Pain and discouragement

Posted by kalo37 @kalo37, Aug 21, 2019

my chronic pain is often a downer. I do take meds for it but often am late with them and then the pain is awful. is life worth living is the trap i get into..i am a very senior person.

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@trellg132

In 36 with this pain it can be discouraging

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I'm 54 and this pain is HELL,I guess we have no choice but to keep praying and pushing ourselves! But somedays are just too much! Hwlp

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There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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@resawaller

Amen my pain is so bad somedays I wished I didn't even wake up! And for the people not in pain, don t know how it feels , God bless us all

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@resawaller I saw where you posted about your fibromyalgia. I have had it for along time. I just had a bad flare you cant do anything to help with that I have a lot in my tool box for fibro . I use ice , ginger turmeric tea all are anti inflammatory as inflammation causes most pain. I use heat or hot shower helps immensely. Of course massage,resting a lot helps. Fibro com says we need more magnesium then most people so I take 600 mg. a day . Tramadol 50 for pain when nothing else helps. Epsom salts wash or bath . Apple cider vinegar also helps use a washcloth to apply . Light exercise isometric exercise also. Hope some may help you .

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@kalo37 I hear you about pain. Can I ask you where is the pain originating from ? Do you have a autoimmune disease or something more serious like cancer

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@primghar

There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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@primghar

I'm pretty proactive about keeping ahead of constipation. If I have hard stool, I take a little more Lactulose that night.

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@primghar

There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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Hi, @primghar - not being able to get out of bed is definitely rough. I've had that kind of pain only in a back injury in college from a skiing fall, and emotionally when my mom was going through her second divorce - hard to even get out of bed.

When you talk about retreating, what helps you in that regard (e.g., staying home from some things, perching in a favorite chair, going to bed)? Have you found any medications that work well for you?

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@artscaping

Good morning @kalo37, @primghar. Good morning @lisalucier. Lisa has tagged me to try my best to be helpful with the challenge of chronic pain that is trying to take over your life and the joy that you have found living it. My first pain of that strength arrived when I was 27. It is now 50 years later and I am at it again.

I must admit I was shocked to be in such pain after a lifetime of orthopedic surgeries to correct the problems. At times it seems like those pain signals have all ganged up on me once again.

And so....two suggestions.

1. Don't fight the pain. That only makes it worse. Instead, announce to yourself and others "My body needs to rest now" and retire to your favorite comfort zone. When you are sitting or lying as comfortable as you can be, welcome the pain and then study, analyze, and learn from it. Stay present and track it. Where does it start.....how long does it last? If it is constant, does it move around?

2. Check your posture....is your body in alignment? Can you draw a string from the tip of your nose to the space between your toes? If you are sitting, do you have proper support for your spine? I had lumbar pillows made just for the support needed to be sitting up straight. It really helps to sit "strong".

Pay attention to your sitting posture or even your lying down positions. Reset your body to a more healthy position. Much of our pain can be attributed to "habit energy" when our bodies slip back into old habits that may not be energizing and comfortable.

These may seem like small things. And yet they are the easiest self-treatments to do. I try to sit very upright using my back muscles. That means no sinking into the chair with your spine cocked to one side or the other. Its amazing how the muscles in our backs become much stronger when they have work to do.

May you be content and at ease today. Chris

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I too live with pain lumbar spine, leg, nerves. I have been on Hydromorphone, [dilaudid], for years became immune. dr. now has me on Oxymorphone I feel horrible on it. I can't explain it????? Has anyone had a neg. feeling from it plus does nothing for pain? I'm so unhappy.

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@kimspr3

I too live with pain lumbar spine, leg, nerves. I have been on Hydromorphone, [dilaudid], for years became immune. dr. now has me on Oxymorphone I feel horrible on it. I can't explain it????? Has anyone had a neg. feeling from it plus does nothing for pain? I'm so unhappy.

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@kimspr3 I'm sorry you're having medication problems. No fun. How long have you been taking oxymorphone? Did the doctor talk with you about the possible side effects?

Jim

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Hello Jim, I just started on Oxymorphone I hate the feeling. Very different from Hydromorphone. I feel confused, very slow, my husband doesn't like what he sees and said I look very drugged, I feel very drugged. He also said, from all these opiates he's frighted it will shorten my life. I'm so scared because I feel the same. My doctor never talks about the side effects, I'm afraid to bring it up because he makes me feel guilty because the pain is so bad. We think he's frustrated with me and he doesn't hide it. Hard to find care because of my diagnosis {drs caused it] HopeI'm making sense?

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