Connect
Severe cold pain in legs
The cold pain feels like my bones are made of ice. This is a chronic situation I've had these pain for over 55 years. It comes and goes, not due to activity.
Waiting for testing for small fiber sensory neuropathy (feb 2020) . Pain is getting greater and lasting for longer.
Like
Helpful
HugInterested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.
Connect
I was border line years ago, maybe I need to have it checked again. I need to find a new doctor he is just making money doesn't really care about the patient.
-
Like -
Helpful -
Hug
1 ReactionI know the pain of which you speak! I still get it from time to time, but, not nearly as bad as before. What has changed? Three things. 1. Medications: I now take Lyrica. 2. Diagnosis: (not as the cause of the pain, but, I think it is!) of Rheumatoid Arthritis and Fibromyalgia. 3. I retired. This means I am no longer sitting still 8 hrs a day at a desk in a freezing office.
Have you been tested for autoimmune diseases? (RA, lupus, etc)? Don't let a dr just do the RF test and tell you it is negative. They should do a test called an ANA panel, which tests for about 7 different things. If there is a positive result, they should do more testing to narrow it down. No doctor has ever been able to tell me why I find the cold so painful. I do know that the lyrica seems to make the difference.
sorry you are going through this!