1. < Neuropathy

Senior Assistance PN

Posted by kristin24 @kristin24, Aug 4, 2020

Hello. This might be a long shot since people like to be online more. My mom is 80 and she suffers from non diabetic pn. She does not know anything about the internet or even computers. With Covid, she doesn't really want to go anywhere afraid of getting sick. I can't offer her anything other than an ear because I do not have this. So I didn't know if there was anyone that would want to chat with her, over the phone, and share ideas and things that might or might not have helped. If no I understand. Thank you

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Mentor
Rachel, Volunteer Mentor | @rwinney | Aug 19, 2020
In reply to @lorirenee1 "@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so..." + (show)
@lorirenee1

@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so inspirational today! How I needed to read them! I am going to try some neuro plasticity techniques, starting with typing with the opposite hand. I may do this when I am in terrible pain, and hopefully, it will utterly confuse my brain. Sometimes I try to concentrate on a body part close to my feet, and how wonderful that body part is. But that does not do much. I don 't know, because I am not consistent. Rachel, I can't tell you how happy how hard you try. I would have a terrible time not hugging you in person. With covid, we would have to bump butts or something, and I would surely knock you over with my big one. God, Rachel, I am just so proud of you. And Hank, typing with your other hand? What a hoot. Now, Barry, I am the one who asked for you to post the things that help you. Little did I know how far you are going with neuro plastic techniques, and feeling better. You are just a joy, and an inspiration!!! You have created excitement here!!! Thanks so much. I am going to go reread everything you do, and try practicing everything. Of course, I will go to my library and pick up Norman Doidge's books. Just thank you so much, Barry. You are adorable. Love to all, Lori Renee

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@lorirenee1 Lol! My, my how you make me laugh! Oh, I would totally hug you in person too. We all need a boost some days and I know you especially do. If I can ever help you or anyone, Im glad to do it. Wishing you good distraction today, and flowers for you too my friend. XOXOXO
Best wishes,
Rachel
REPLY
1 reply
Hank | @jesfactsmon | Aug 19, 2020
In reply to @rwinney "@jesfactsmon Thank you Hank! You've been an inspiration to me too. The way you care, research,..." + (show)
@rwinney

@jesfactsmon Thank you Hank! You've been an inspiration to me too. The way you care, research, help, respond. It's definitely a journey and not always easy. So true about the carnival person. That is what I call, a fighting spirit!
Best wishes to you and Linda. Here are some flowers for her (in case you never got them 😉).
Be well,
Rachel

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@rwinney I was GOING to get her those flowers, I WAS. But at the store I figured she'll just worry they are infected with Covid so I didn't. And that is the God's honest truth. I am going to show these photos to her. Boy, it's so dramatic the way these shots come in so huge on Connect! Thanks Rachel ol' pal, Hank

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1 reply
Hank | @jesfactsmon | Aug 19, 2020
In reply to @lorirenee1 "@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so..." + (show)
@lorirenee1

@user_che214927 @rwinney @jesfactsmon And of course to all my Neuropathy Friends, Man, the posts are so inspirational today! How I needed to read them! I am going to try some neuro plasticity techniques, starting with typing with the opposite hand. I may do this when I am in terrible pain, and hopefully, it will utterly confuse my brain. Sometimes I try to concentrate on a body part close to my feet, and how wonderful that body part is. But that does not do much. I don 't know, because I am not consistent. Rachel, I can't tell you how happy how hard you try. I would have a terrible time not hugging you in person. With covid, we would have to bump butts or something, and I would surely knock you over with my big one. God, Rachel, I am just so proud of you. And Hank, typing with your other hand? What a hoot. Now, Barry, I am the one who asked for you to post the things that help you. Little did I know how far you are going with neuro plastic techniques, and feeling better. You are just a joy, and an inspiration!!! You have created excitement here!!! Thanks so much. I am going to go reread everything you do, and try practicing everything. Of course, I will go to my library and pick up Norman Doidge's books. Just thank you so much, Barry. You are adorable. Love to all, Lori Renee

