have days that I feel like I'm the only one that has this crazy-ass condition, but deep down I know I don't!!! If that makes any sense!!! HAHA!!! So by listing to others who have this & to see what they have done & how they cope I get a sense of hope that some day I will get better.
Let me know if you decide to have the inj & how it helped. BUT... go to a Doc who works with pelvic nerves & who has lots of experience w/ the PN inj. You said you live in WI, look up Dr Antolak, he's probably the closest to your state.
Good Luck.
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1 ReactionI agree, injections can help you know what nerves are involved & therefor help come up with a treatment plan.
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1 ReactionDoes anyone know of someone who has been successfully treated for this disorder and who has returned to a normal state without drugs or estim? I've had my pain for 8 years and have maintained my general state (pain at 3-5) but sit on ice for relief.
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1 ReactionHow are you doin?
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1 ReactionThe pelvis is full of nerves. What nerves where injected? Have u had a MRN? Not a MRI. Google it:). I will be having a MRN in June followed by inj but will be traveling from North Dakota to Maryland just to accomplish this. I'm @ the point in my life that I will do anything besides surgery to see if it helps. It gets so expensive, even w insurance to have a chronic illness, especially when one has to travel. I thank God every day for my spouse, kids, immediate family & girlfriends for all their support. I'm not sure if I could physically or mentally function w/o their support.
Have you been tested for pudendal neuralgia? I can't sit. If I do it increase the constant pain I have to an unbearable state. Driving does hurt but for me it's cuz I'm sittin. Walking is hard too! Generally my mornings are the best & progressively worsen as the day goes on. My activity is very limited but I still have a hard time slowing my daily expectations I have for myself & rarely relax. Cuz if I do my mind focuses just on my pain & not relaxing. Keep in touch.
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1 ReactionI have chronic pain groin pain. Was considering surgery by Dr. Ducic in Washington DC for nerve removal. Like many I travelled across country to look for a pain solution. Instead I attended a 3 week pain rehabilitation program at Mayo Clinic. They helped me get off the pain meds and learn techniques to help manage the pain. I highly recommend the program. While I still have pain it no longer is the driver but the passenger. <br />
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5 ReactionsI just wanted to say thank you for your very detailed and informative comment. I write this as I've been awakened from pelvic pain. It can be such a lonely journey at times. I am so grateful to have found this website. Thanks to all of you for being brave enough to post your personal info and I hope we all find relief soon!!!
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3 ReactionsNot sure what all your pevic pain issues are. But research pelvic neuro-muscular disorders, paying particular attention to pudendal nerves.
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