Foot neuropathy: What gives you relief?

Posted by kathrina @kathrina, Nov 5, 2019

It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?

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@jimhd

@katrina I hope I clicked on the right name. I have a hard time texting on my phone.

I have small fiber idiopathic peripheral neuropathy, with burning pain and sharp shocks anywhere from my knees to my feet. I have had some pretty good days since I started taking Imipramine six weeks ago. But as soon as I lie down they have burning pain. Strange. I'm sitting in the exam room waiting for the pain specialist, and I plan to ask him about it.

Jim

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That’s what’s happening to me(only after several hours). Please let me know what you find out. Thank You

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@lioness

@kathrina The Topricin is a cream you rub in the Epsom Salts is to put into a foot bath . If you can find it they also make a gel in a tube called Procure that's the brand name I like it also for pain and it is magnesium too.

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Thank You so very much. Will try & get back to you

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I have ordered, and yet to receive an "AkuSpike" mat to see if it benefits the neuropathy in my feet. Apparently, this mat https://www.akuspike.com/ is a step above other acupressure devices, in that "Aku products are meticulously designed with high-grade metal spikes that naturally stimulate energy flow throughout the body. When conductive metals, such as silver and copper, come in contact with the skin you'll experience a natural warming effect that is both healing and therapeutic."
I should receive this shortly, and will take it on a Caribbean trip in another week. I'll certainly report back to this forum, especially if I find it DOES actually work!

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Good morning @kathrina . Can you describe the neuropathy! Is it pins and needles? Numbness? Or something else. We’d love to help but needs a little more information, if you’re okay sharing.

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@jimhd

@katrina I hope I clicked on the right name. I have a hard time texting on my phone.

I have small fiber idiopathic peripheral neuropathy, with burning pain and sharp shocks anywhere from my knees to my feet. I have had some pretty good days since I started taking Imipramine six weeks ago. But as soon as I lie down they have burning pain. Strange. I'm sitting in the exam room waiting for the pain specialist, and I plan to ask him about it.

Jim

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I have the same thing. I notice when I do house work & are moving around I feel better but once I sit down the pain starts & doesn't go away. I am on 500 mg of Gabapentin & taking Cymbalta & they keep increasing the Gabapentin & it helps for a week & then the pain is back. I give up & I am not going to increase it anymore. Do you have to keep increasing the Imipramine like you do Gabapentin? I'm at my witts end & don't know what to do. Can this condition make your blood pressure rise? Mine has been going up & i do take meds for that. I have no idea how I got this but I do have back problems with the disks & was in a car wreck 10 years ago. I guess there is no way of knowing for sure. Please let me know if the Imiprinine helps? Thank you. best of luck to you. Genie

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@tigreyes2004

I have the same thing. I notice when I do house work & are moving around I feel better but once I sit down the pain starts & doesn't go away. I am on 500 mg of Gabapentin & taking Cymbalta & they keep increasing the Gabapentin & it helps for a week & then the pain is back. I give up & I am not going to increase it anymore. Do you have to keep increasing the Imipramine like you do Gabapentin? I'm at my witts end & don't know what to do. Can this condition make your blood pressure rise? Mine has been going up & i do take meds for that. I have no idea how I got this but I do have back problems with the disks & was in a car wreck 10 years ago. I guess there is no way of knowing for sure. Please let me know if the Imiprinine helps? Thank you. best of luck to you. Genie

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Sorry for the fallout from accident. Don’t know anything about drug(s): just know @ least walking & moving around fairly every hour helps.

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@becsbuddy

Good morning @kathrina . Can you describe the neuropathy! Is it pins and needles? Numbness? Or something else. We’d love to help but needs a little more information, if you’re okay sharing.

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Yes pins & needles + shooting-burning-pain. It doesn’t cease until I rise from bed & walk-around a few minutes. Thank You

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@budmeister

I have ordered, and yet to receive an "AkuSpike" mat to see if it benefits the neuropathy in my feet. Apparently, this mat https://www.akuspike.com/ is a step above other acupressure devices, in that "Aku products are meticulously designed with high-grade metal spikes that naturally stimulate energy flow throughout the body. When conductive metals, such as silver and copper, come in contact with the skin you'll experience a natural warming effect that is both healing and therapeutic."
I should receive this shortly, and will take it on a Caribbean trip in another week. I'll certainly report back to this forum, especially if I find it DOES actually work!

Jump to this post

Thank You—will be waiting to hear.

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I had my appointment with the pain specialist yesterday, and an MRI of my brain. The doctor said I'm taking the maximum dosage of imipramine, and it's really improved the pain. He said that it should continue to work at the current level indefinitely. I'm going to call the Abbott rep today and schedule a time for him to adjust my stimulator. I should be seeing the neurologist soon to hear what the MRI tells him.

@kathrina My BP went way up when I first started taking it, but the pain specialist said it was unlikely that it was caused by imipramine, but I read on drug interactions online that it could be a sign of a combination of my meds.

Then, a week ago it dropped back down to my normal, 120/60. I suppose that my body could have adjusted to it. So, I'll keep taking it for now. I'll talk with the Abbott rep about the worsening symptoms. The needle stabbing is much worse than it ever has been. I woke up in the middle of the night last week with awful burning pain beyond where it had ever been. Until recently the pain has been in the balls of my feet, but now it's in the top as well, and to my ankles. I think that a reset will likely take up the slack. At least I can hope.

The pain specialist sent an electronic prescription to Humana for 90 days.

One thing I learned from the pain therapist is to concentrate on the pain and break it down to the signs of the pain. I focus on the tingling, and very soon that's what I notice and the burning pain is pushed into the background. The tingling isn't something that bothers me, so focusing on that is way less troubling.

Jim

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