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Hey @lorirenee1 Lori, if anybody will go out of their way to try something new to help those rascally feet, it's you. (I am switching to my dominant hand this second as writing the other way is frustratingly slow.) You got a LOT of heart, and SPUNK, kid. And unlike Lou Grant, I LOVE spunk (Mary Tyler Moore Show reference) . And guess what? I'd hug you no problem. I personally am getting pretty sick and tired of all these ridiculous restrictions. I know, not ridiculous for everyone. Mostly just us oldies. But I would take that risk. Always lifts my day whenever you chime in here my good friend. Best to you, Hank

PS: In another post I asked whether you have ever tried cayenne pepper on your feet? I am not sure I have heard anyone here say that they have. I figured you might have though.

REPLY
1 reply
lioness | @lioness | Aug 19, 2020
In reply to @user_che214927 "G'day from sunny Australia. I have been requested by a couple of you to outline my..." + (show)
@user_che214927

G'day from sunny Australia. I have been requested by a couple of you to outline my habit change programme. The cause of my Peripheral-neuropathy is by courtesy of my Irish ancestors. Through intense research I now believe it can be reversed by the practice of Neuroplasticity. You must have this belief, then act on doing the hard work. Money can't buy the result we all desire. It is just us and our habit comfortable brain , to win or lose is our decision. We must change every possible rusted on habits. The brain has to triggered into new neurons. We can have fun as we attempt some changes.
Here is my current llist and am still increasing.
1.
I rearranged my bedroom (I live alone) Including bed being different position causing me get in and out from a different side, also change position of lamps, clothing etc.
2.
I am right handed, but now changed everything possible to left handed: Eating, teeth, cleaning, bum wiping, hair combing, writing, typing etc.
3.
Driving my car for my normal coffee break or any destination, I deliberately choose a new route.
4.
Due to isolation requirements, I can't leave my home, so I have decided to go barefoot, no socks or shoes.
5.
I have changed my eating times.To bed and getting up times.
6.
I have set my tv to sound oñly. This really jogs the brain, as you have to intensify your listening skills to understand the plot. News services are easy. I also do not use my remote to change channels.
7.
I am studying and practicing the great art of meditation, not mindfulness, but real fair dinkum meditating.

BENEFITS as yet. I fully understand that recovery will take time, but I am not getting any worse. Encouraging New signs have occured. I had a terrible itch in my back, making sleep at night a mini torture, NOW GONE TOTALLY. I still get the occasional itch, but refuse to scratch it. My brain now understands. I had a problem with the number of times, during the night, I need a pee.NOW REDUCED by 50%. I also had a problèm, during the day of urgency to pee. When I had to go, it was urgent and I mean urgent. NOW REAL URGENCY REDUCED. I am also feeling good mentally, as I fight this bloody thing.
Best wishes to all , and if you have any other habits I can change would be great.

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@user_che214927 Mind is a builder

REPLY
lorirenee1 | @lorirenee1 | Aug 20, 2020
In reply to @jesfactsmon "Hey @lorirenee1 Lori, if anybody will go out of their way to try something new to..." + (show)
@jesfactsmon

Hey @lorirenee1 Lori, if anybody will go out of their way to try something new to help those rascally feet, it's you. (I am switching to my dominant hand this second as writing the other way is frustratingly slow.) You got a LOT of heart, and SPUNK, kid. And unlike Lou Grant, I LOVE spunk (Mary Tyler Moore Show reference) . And guess what? I'd hug you no problem. I personally am getting pretty sick and tired of all these ridiculous restrictions. I know, not ridiculous for everyone. Mostly just us oldies. But I would take that risk. Always lifts my day whenever you chime in here my good friend. Best to you, Hank

PS: In another post I asked whether you have ever tried cayenne pepper on your feet? I am not sure I have heard anyone here say that they have. I figured you might have though.

