Aromasin (exemestane)

Posted by trixie1313 @trixie1313, Aug 8, 2019

Anyone taking Aromasin? I've been on anastrozole (Arimidex) which caused severe splitting headaches and was then started on letrozole (Femara). On that I began having severe joint pain in feet wrists, elbows, and worse yet the knees as well as severe fatigue. Oncologist is giving me a 3-week break off and then am to start up on Aromasin. Here we go again!

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@trixie1313

@hopeful33250 The MRI was on both breasts prior to noting the tumor on the same affected breast, just on the inner upper side. The first tumor was on the outer side.

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@trixie1313 That was wise to have the MRI. I had no idea that an MRI would show a tumor that mammography did not reveal.

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@hopeful33250

@trixie1313 That was wise to have the MRI. I had no idea that an MRI would show a tumor that mammography did not reveal.

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@hopeful33250 Yes, it was small but was told it is aggressive. Had the MRI not been done, this could have been a whole different story ending for me.

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@trixie1313

@hopeful33250 Yes, it was small but was told it is aggressive. Had the MRI not been done, this could have been a whole different story ending for me.

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@trixie1313 Wow, unbelievable! Good for you!

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@hopeful33250

@trixie1313 That was wise to have the MRI. I had no idea that an MRI would show a tumor that mammography did not reveal.

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Oh yes - the MRI is a much more detailed test than the mammogram. It found another tumor on me too - that the mammogram did not show. The MRI is always done on both breasts - you lie face down on a special table & the girls hang down for the test.

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@trixie1313

@kanaazpereira By any chance, are there any articles in layman's terms? And would there be any articles of infiltrating ductal cancer with neuroendocrine differentiation?

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Hi @trixie1313,

Yes! Here are some articles/information from Mayo Clinic:
– Hormone therapy for breast cancer https://www.mayoclinic.org/tests-procedures/hormone-therapy-for-breast-cancer/about/pac-20384943
– Breast cancer chemoprevention: Medicines that reduce breast cancer risk https://www.mayoclinic.org/diseases-conditions/breast-cancer/in-depth/breast-cancer/art-20045353
https://www.mayoclinic.org/drugs-supplements/exemestane-oral-route/description/drg-20063757

With regard to "infiltrating ductal cancer with neuroendocrine differentiation” you might find this information useful (I hope:)
– Rare Neuroendocrine Breast Cancer Not So Unusual https://www.medscape.com/viewarticle/885394

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@kathyomaha55

Oh yes - the MRI is a much more detailed test than the mammogram. It found another tumor on me too - that the mammogram did not show. The MRI is always done on both breasts - you lie face down on a special table & the girls hang down for the test.

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Hi, is an MRI standard follow up care after surgery, radiation? Thanks

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@dac58

Hi, is an MRI standard follow up care after surgery, radiation? Thanks

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@dac58 You would have to check with your care center/provider. At the large facility I belong to, standard care for breast cancer staging is bone scan and body scan. MRI is not standard care. I was fortunate when I spoke with my surgeon about my concerns for being sure the unaffected breast didn't have anything growing, that she ordered it for me and that's when we found the secondary tumor in the affected breast, i.e. one was outer inner and the second was just on the opposite side of that tumor. Again, my other breast was clear. My breasts have always been quite dense and, what surprised me was when I thought I felt another node and had to have a mammogram following radiation, was (even though I had partial mastectomy), the breast tissue is still dense and difficult to visualize and had to have additional magnification views to see the new microcalcification clusters.

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@trixie1313

@dac58 You would have to check with your care center/provider. At the large facility I belong to, standard care for breast cancer staging is bone scan and body scan. MRI is not standard care. I was fortunate when I spoke with my surgeon about my concerns for being sure the unaffected breast didn't have anything growing, that she ordered it for me and that's when we found the secondary tumor in the affected breast, i.e. one was outer inner and the second was just on the opposite side of that tumor. Again, my other breast was clear. My breasts have always been quite dense and, what surprised me was when I thought I felt another node and had to have a mammogram following radiation, was (even though I had partial mastectomy), the breast tissue is still dense and difficult to visualize and had to have additional magnification views to see the new microcalcification clusters.

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Hello @trixie1313, You have provided us all with some important information, thanks again!

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@dac58

Hi, is an MRI standard follow up care after surgery, radiation? Thanks

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For me, yes it is. When I was diagnosed with one tumor in one breast the radiologist immediately ordered a breast MRI on both to ensure there were no other issues. There was one suspicious area on the other side, so they did an MRI biopsy, which turned out to be benign. Now the standard of care for me going forward (lumpectomy and radiation completed last year) will be mammograms and breast MRI’s alternating every 6 months.

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@dac58

Hi, is an MRI standard follow up care after surgery, radiation? Thanks

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They ordered mine before I had surgery. That's how they picked up the 2nd tumor.

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