Gabapentin side effects?

Posted by Sundance(RB) @sundance6, Apr 13, 2019

I am a regular on the Mayo Board! I don't know what I would do without it! Our doctors don't want to discuss openly the things about illnesses and side effets of drugs and other things. Anyway, my question to all of you is Gabapentin and it's side effects. I have been on it now for 6 months. My doctor raised me from 100mg. to now I am on 400mg. three times a day.
The problem is my tiredness! I happen to be in a friends office yesterday and she was taking some medicine. She said she was taking Gabapentin. I asked why and she said she had, had shingles back when and it still helped with the pain. I know the drug is percribed for many things that is why I take it for my issues.
I told her I had been taking it for about 6 months. She asked if I had been tired all the time, just out of the Blue. OF COURSE I SAID YES! She said it took her a year before she got out of the tiredness.
Let me know if any of you have experienced the same thing. Also let me know at what dosage you may be on? I know this is all confidential!
Again Thanks to The Mayo Clinic and Everyone who is kind enough to be open with their lives!
Sundance!

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@cindylb

This is my first post in Chronic Pain. I am posting for my husband who just had a terrible reaction with gabapentin last week. He was on a very small dose for two years (100mg a day). It wasn't doing anything for his pain so they had me move it up gradually over a few weeks. When we hit 900mg he became very aggressive and we pulled it back to 600mg and then he became someone he 'wasn't', very aggressive, violent, wanted to commit suicide, etc.....all the horrible things you can imagine. My husband has peripheral nerve damage pain (I guess) in his feet from an accident 50 years ago. He also has cancer and COPD. Generally he feels awful but he doesn't have nerve damage from cancer because they can't identify his cancer type (he has cancer of unknown primary). His cancer is not being treated and is not growing. It's a very difficult and frustrating situation because it's been almost impossible to treat.
I thought that his decline in health might be improved if the doctors could help him with the pain. We have the COPD in pretty good shape and we monitor the cancer activity on a regular basis, waiting for answers. Well..........gabapentin was a horror. Now they want him to use Cymbalta instead of the Celexa he's been using for anxiety and depression for many years without incident. And what about this Ketamine? Does anyone have any insight on that? I don't want to put my husband or our family through another 'gabapentin' incident and risk my husband taking his life. The doctors won't prescribe narcotics due to the COPD and keep offering these drugs that alter brain chemistry. That seems sketchy to me at best but????? If anyone can offer some support, I'd appreciate it. I am going back to the doctors today and hope to get some clarification but they aren't even taking responsibility for the gabapentin being a bad idea, so........I'm losing hope they can or will help. (p.s. I am unfortunately pretty saavy with medical nonsense as I've had breast cancer twice, my husband has been seriously ill for several years and I just had a horrible experience of sepsis this last fall.........but it's still hard to get any respect or support from our doctors. We're with Kaiser so our choices are limited with doctors, sigh).

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I am a cancer survivor with neuropothy and pain caused by scoliosis caused by my cancer surgery. I recieve Dilaudid and oxycodone as part of my palliative care. That classification makes it possible and easier for the doctor to do. I have,an intrathcal pump which delivers the Dilaudid directly to my spinal fluid in tiny amounts. It is about 100 to 300 times more effective than oral dosing and has no side effects. Search these chats for me, wsh66, I've written extensively about the pump. It is what makes my lie bearable.

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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I take Lyrica at might (not in the day because it makes me sleepy) and gabapentin during the day (it doesn't make me sleepy). My pain specialist doctor said that we have to take it for awhile before it is effective. He also said that they are anti-seizure medications - they only help people who have epilepsy or neuropathy. They calm down the nervous system so that it pauses sending out false pain messages (pain killers kill any pain anywhere in the body, anti-seizure meds don't do that). When I feel like I'm standing in a bonfire being burned alive while a swarm of wasps stings my arms but - there is no fire and no wasps anywhere - that's my nervous system sending false messages. It's supposed to tell me if I touch fire or a wasp stings me, it's not supposed to tell me that when it isn't. My nervous system is dying and misfiring. All old things and damaged things die and some of them misfire before they do. I hope researches find better meds for us, I do not not not want to take pain killers because they make me sleepy. PS: I wish politicians would quit practicing medicine without a license, my medications are getting harder and harder to get - pharmacists have interrogated me like I'm a criminal). Peggy

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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We have all become, "The Toxic Patient". (C) We are all cursed. I'm not taking this lying down. Watch for the coming essay under that title. I'm working on this. The worm has turned....

