Brachioradial Pruritus

Posted by laisseraler @laisseraler, Oct 8, 2019

I have had this problem for 3 months now, it is driving me crazy, itching day and night no sleep because of constant itching, scabbing, bleeding from me scratching my arms from my elbows to my wrists. Kaiser has been treating it like an rash? with creams that never work? their spine clinic refuses to look at my spine as part of the cause?

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I had itching of my arms would usually come on at night and it was so intense I just wanted to be put out of my misery. THEN I did some research. LOW DOSE NALTREXONE OMG THE ITCHING IS GONE. start out at 1.5 mg a month upping 1mg a month till you reach 4.5mg. I also take it at nite along with 200 mg of generic welbutrin. You have to twist a drs. Arm to get them to give it to you. Good luck.

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@cae1958

I had itching of my arms would usually come on at night and it was so intense I just wanted to be put out of my misery. THEN I did some research. LOW DOSE NALTREXONE OMG THE ITCHING IS GONE. start out at 1.5 mg a month upping 1mg a month till you reach 4.5mg. I also take it at nite along with 200 mg of generic welbutrin. You have to twist a drs. Arm to get them to give it to you. Good luck.

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Welcome to Connect, @cae1958,

A number of studies have shown low dose naltroxone to be an effective antipruritic agent in brachioradial pruritus – thanks for sharing your insights. When were you diagnosed with brachioradial pruritus? May I ask what other treatments you’ve tried?

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HI I have the same issues Intense Itching of both arms until it bleeds then some! I went to my doctors at Kaiser they are completely in the dark but did send me to physical therapy and order Gabapentin 100mg generic for Neurontin, My physical therapist order neck traction with 8lbs water weight when used it stop all the itching. I wish I could sleep with it?

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I am being seen at the Mayo Clinic in Rochester. I have all the symptoms below and have tried everything suggested by others below. A few days ago they put me on Gabapentin 300 mg nerve medication. So far it is not working. I will let you know if anything else helps. Right now I am also using besides the Gabapentin, Cortizone 10, 2 bendryl, 2 hydroxyzine pills and still no relief.

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@angell

I am being seen at the Mayo Clinic in Rochester. I have all the symptoms below and have tried everything suggested by others below. A few days ago they put me on Gabapentin 300 mg nerve medication. So far it is not working. I will let you know if anything else helps. Right now I am also using besides the Gabapentin, Cortizone 10, 2 bendryl, 2 hydroxyzine pills and still no relief.

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@angell What is your diagnosis and who did you did you see. A Neurologist, Pain doctor, surgeon etc? I just got home home from Mayo after having a fusion from T-20 to my pelvis. Can't bend front to back or side to side. Wear a brace when I'm up. Very tired. I can't take Gabapentin, it drives me crazy. I hope you have an appointment to go back. Blessings to you. Jeanie

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In reply to @lorifig1965 "I live in Ocala" + (show)
@lorifig1965

I live in Ocala

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Hi. I’m in Jacksonville and go to Mayo Clinic. I’ve developed bilateral BRP with one arm being worse than the other. I will start with a neurologist. I’ll Have my cervical spine imaged first to rule out a radiculopathy thing. If the cervical spine is normal, I’ll go from there and see what mayo can do. I’m having pretty good results with BioFreeze right now. Hopefully after using it for awhile, the Pruritus will stop or at least stop for awhile. Lynne

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@lynne11

Hi. I’m in Jacksonville and go to Mayo Clinic. I’ve developed bilateral BRP with one arm being worse than the other. I will start with a neurologist. I’ll Have my cervical spine imaged first to rule out a radiculopathy thing. If the cervical spine is normal, I’ll go from there and see what mayo can do. I’m having pretty good results with BioFreeze right now. Hopefully after using it for awhile, the Pruritus will stop or at least stop for awhile. Lynne

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@lynne11 I don't know what bilateral BRP is can you explain it to me. I am very sorry, but you are at the best Place. I had a fusion on my back there a 9 hour and I'm going through the long recovery. I am so sorry and I hope you get some help. I had my fusion at Mayo Rochester MN. It was t-9 to my pelvis. I'm off of pain pills and today I hardly have any pain. Let me know how you are for me.

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I have been dealing with BRP for just over 12 years. It starts every fall (just started about 2 weeks ago) and lasts until mid winter. There was 1 year it never started. Through out the 12 years I have had blood work, MRI of Brain, C-spine and T-spine, EMG, EEG, nerve blocks in my c-spine and have tried every OTC medication/cream. I have been prescribed gabapentin, amitriptyline, and atarax (maybe more but I cant remember). I have seen multiple family physicians, 2 neurologists, a dermatologist and an allergist. None of the testing showed anything, and none of the above treatments brought any relief. Then I tried a cream called Emla. It is the ONLY thing that has worked for me. It is a prescription (lidocaine and prilocaine mix). I use it as needed, usually 2-3 times a day. At night when the itch seems to be at its worse, I put the cream on and wrap my arms in plastic wrap. This makes the cream work better. Relief will last several hours either way, but the numbing affect is stronger/deeper if you put a occlusive dressing over it (like plastic wrap).

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@cae1958

I had itching of my arms would usually come on at night and it was so intense I just wanted to be put out of my misery. THEN I did some research. LOW DOSE NALTREXONE OMG THE ITCHING IS GONE. start out at 1.5 mg a month upping 1mg a month till you reach 4.5mg. I also take it at nite along with 200 mg of generic welbutrin. You have to twist a drs. Arm to get them to give it to you. Good luck.

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Does the Naltrexone still work for you??

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@laisseraler

I added the link for the clinical trials please find and register online then send them a email requesting a new trial, then post on CL. to get a support group started in your area! Remember the more people we find with this rare condition the more likely we will get a grant for clinical trials!

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I recently found this. Did you, laisseraler, do the clinical trial?

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