What helps with post liver transplant fatigue?

Thanks, @rosemarya That article is very helpful. It’s been a while since I’ve had a bone scan but the recent fracture caused me to ask my PCP if I should. From what I read in the article I would not be surprised to find out if I do need to start taking a medication. I did start taking calcium carbonate and vitamin D, also with my team’s approval. They do leave things not directly related to the transplant to the PCP. It sounds as if my PCP once again dropped the ball. 😕
JK

Thanks Rosemary! I’ll check it out.

@cmael I just happened across your post, if that’s ok. If you are taking any steroids or anti rejection meds, you’ll want to get a baseline bone scan just so you know the health of you bones (especially before winter and snow comes along)! Your primary doctor can order it. Depending on the outcome, you should see an endocrinologist. I had a bone scan last summer and I just thought it was routine. Silly me! The prednisone I was on had done a real number on my pelvis and wrists (where they measure density). So now I’m on weekly Fosamax, which has caused no problems. 😊. Don’t wait til next year!

@gaylea1, I like your words, "going along with the flow and napping as needed". That has worked well for me, too. Over time, my need for daily naps has declined. For some reason, I seem to recall that at 9 months post transplant, I made a realization that I felt normal. I don't know why that sticks in my mind but it could be that 2009 was history and 2010 was going to be my 1st whole new year with my new organs. I transplanted in April 2009.
Anyway, enough of my chattering, How are you doing with the fatigue? Are you aware of any improvement?

@rosemary's...thank you so much for following up with me. My fatigue is calming down a bit. I do get tired after/while shopping or walking about after an hour or so. If I have a strenuous day i feel it the next day but take it easy. My "napping" has become infrequent now. I don't feel quite normal yet but I put that down to all the ERCPs and pancreatitis bouts (the last one being the beginning of June). My liver function is good though and I'm grateful for that if nothing else. Last year at this time I was dying and I'd had enough with the wait. Now I'm dying to live! I know normalcy is just around the corner 💖

@gaylea1, Do you know how much joy I get from reading your posts? I am happy read that you are finally feeling the good part of transplant and beginning to enjoy your new life!
Have you been able to return to some of the projects that you used to enjoy like diamond painting? Have you discovered any new interests?

@rosemary...I had so much support from you and the group and I know that's what got me through the whole process. They found some cancerous lumps on my arm (I am never in the sun) and the doctor took some biopsies to send off to be analyzed. I'm sure they'll be superficial and probably just cut them out. Boy...to have a stable immune system I always took for granted! I'm still diamond painting and have found a church nearby that I am now attending. We moved in May so I decided to go to a church closer to me. I've also been looking at a few book clubs and various community activities. Having my licence back is just amazing after 3 years without being able to drive. I can commiserate with so many people waiting for their surgery and experiencing a lot of symptoms I myself had. I am over the moon with my new lease on life and intend on living it to the fullest. Thanks to you and many others I can now say I'm on the other side.

@gaylea1 It really is so good to hear another post-transplant success story and that you are doing well now. As I posted in another discussion, I was three years post-transplant on Monday. What a wonderful feeling. Every day is a gift.
JK

@contentandwell thank you so much and congratulations on your 3rd anniversary! You are one of my key supporters and I'd really like to thank for putting up with all my complaints and offering some great solutions. I appreciate all you've done for me.

@gaylea1 I think all of us who are post transplant, no matter the organ, feel a connection with each other. We are all so happy to be alive and to be living in a time when this is possible. I owe my life to the wonderful physicians and the wonderful care I had at Mass General Hospital. My surgery was 7.5 hours long and there were three transplant surgeons in there! I presume only my primary surgeon was there for the whole time.
My surgeon was great. I was admitted in mid-afternoon and he came in to introduce himself and tell us that the surgery would take place after midnight. My husband asked him what he was going to do now for some reason. He told him that he was going home to get some sleep! Good answer. 😊
JK