Jump to this post

@jesfactsmon Awww, Hank, U DA BEST. God, I will take that hug from you. I'd risk it in a second! Problem is, I might now wanna let go. (But that's for another forum?$%#@!?) Anyway, I think I get by on spunk. My pre sickness personality was pretty much a live wire, and I hate to see it vanish. I can picture you trying to type with your other hand, and changing back to your dominant one. What a hoot! I do intend to try that when I am in the next terrible bout of pain. Right in the midst of pain, I will be typing away with my left hand, wondering about the insanity of life. I hope it blows my brain into smithereens, or causes such brain confusion, that I don't know what world I am in. That, with a toke of marijuana, and I will be set. It is at that very moment that I will slather my feet with cayenne pepper, and celibrate the insanity of life. Cayenne directly to the feet? Hmmmmmm........Hugs, Lori Renee

REPLY
lorirenee1 | @lorirenee1 | Aug 20, 2020
In reply to @rwinney "@lorirenee1 Lol! My, my how you make me laugh! Oh, I would totally hug you in..." + (show)
@rwinney

@lorirenee1 Lol! My, my how you make me laugh! Oh, I would totally hug you in person too. We all need a boost some days and I know you especially do. If I can ever help you or anyone, Im glad to do it. Wishing you good distraction today, and flowers for you too my friend. XOXOXO
Best wishes,
Rachel

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@rwinney Hi Rachel, Holy Cow! These flowers are gorgeous, and HUGE!!!! Love them! I am so glad I can make you laugh a bit. My sister, God rest her soul, used to say I was the funniest person she ever met. I loved that!!! I do feel that if I tushy bumped you, you would clearly fall on your ass. You are trim. I am kinda trim, as in, 15 pounds off the keister would be really good. My butt is pure chocolate chip. Yes, with our illness, we look for distractions all day. It can be exhausting. Life used to just be life, and I lived it. Now, I go from distraction, to distraction, to ward off pain. It's the best when the distraction is just good enough to forget.......even for a few hours. Love and hugs to you, dear Rachel, Lori Renee

REPLY
lorirenee1 | @lorirenee1 | Aug 20, 2020
In reply to @jesfactsmon "@rwinney I was GOING to get her those flowers, I WAS. But at the store I..." + (show)
@jesfactsmon

@rwinney I was GOING to get her those flowers, I WAS. But at the store I figured she'll just worry they are infected with Covid so I didn't. And that is the God's honest truth. I am going to show these photos to her. Boy, it's so dramatic the way these shots come in so huge on Connect! Thanks Rachel ol' pal, Hank

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@jesfactsmon Hi Hank, Have you thought of DRAWING some flowers, with your LEFT hand? Give them to Linda, and see if she can figure out what the heck the are. Neuro Plasticity gone array, completely.........Love, Lori Renee

REPLY
1 reply
Hank | @jesfactsmon | Aug 20, 2020
In reply to @lorirenee1 "@jesfactsmon Hi Hank, Have you thought of DRAWING some flowers, with your LEFT hand? Give them..." + (show)
@lorirenee1

@jesfactsmon Hi Hank, Have you thought of DRAWING some flowers, with your LEFT hand? Give them to Linda, and see if she can figure out what the heck the are. Neuro Plasticity gone array, completely.........Love, Lori Renee

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@lorirenee1 It sounds like maybe you've been hitting the kratom early today? Actually I write and draw with my left hand normally so she might recognize the flowers, sort of. You are a classic, Lori, the Comedienne of Connect. 😂🤣😜 Best, Hank

REPLY
1 reply
lorirenee1 | @lorirenee1 | Aug 21, 2020
In reply to @jesfactsmon "@lorirenee1 It sounds like maybe you've been hitting the kratom early today? Actually I write and..." + (show)
@jesfactsmon

@lorirenee1 It sounds like maybe you've been hitting the kratom early today? Actually I write and draw with my left hand normally so she might recognize the flowers, sort of. You are a classic, Lori, the Comedienne of Connect. 😂🤣😜 Best, Hank

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@jesfactsmon Did not know you are a Southpaw! And it's not the Kratom that throws me through a loop! It's the marijuana! Can't handle that stuff at all!!! Today, I am helping my 6 year old grandson with his first day of KGN Virtual school. Oh my God! What a hoot! Zoom education! Keeps me a bit more distracted from DA FEET! Love, Lori

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