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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I will read with interest, Stephen. Do you have a plan of action? Peggy

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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I take 400mg 3 times a day for CRPS

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@wsh66

Are you replying to me or the registry comment. Non users don't understand this but addiction is based on getting high. Don't take enough to get high, you won't get addicted. Even doctors who have not used narcotics don't understand this fact.

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To Stephen @wsh66 I'm sorry but I have to say something off track here. About Addiction. What is an addict in your definition is not on point. A person who takes pain meds to get high is an addict. But a legit pain patient who may or may not get high/euphoric effects from their medication is not or couldn't possibly become an addict over any time is not true. Addiction definition is the fact or condition of being addicted to a particular substance, thing or activity. It does not make someone taking a narcotic pain med daily as directed by their physician who takes less than or as much as label says according to your views to become an addict u must take street drug's to get you high feeling euphoria.
I'm sorry to have offended anyone. But the drug itself is not going to make u an addict, your actions of misuse or should I say abuse to use drugs for other reasons than what the medication is intended for.

However I will say I love most of your posts. They are written with thought & sheer experience on ur part. With that said keep in mind not all ppl who take CBD & Cannabis oil would agree w/ur Neurologist opinion of what works or doesn't.
Gabapentin has helped many ppl w/neuropathy such as comes w/diabetes or other types of nerve pains of pins & needles type feelings. Unfortunately even on 50mg it did nothing but make me sick and nauseous & I even ended up w/dizziness the type you get as if u consume too much alcohol. So no this medication is not for everyone. It's sad that we who suffer the most are treated as junkies. Blessings to all.

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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Addicts are very different from you and me. When I wake up in the morning, I'm thinking about what I'm going to do today, who will be there, what I need to take with me, what I should wear, and my breakfast. When an addict wakes up he thinks about 'how much do I have left from last night?' I grew up in the music business in Hollywood, I've worked with a lot of them. Lovely people when they're clean, and most are very smart, but using, they can't be counted on for anything. Plus: I take medicine so that I can go on living my life. Addicts take drugs so that they can escape their life. Peggy

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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@pfbacon I read what you had to say and the first movie popped into my head was Judy how she was so abused in the music business.

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@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

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In US there a types of gabapentin .Neuotin Gabapentin is a type of 300mg capsules. It is most frequently used 1) to heal nerves 2) antiseizures (not for restless leg syndrome. Horizon Gabapintin is a product for 600mg pills that ARE for restless leg syndrome. I take the Neurotine 300mg (2) at night along with 2 of Ropinole(for restless leg syndrome (actual physical jerk). There is another Gabapintin that is more for Shingles.(herpes zoster). I have servere L-S pain and have had L-3-4 and C3-4 fusions. I live with constant pain unless in a recliner. So the questions is, what are you taking gabipentine for? The least strong pain medication is tramadol 50mg. I take it 2-3 tmes daily. I steer clear of sleeping pills. I got off of stronger hydrocordone pain meds. The minimum of some meds in combination seem to work the best for me.and others. I avoid any increases that might lead to augmentation( increrased pain from over use) Does this help? I am a retired Physical Therapist of 90 years old. I need a walker because of L-S that no one can help. Good luck. Question your Physician. Be pro-active. google and think of yourself.

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@bill54321

In US there a types of gabapentin .Neuotin Gabapentin is a type of 300mg capsules. It is most frequently used 1) to heal nerves 2) antiseizures (not for restless leg syndrome. Horizon Gabapintin is a product for 600mg pills that ARE for restless leg syndrome. I take the Neurotine 300mg (2) at night along with 2 of Ropinole(for restless leg syndrome (actual physical jerk). There is another Gabapintin that is more for Shingles.(herpes zoster). I have servere L-S pain and have had L-3-4 and C3-4 fusions. I live with constant pain unless in a recliner. So the questions is, what are you taking gabipentine for? The least strong pain medication is tramadol 50mg. I take it 2-3 tmes daily. I steer clear of sleeping pills. I got off of stronger hydrocordone pain meds. The minimum of some meds in combination seem to work the best for me.and others. I avoid any increases that might lead to augmentation( increrased pain from over use) Does this help? I am a retired Physical Therapist of 90 years old. I need a walker because of L-S that no one can help. Good luck. Question your Physician. Be pro-active. google and think of yourself.

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@bill54321. Wow, thank you so much. That one paragraph is very helpful. You have described your situation and the differences in types of Gabapentin. I take 4.....300 mg capsules only at night In combination with medical cannabis. I think it is the best I can do right now. With a condition for which there is no cure, I just want to find a little joy in a day. The only way I can possibly do that is to be able to manage the pain and sleep at night. Distractions sure help and you have just got me thinking.

May you be free of suffering and the causes of suffering.
Chris

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