Writing from far off Sri Lanka... Diagnosed with Livedoid Vasculopathy
Hello , I am writing from far off Sri Lanka.I am a Medical Doctor by profession. I ve been diagnosed with
Livedoid Vasculopathy since about 3 years ago - have had remissions on about 4 occasions.No specific therapy has answered, but in very initial stages of "eruptions ",a compressive such as firm-fitting socks seem to slow down or stop progression.However, on a few occasions,has gone the full course with neuropathic ,almost unbearable pain with ulceration. Dressed ulcers with BIATAIN COLOPLAST and TRAMADOL 50 mg for pain.I felt that mild / moderate exercise ie walking, helped accelerate healing -- of course it did recur a few months later.We ve no warm / cold seasons here; therefore not seasonal.Cant pin-point any triggering factors. Longest spell I ve had free of signs and symptoms is about 6 months. Presently , having an " attack ', and just commenced BROWN APPLE CIDER VINEGAR 20 mls twice daily -- too early to analyse any benefit. Mine is virtually a Text Book case in symptomotology and appearances. My Dermatologist diagnosed LV at very first consultation
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Thanks for your post, @ceejay.
Hi @ceejay thanks for sharing that information. I can relate to your story 100% as I too suffer from the same.
We have a couple of discussions that might interest you concerning LV:
1) https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/
2) https://connect.mayoclinic.org/discussion/livedoid-vasculopathy/
I hope this helps!
Please feel free to "FOLLOW ME" as well. I'm trying to help those with LV as much as possible.
Click on my profile name > (Under "Contact Me"), look for "Yes, I'll follow mlemieux
Sincerely,
Martin Lemieux
@Martin_Lemieux ~tweet